• Posted by mmc on March 15, 2013 at 4:38 pm

    image_2013-03-15.jpg

    Chemo day 1. Got all my labs and am now hooked up. Going to be a looong day. Left the house at at 5:45 am to get here at 7:20 for labs. Get done around 5:30 or 6pm.

    Cancer getting some butt whupping!

    Mike


    Age 54
    10/31/06 dx CIS (TisG3) non-invasive (at 47)
    9/19/08 TURB/TUIP dx Invasive T2G3
    10/8/08 RC neobladder(at 49)
    2/15/13 T4G3N3M1 distant metastases(at 53)
    9/2013 finished chemo -cancer free again
    1/2014 ct scan results….distant mets
    2/2014 ct result…spread to liver, kidneys, and lymph system

    My opinions are my own and do not reflect the opinion of ABLCS or anyone else. I am not a doctor nor do I play one on TV.
    Rockyiss replied 11 years, 6 months ago 12 Members · 32 Replies
  • 32 Replies
  • rockyiss

    Member
    March 25, 2013 at 8:23 pm

    Hi Mike. When my husband got chemo they told him to take his nausea meds no matter what to keep ahead of it . They also told him no salads or fruits because of his low immune system. When he couldn’t eat I would get a can of cambells chicken noodle soup ,dump the juice and then rinse the noodles. This was about the only thing he could eat, just the bland noodles.
    In 2011 aweek after I told the woman that had worked for us for eight and ahalf years that my bc was back and I needed to get treatment she stole five thousand dollars off us. she had been stealing from our company during my husbands cancer , my cancer ,our house fire and several families death. In the last fifteen years she stole off a bank , two lawyers and us. She spent a total of 4 months in jail. I saw her picture in our local paper last week smiling with the rescue squad. Don’t be upset when the people that stole your wifes ipad don’t have anything done to them. We live in a very messed up society.
    My prayers are with you and you family you keep on going you will get thru this

  • jimswife

    Member
    March 25, 2013 at 4:57 pm

    George, you made me laugh today! Our daughter was a criminal justice major in college and she quotes one of her professors with, “don’t commit a crime with someone else because the other guy always squeals” and “criminals aren’t noted for being the brightest bulbs in the box they just think they are smarter than the rest of us”. Too true or else why are prisons so crowded?

  • gkline

    Member
    March 25, 2013 at 2:00 pm

    Hey Mike

    Sorry I haven’t been here this week to cheer you on.
    Went to S.Carolina to vacation in the cold and rain and play some winter weather golf. Could not remember my ultracomplicated password. So I could merely lurk online and follow your progress.
    It appears as though you have taken charge of your chemo and your ipad.
    I was with a NY Judge at our condo and told her about your theft. She replied
    “We aren’t exactly working with rocket Scientists in my line of work”

    Now ain’t that the truth.

    Keep those cards and letters coming Mike. We all want to know how to beat this thing. You are going to show us the way.

    George


    Light a man a fire and he is warm for an evening.
    Light a man ON fire and he’s warm forever.

    08/08/08…RC neo bladder
    09/09/09…New Hip
    =
    New Man! [/size]

  • dukel

    Member
    March 25, 2013 at 5:05 am

    Hi Mike.
    Just checking in to see how you are doing. Glad you,re doing okay. Hope you continue to handle the chemo well.
    Duke

  • jimswife

    Member
    March 22, 2013 at 4:50 pm

    Riiiiiight, my toddler. Not buying that one. Was she another patient or heaven help us an employee? Love these apps! Just updated my iPad finder and sure enough shows my devices are all right here at good old 1320!

    So glad you got checked out and things are going better today. The chemo will knock you out at times and as Jean says, just rest when your body says to. Jim and I watched all seasons of the show 24 which we hadn’t seen before during his chemo. We would watch every afternoon as “rest time”. If he didn’t nap at least he was resting, plus there were more than one times when his chin hit his chest. And, that was just fine! When we finished with 24 we started another season of another show. It was a way to pass the time and get the rest he needed.

    Take good care and will visit again soon! Carla

  • mmc

    Member
    March 22, 2013 at 3:38 pm

    Yeah. The woman tried to blame her toddler. She was all over the map. No excuse for why they didn’t call the phone number engraved on the back of it or in the alert box on the screen when they connected to the Internet at their house that said “This iPad is reported lost. Please call ###-####”.

    Got my day 8 chemo yesterday and I’m doing well. Copious amounts of blood in my urine and I’m on Cipro due to suspected infection but I think my fevers are basically “tumor fevers”. My oncologist stopped in when I was finishing up my chemo in the study lab (saw the nurse practitioner prior to the chemo that day). He thanked me for getting checked at the ER. I was thinking, “Thank me??? You’re the one working on saving my life. If you tell me go to the ER because a fever can get out of control in a hurry on chemo, I’m getting my hiney to the ER! No debate!”

    Nice doc. I like him and the whole team from Brian at the reception desk, the pharmacist for my chemo, the nurses, NP, fellow, study coordinator, docs…. They are a great team and I know them all by first name!

    Taking it easy today. My son’s birthday was last week and we’re heading over to their place to celebrate tomorrow.

    Mike


    Age 54
    10/31/06 dx CIS (TisG3) non-invasive (at 47)
    9/19/08 TURB/TUIP dx Invasive T2G3
    10/8/08 RC neobladder(at 49)
    2/15/13 T4G3N3M1 distant metastases(at 53)
    9/2013 finished chemo -cancer free again
    1/2014 ct scan results….distant mets
    2/2014 ct result…spread to liver, kidneys, and lymph system

    My opinions are my own and do not reflect the opinion of ABLCS or anyone else. I am not a doctor nor do I play one on TV.
  • jimswife

    Member
    March 22, 2013 at 3:23 pm

    What crumb bums there are out there. I mean stealing someone’s iPad while they are sick. Bums!!! Glad you got them. More importantly you are doing better and can move forward with the chemo! If you recall Jim went through a 2 week stop due to bloodwork and his body simply trying to figure out what the heck whe was doing to it NOW!! Once he got back into sync it was full speed ahead and never look back. wishing you the same.

  • flamenco

    Member
    March 22, 2013 at 11:14 am

    Glad your fever was sorted, and no delay for treatment. What low-lifes there are in this world to target people in hospital – well at least they didn·t get away with it this time.
    Diane

  • catherineh

    Member
    March 21, 2013 at 10:54 pm

    Gotta love technology… especially when it tracks down the bad guys. So happy you got the iPad back. Those things become our lifelines!

    That remote lockdown is a very cool feature isn’t it? Those two won’t think “lockdown” is so cool from a jail cell though! Way to think quick on your feet (or ER bed)!

    Very happy to hear your fever reset back to normal and all is calm again. Leave it to you to make even chemo an exciting adventure and riveting tale!


    Best wishes… Catherine

    TURBT 1/21/10 at age 55
    Dx: T2aN0M0 Primary Bladder Adenocarcinoma
    Partial Cystectomy 2/25/10
    Vanderbilt Medical Center
    Nashville, TN

  • mmc

    Member
    March 21, 2013 at 10:45 pm

    Eventful times! Last evening my fever went up so I had to call my oncologist. He told me to go to the local hospital to get blood work. Chemo, as most of you likely know, messes your immune system and a little thing can get out of control in a hurry. While there, my wife set her iPad down and someone took off if with it. We figured out it was missing fairly quickly and she did a search and then called the police. The police came into my ER room to discuss it and I had used the ‘Find my iPhone” app to find the house of the people who took it. They were about ten miles from us. Showed them a satellite photo even! We gave the officer the login for find my iPhone so he could use it when he got closer. The police went right o the house and recovered it and have the woman a summons to court. Her husband was online on his laptop trying to figure out how to get past remote lock password I put on it once we knew someone stole it.

    Oh yeah….my blood work was fine and my fever went down and we were able to go for my regular chemo today.

    Mike


    Age 54
    10/31/06 dx CIS (TisG3) non-invasive (at 47)
    9/19/08 TURB/TUIP dx Invasive T2G3
    10/8/08 RC neobladder(at 49)
    2/15/13 T4G3N3M1 distant metastases(at 53)
    9/2013 finished chemo -cancer free again
    1/2014 ct scan results….distant mets
    2/2014 ct result…spread to liver, kidneys, and lymph system

    My opinions are my own and do not reflect the opinion of ABLCS or anyone else. I am not a doctor nor do I play one on TV.
  • jimswife

    Member
    March 20, 2013 at 9:40 pm

    Mike, It sounds like things are moving along and if chemo was easy “everybody would be doing it”! I am sorry it’s been hard the past few days but it will get better for sure. And, think of the good it is doing to attack the “nasties”. We want all of them gone and out of Mike! Just offered the thorazine in case of hiccups getting worse. It seems to happen in every so many folks on I think it’s the cisplatin…Jim was among those chosen few! ;)

    Sorry to read that you are having pain but vicodan is always helpful for that. Take whatever they offer you for nauseau as it will oftne not get better on it’s own and if it gets ahead of you, like pain, it is harder to get back under control. Keep on drinking lots of fluids and stay well, friend. Will check back in the next day or so. Know that I keep you in prayer and have added you to our “super duper prayer chain” for success and ease in this part of the journey. So wish you weren’t having to do this! Carla

  • mmc

    Member
    March 20, 2013 at 4:04 pm

    Good luck today Jean! My next chemo is tomorrow. Just the Gemcitibine.
    Enjoy the ride! My ride is an hour and some east getting closer and closer to the Rocky Mountains.


    Age 54
    10/31/06 dx CIS (TisG3) non-invasive (at 47)
    9/19/08 TURB/TUIP dx Invasive T2G3
    10/8/08 RC neobladder(at 49)
    2/15/13 T4G3N3M1 distant metastases(at 53)
    9/2013 finished chemo -cancer free again
    1/2014 ct scan results….distant mets
    2/2014 ct result…spread to liver, kidneys, and lymph system

    My opinions are my own and do not reflect the opinion of ABLCS or anyone else. I am not a doctor nor do I play one on TV.
  • jmema

    Member
    March 20, 2013 at 3:19 pm

    The idea of getting things in order really appeals to my sense of “order”. I believe that knowledge is power and you can never be too prepared. I did all of that last year. It gives me peace of mind to know I have a “plan”.
    You are going to feel very tired some days. Don’t try and push yourself. Just listen to some of your tunes and get good rest.
    I am about ready to leave for chemo. We had more snow last night and the sky is really blue so it should be a pretty ride. We have more cows per capita in our town than any other town in CT. so that will give you an idea of our landscape.
    Blessings…Jean

  • catherineh

    Member
    March 20, 2013 at 2:55 pm

    Hi Mike… Sorry you’ve hit a rough patch the past couple of days. Your approach to getting all those ducks in a row is not surprising. When I think of “Mike”, the phrase “man with a plan” always comes to mind.

    Hang in there and I hope things smooth out today.


    Best wishes… Catherine

    TURBT 1/21/10 at age 55
    Dx: T2aN0M0 Primary Bladder Adenocarcinoma
    Partial Cystectomy 2/25/10
    Vanderbilt Medical Center
    Nashville, TN

  • mmc

    Member
    March 20, 2013 at 2:33 pm

    Carla,

    Thanks. I remember your mention of how bad Jim had hiccups. Mine have not been bad at all so far.

    As for cruising along….well maybe sorta. Yesterday was a bit of a down day. Really tired mainly. Today was supposed to be my first day of only taking nausea meds if needed. I didn’t take any before bed and around 5:30am that was not feeling well. Liz got my Zofran and more water (I still shoot for a liter per night) and I needed Vicodin because my right kidney was not happy at all and my cath bag was looking more like Cabernet.

    We had an appointment with a financial advisor today that I am postponing to end of next week. I know I have lots of time but I like to keep things organized so the appointment is to make sure we are doing all the proper preparations and legal things to simplify everything. Sounds gloomy but to me it is just thinking ahead and removing fear and uncertainty for Liz.

    Thanks again!
    Mike


    Age 54
    10/31/06 dx CIS (TisG3) non-invasive (at 47)
    9/19/08 TURB/TUIP dx Invasive T2G3
    10/8/08 RC neobladder(at 49)
    2/15/13 T4G3N3M1 distant metastases(at 53)
    9/2013 finished chemo -cancer free again
    1/2014 ct scan results….distant mets
    2/2014 ct result…spread to liver, kidneys, and lymph system

    My opinions are my own and do not reflect the opinion of ABLCS or anyone else. I am not a doctor nor do I play one on TV.
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