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  • Newly Diagnosed, New To The Forum

    gene therapy

    Posted by sisinlaw on October 27, 2016 at 5:38 pm

    Start of Discussion
    0 of 0 replies June 2018
    Now

    My brother in law was diagnosed in February of 2015, he is being treated with BCG and it’s not working. They discovered this week that he has two types of cancer in the bladder. Fortunately they have not breached the wall yet. One resolved with BCG the other is resistant to it. In his meeting with his dr they told him that they would submit him for two trials both in gene therapy. They didn’t give him any specifics on the trials. In doing a search I found this trial
    recombinant adenovirus–mediated interferon alfa-2b plus Syn3, at MD Anderson.

    According to their website they are allowing 100 people into this Level III trial stage.

    My question is, is there someone on this site that is experiencing the same problem and / or someone familiar with any of the gene therapy trials for bladder cancer.

    Thanks

    Diane

    sisinlaw replied 7 years, 11 months ago 3 Members · 4 Replies
  • 4 Replies

  • Sisinlaw

    Member
    October 28, 2016 at 7:51 pm

    thank you, I will check this out

  • jack-r

    Member
    October 28, 2016 at 7:09 am

    Diane,

    Clinical trials at U of MN take place at the Masonic Cancer Center of U of MN, a comprehensive cancer center designated by the National Cancer Institute. You can search and view those trials at:

    https://omis.cancer.umn.edu/research/clinicaltrials/index.php?tabval=bd

    They have a Help Line;

    Clinical Trials Help
    Contact our Cancer Information Line nurse with your questions about open or upcoming clinical trials, second opinions, or patient referrals.
    ccinfo@umn.edu • 612-624-2620 • 1-888-226-2376

    I hope this is useful.

    Best
    Jack

    6/2015 HG Papillary & CIS
    3 Years and 30 BCG/BCG+Inf
    Tis CIS comes back.
    BC clear as of 5/17 !
    RCC found in my one & only kidney 10/17
    Begin Chemo; Cisplatin and Gemzar
    8/18 begin Chemo# 3
    Begin year 4 with cis
    2/19 Chemo #4
    9/19 NED again :)
    1/2020 CIS is back
    Tried Keytruda, stopped by side effects
    Workin on a new plan for 2021

  • Sisinlaw

    Member
    October 27, 2016 at 7:48 pm

    Its Dr Konety at the university of MN, he would not give any specifics pending acceptance into one of two studies. Thank you for the link, I will review that information.

    Thanks

    Diane

  • sara.anne

    Member
    October 27, 2016 at 7:00 pm

    Welcome, Diane!

    Did the doctor happen to mention where the clinical trials were being conducted? Or if they were available with his doctor, what the lead hospital/medical school/ drug company is?

    Here is some general information that may (or may not!) be useful

    https://www.cancer.gov/about-cancer/treatment/clinical-trials/search/results?protocolsearchid=9767813

    Sara Anne

    Diagnosis 2-08 Small papillary TCC; CIS
    BCG; BCG maintenance
    Vice-President, American Bladder Cancer Society
    Forum Moderator

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