Home Forums All Categories Newly Diagnosed, New To The Forum Found a mass in my bladder. Thanks for the forum

  • Found a mass in my bladder. Thanks for the forum

    Posted by manufanatic99 on April 19, 2017 at 1:50 am

    I’m 52 years old male cancer survivor 22 years ago NHL in my small bowel. I was experiencing back pain but I have chronic back pain but this was different. I assumed I strained it but yesterday I started peeing brown and had a blood blob in my stream. When to the er and the ct showed a 11mm hyper dense nodule along the right lateral wall posteriorly. Seeing a urologist tomorrow. Wonder if anyone had a similar diagnosis. I know that I will find out tomorrow maybe but I thought I should ask.

    Thanks

    sara.anne replied 6 years, 2 months ago 6 Members · 29 Replies
  • 29 Replies
  • sara.anne's avatar

    sara.anne

    Member
    December 4, 2018 at 3:13 pm

    Most bladder cancer patients never have pain such as you describe.

    Sara Anne


    Diagnosis 2-08 Small papillary TCC; CIS
    BCG; BCG maintenance
    Vice-President, American Bladder Cancer Society
    Forum Moderator
  • Manufanatic99's avatar

    Manufanatic99

    Member
    December 4, 2018 at 1:05 pm

    Hello I’m back.. since my last post I’ve had two biopsies the first one was in the neck of the bladder came back as inflammation (cyst is?) last week I went in and he saw a wavy patch on my right side wall. So i wait for the result but what is more worrying is the pains I have in my pelvis. It starting on the belt line and moved everywhere including my thighs I assumed it was referred pain from my back since I have issues at l4/5 and S1. Now it has migrated right on top of my pubic bone area. The pain gets worse depending how i sit or lay down and is less when I’m stand up. I still have the other pains as well so I’m freak out. My question is those who had bladder pain where did you feel it? Thanks In advance

  • Manufanatic99's avatar

    Manufanatic99

    Member
    August 21, 2018 at 3:17 pm

    Now pissing clear B) B) B) B) Now the wait from the lab

  • Manufanatic99's avatar

    Manufanatic99

    Member
    August 21, 2018 at 11:40 am

    Update:

    Still passing clots but the stream isn’t so red anymore so I see some urine and the clots though still large are only one instead of 3 or 5. Hopefully this is a good sign. Thanks for all the info guys and gals

  • Manufanatic99's avatar

    Manufanatic99

    Member
    August 21, 2018 at 7:32 am

    [quote=”Alan” post=55704]Continued bright red blood would also possibly show not complete healing in an area. whereas darker would be “old” blood.[/quote]

    Ok thanks for the info

  • Manufanatic99's avatar

    Manufanatic99

    Member
    August 21, 2018 at 7:30 am

    Thanks Jack

    Still passing clots it is 3 am here ( east coast USA). Probably 20 times theblood has gone from dark red to red. I assume it must be the area (neck) must be a lot of blood vessels but still if he actually cortized it one would think it would stop. The other issue I had a blood cancer 23 years nhl. I guess if I’m still urinated then I’m ok. Just the amount of clots are is concerning and of course I have aches in my calfs so I think it is worst. Thanks

  • Alan's avatar

    Alan

    Member
    August 21, 2018 at 2:52 am

    Continued bright red blood would also possibly show not complete healing in an area. whereas darker would be “old” blood.


    DX 5/6/2008 TAG3 papillary tumor .5 CM in size. 2 TURBS followed by 6 instillations of BCG weekly with a second round of 6 after a 6 week wait.
  • jack-r's avatar

    jack-r

    Member
    August 21, 2018 at 2:41 am

    Manu,

    The instructions I was given regarding post-TURBT bleeding was that it was normal, unless:
    – the color or urine was REALLY like tomato soup, not just red color, or
    – clots got to the point that urination was not possible, despite hydration and urge;
    in those cases it was time to immediately call the office for for directions.

    Of course, the tomato soup hit at 3 AM, and inability at 4 AM. I waited until 6 AM to call, hoping for the clog to clear. An hour later they were clearing the clog by irrigating and suctioning the bladder. It was suspected that I may have over hydrated a bit after the TURBT, and delayed healing of a biopsy site.

    I hope things are better now.

    Best,
    Jack


    6/2015 HG Papillary & CIS
    3 Years and 30 BCG/BCG+Inf
    Tis CIS comes back.
    BC clear as of 5/17 !
    RCC found in my one & only kidney 10/17
    Begin Chemo; Cisplatin and Gemzar
    8/18 begin Chemo# 3
    Begin year 4 with cis
    2/19 Chemo #4
    9/19 NED again :)
    1/2020 CIS is back
    Tried Keytruda, stopped by side effects
    Workin on a new plan for 2021
  • Alan's avatar

    Alan

    Member
    August 20, 2018 at 8:10 pm

    Yes, that does sound like to much passing. While it may be nothing I think I would give you doc a call.


    DX 5/6/2008 TAG3 papillary tumor .5 CM in size. 2 TURBS followed by 6 instillations of BCG weekly with a second round of 6 after a 6 week wait.
  • Manufanatic99's avatar

    Manufanatic99

    Member
    August 20, 2018 at 7:25 pm

    Thanks but still concerns me I have gone at least 8 times and have passed large clots and the urine is still all blood it seems. I know I’m being paranoid I can deal with the diagnosis of it is bad but I don’t want to die from the procedure because I don’t ask the question. Thanks again

  • Alan's avatar

    Alan

    Member
    August 20, 2018 at 5:50 pm

    Almost all of us experienced some discomfort from the TURB. I was warned about possibly passing a clot 10-14 days post and I did. I almost freaked out and then I remembered his warning. Also, as Sara Anne posted and I have also learned too many times (2 hernias, 2 TURBS, 1 torn wrist ligament, 1 bypass, 1 carotid artery and 1 melanoma surgeries) you simply wait. To speculate is a waste of time until ALL the tests are done. I am still kicking and probably healthier than I was 12 years. One day at a time is ALL we can control and sometimes not even that.


    DX 5/6/2008 TAG3 papillary tumor .5 CM in size. 2 TURBS followed by 6 instillations of BCG weekly with a second round of 6 after a 6 week wait.
  • Manufanatic99's avatar

    Manufanatic99

    Member
    August 20, 2018 at 4:33 pm

    I know but so far he has been right. This biopsy is worse then my first so much blood in my urine lots of clots it is concerning but I called the doctor and he says it is normal. Thanks for responding

  • sara.anne's avatar

    sara.anne

    Member
    August 20, 2018 at 3:50 pm

    You are correct that the urologist may have an idea if what this might be, but
    he cannot be sure until the pathology report is in hand. It would be terrible if he hinted
    at information that turned out to be incorrect.

    Sara Anne


    Diagnosis 2-08 Small papillary TCC; CIS
    BCG; BCG maintenance
    Vice-President, American Bladder Cancer Society
    Forum Moderator
  • Manufanatic99's avatar

    Manufanatic99

    Member
    August 20, 2018 at 2:42 pm

    Update:

    Went in for my 3 months check and the dr said the bladder looks fine but there is something in the neck area so he did a biopsy and he believes it is a benign but it is still be set out to the lab. Question shouldn’t a urologist somewhat know if it is or not? Not 100 percent accurate maybe but with their experience?

  • Manufanatic99's avatar

    Manufanatic99

    Member
    April 26, 2017 at 12:57 am

    As a former cancer survivor I always follow up thanks so much jack and others it is very tough to talk to families about this.

Page 1 of 2

Sign In to reply.