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First Implantation Of Neo-Urinary Conduit
http://www.medicalnewstoday.com/articles/205748.php
Cynthia Kinsella
T2 g3 CIS 8/04
Clinical Trial
Chemotherapy & Radiation 10/04-12/04
Chemotherapy 3/05-5/05
BCG 9/05-1-06
RC w/umbilical Indiana pouch 5/06
Left Nephrectomy 1/09
President American Bladder Cancer Society9 Replies-
Was just teasing… :)
I remember you didn’t have Adobe Reader before also.
If you go into Add or Remove Programs, try uninstalling Adobe Flash Player. Anything that says Flash anything, uninstall. Then reinstall it fresh.That will often take care of the problem you mention.
If you have Windows, you can use Windows Media Player to view videos instead of flash player.Mike
Age 54
10/31/06 dx CIS (TisG3) non-invasive (at 47)
9/19/08 TURB/TUIP dx Invasive T2G3
10/8/08 RC neobladder(at 49)
2/15/13 T4G3N3M1 distant metastases(at 53)
9/2013 finished chemo -cancer free again
1/2014 ct scan results….distant mets
2/2014 ct result…spread to liver, kidneys, and lymph system
My opinions are my own and do not reflect the opinion of ABLCS or anyone else. I am not a doctor nor do I play one on TV.I’ve got a high end computer…i need to get high speed internet and get rid of dial up…thats whats slowing me down. And there’s a glitch somewhere in this computer that just won’t allow me to to get flash player..i’ve tried…its says its installed and it isn’t! I’ve been waiting for a decent bundle of my cable plus computer and what they advertise is not what they actually give you.
i’ll figure it out……….pat
Yes Pat! It is time to trade in that 1969 Radio Shack box for a real computer. Mac or PC? Doesn’t matter…just get one from the past 10 years or so and all will be fine. With all you do on the computer, you really need an update!!!
You can buy online and get a refurbished desktop or laptop for sometimes less that $300. You don’t need any of the high-end stuff.
:)
Mike
P.S. You know I’m just teasing, don’t ya? :D
Age 54
10/31/06 dx CIS (TisG3) non-invasive (at 47)
9/19/08 TURB/TUIP dx Invasive T2G3
10/8/08 RC neobladder(at 49)
2/15/13 T4G3N3M1 distant metastases(at 53)
9/2013 finished chemo -cancer free again
1/2014 ct scan results….distant mets
2/2014 ct result…spread to liver, kidneys, and lymph system
My opinions are my own and do not reflect the opinion of ABLCS or anyone else. I am not a doctor nor do I play one on TV.OOOOOOOOOH..ok…DOH..i get it…conduit!
I had read about the work initially at Wake Forest where they were actually making bladders from healthy cells in babies or children with neurogenic bladders or other such problems and they would grow the tissue outside the body and transplant into the existing bladder and the new tissue would take over. I didn’t dream that did i? Honestly i have research hidden in so many places i can’t find it anymore!
Well there is a Phase 11 i think that will take place in the future for bladder cancer patients where cells are taken from body fat not a diseased bladder. I’m sure that will take a while to get started??
My flash isn’t working so i can’t view the video or any videos for that matter..i know..time to update!!
pat
OK. So I don’t have to feel bad about not saving any.
However, I’m not sure I am convinced that will remain true in the future.
Aren’t you supposed to be having a honeymoon about now???
:)Mike
Age 54
10/31/06 dx CIS (TisG3) non-invasive (at 47)
9/19/08 TURB/TUIP dx Invasive T2G3
10/8/08 RC neobladder(at 49)
2/15/13 T4G3N3M1 distant metastases(at 53)
9/2013 finished chemo -cancer free again
1/2014 ct scan results….distant mets
2/2014 ct result…spread to liver, kidneys, and lymph system
My opinions are my own and do not reflect the opinion of ABLCS or anyone else. I am not a doctor nor do I play one on TV.
Mike,
As they had already had success with growing bladders for adolescents at the time of my Radical Cystectomy we had the conversation with Dr. Gary Steinberg about freezing some of my healthy bladder cells. His take was that due to the cellular changes that had already taken place in the bladder cells to allow the cancer to grow in the first place that they would not be viable cells to use. In other words our bladder cells would duplicate damaged cells making the new bladder more prone to cancer again.
Cynthia Kinsella
T2 g3 CIS 8/04
Clinical Trial
Chemotherapy & Radiation 10/04-12/04
Chemotherapy 3/05-5/05
BCG 9/05-1-06
RC w/umbilical Indiana pouch 5/06
Left Nephrectomy 1/09
President American Bladder Cancer Society
They also have what they call neo-bladder augmentation. It’s not really neobladder augmentation as much as it is bladder augmentation. Using a piece of the patient’s bladder, they can grow a partial bladder (all layers, including muscle).
http://www.tengion.com/# On the linked page, select the video for neo-bladder augmentation.I guess I should have had my old bladder cryogenically preserved!!! Looks like it won’t be too many years from now that they could have used a non-cancerous piece of my old bladder to grow a new one for me. Then I could swap out my neo-bladder for a real replacement bladder (muscle control and all).
I think if I was getting a neobladder now, I may be asking more about that possibility. VERY interesting technology!!!
Mike
Age 54
10/31/06 dx CIS (TisG3) non-invasive (at 47)
9/19/08 TURB/TUIP dx Invasive T2G3
10/8/08 RC neobladder(at 49)
2/15/13 T4G3N3M1 distant metastases(at 53)
9/2013 finished chemo -cancer free again
1/2014 ct scan results….distant mets
2/2014 ct result…spread to liver, kidneys, and lymph system
My opinions are my own and do not reflect the opinion of ABLCS or anyone else. I am not a doctor nor do I play one on TV.
Pat,
It’s not making the bladder. It is only making the conduit that would hook to the ureters on one end and the skin on the other. They grow it (over 4 weeks) using the patient’s cells around a structure to create a tube. Over time, the structure breaks down and is eliminated and the patient is only left with their own tissue.
This avoids using a segment of bowel to create the conduit.
See this video from the company’s web site:
http://www.tengion.com/news/video1-small.cfmMike
Age 54
10/31/06 dx CIS (TisG3) non-invasive (at 47)
9/19/08 TURB/TUIP dx Invasive T2G3
10/8/08 RC neobladder(at 49)
2/15/13 T4G3N3M1 distant metastases(at 53)
9/2013 finished chemo -cancer free again
1/2014 ct scan results….distant mets
2/2014 ct result…spread to liver, kidneys, and lymph system
My opinions are my own and do not reflect the opinion of ABLCS or anyone else. I am not a doctor nor do I play one on TV.OK maybe a dumb question..but is a Neo-Urinary Conduit a neobladder that needs to be catherized?…its the conduit part confusing me???
pat
ok i just found the answer..
The Neo-Urinary Conduit, for which the Company has initiated a Phase 1 clinical trial, is a physiologically functional tissue with a three-dimensional structure that diverts urine from the ureters to a removable, disposable bag, or ostomy bag, outside the body after removal of the bladder
i’m having trouble visualizing that…ok no intestines cut..bladder in place but how does the urine get to the outside bag…with a catheter in the urethra? Oh yuck…
i need to see a picture of this.Sign In to reply.
