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Diagnosis of Metastatic Bladder Cancer
MY HUSBAND HAS BLADDER CANCER THAT HAS MOVED TO THE LUNGS AND LYMPH NODES, AFTER MARCH 21, 07 HIS DOCTOR SAID THERE WILL NOT BE MUCH MORE THEY CAN DO. I HAVE CONTACTED THE ACS TO TRY ANY CLINICAL TRIALS THEY HAVE GOING. CAN ANYONE RECOMMEND ANY HERBAL MEDICINE OR SOME KIND OF NEW TREATMENT.
THANKS,
KIM JOHNSON -
11 Replies
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I can sympathize, it is very hard to be in this emotional turmoil. And it is difficult to remain optimistic. But the disease is one, granted a big one, but your relationship and life with your Dad is another. We sometimes get so caught up with the disease that we forget to share memories, stories, watch a movie, listen to music and just enjoy each others company. Maybe you are lucky, and you will be able to share many more years together, but maybe you are not, in that case you like to live en enjoy every moment by focussing on live instead of cancer.
Wishing you strength,
Renee -
Having such a rough day today. Dad sounds good he had a blood transfusion today to help get his numbers back up. I just can’t beat the sinking feeling I’m having. I have been so optimistic most of the time but lately I just can’t get there. The emotional rollercoaster of it all is really taking its toll right now.
I’m sure you all can relate to that feeling. One minute up the next minute down. What are some things you all do to make yourselves feel better? -
Hi Beth,
Sorry to meet you under these circumstances, but I’m glad that you’re here. It’s very tough, to be in the position you’re in, and my heart goes out to your father. Hope is good, there is definitely reason to hope.
Please keep us posted.
Wendy -
My Dad has BC metastisized to lymph nodes. He is almost done with carboplat. and Gemzar tX.
He’s struggled but he’s hanging in there. He is now in “clinical remission” I am so scared to believe it. I am happy for him but waiting for the other “shoe to drop off” all the time. I lost my 35 year old sis in law to cervical just last year so I guess you can say I am spooked anyway. This is Dad’s 3rd time with bladder cancer. He was diagnosed in 2004 and had bladder removed. He lives with a neobladder.Almost made it to his 2nd year cancer free when we found it had spread to just behind his naval and then found it had spread to his lymph nodes in 3 places. We know the stats and are hoping for the best. He has a great outlook but is also realistic. This is my first time posting and Im happy to have a place to vent. -
I was thinking about Kim today, and about those who prey upon desperation.
Parasites like this and scammers like this are only too happy to sell us fake cures and miracle beans. I find these two particularly loathsome.
In our quest for a cure, let’s not let our loved ones become victims as well.
“Standing on my Head”––my chemo journal
T3a Grade 4 N+M0
RC at USC/Norris June 23, 2006 by Dr. John Stein
Hello Kim,
I read your e-mail and I read the replies. It is hard to give advice without knowing a bit more about the bladder cancer. Indeed as Wendy said you could get a second opinion. I also think the reply of Zachary was valid. My husband had bladder cancer that had metastasized to the lymphnodes and lungs. There is an alternative treatment but without knowing more it is hard to say if it might be helpful. My husband tried it for a month, but the cancer had spread so we stopped the treatments. When the cancer is really aggressive there is sometimes not much what we can do. This is hard to understand and accept. If you like you can give me some more information and I may be able to give some advice or at least give some support.
Regards,
Renee
Hi Kim, has your husband had any chemotherapy or anything else. My father started with bladder cancer in april 06 and started receiving chemo and then they discovered he had it in his lungs too. The tumors were shirnking successfully and then they said we only had little time and they decided for a pelvic excenteration sadly they found it in his liver so they closed him up that was in october he passed on december.. So I would check for a second opinion to check latest treatments to make it less painful, I was just like you looking for a miracle remedy unfortunately there is none, I pray you do find one .. I didnt. Ask your doctors for avastin it is usually treated for colorectal cancer but it has showed that tumors with metastatic bladder cancer(in lungs) have showed improvement (MD ANDERSON HOUSTON). I pray for all of you,
Best Regards,
Gina
It’s an excruciating but true fact of life that sometimes we *are* at the end of the road. We’ll all be there in time, and, sadly, some of us exit before our time.
Sometimes there is no cure–surgical, herbal, crystal, or otherwise. And in our desperation for one, we can fall victim to those who would seduce us with vague promises, false hope, and “get well quick” schemes. I know we can get in the frame of mind where it seems logical, and “what can it hurt?”, and “western medicine is worthless–chinese medicine is ancient and wonderful.” Just for fun, I asked a health-food store clerk if she had anything that cured cancer. Absolutely she did–bottles and bottles of herbs and vitamins. She said this with a straight face. Cancer, she explained, was simply caused by toxins and a bad acid/alkali polarity balance that she could easily treat.
These are the people who prey on our desperation. I myself have had a double cappuccino every day since my surgery and so far I’m tumor-free. Please, though, do not rush to Starbucks.
I love my wife and family, and I’ll miss them very much if I’m taken sooner than I’d like, but I’ve made it very clear no “grape cures,” no laetrile, no sleeping under pyramids, no coffee enemas–no desperate measures.
I hope your husband makes a full recovery. But if not, I hope what time he has remaining is happy, pain-free, and surrounded by those who love him.
And as Wendy suggests, get a second and third opinion.
Zach
“Standing on my Head”––my chemo journal
T3a Grade 4 N+M0
RC at USC/Norris June 23, 2006 by Dr. John Stein
MY HUSBAND HAS BLADDER CANCER THAT HAS MOVED TO THE LUNGS AND LYMPH NODES,
I wonder, has your husband had any chemo or surgery till now? there are many drugs that work for advanced bladder cancer, both first line and second line treatments that can hopefully slow it down and/’or control symptoms.
Perhaps your husband would benefit from another opinion. There are options out there, the doctor should be offering suggestions.
All the best,
Wendy
Have a look at this product I take it 2 rime a day. By the way I have not had any tumers since 2 months after I started it. I also reccomend to see a herbalistic Docter asap. If nothing else you are trying something. Also Cancer centers of america has helped a friend of mine live longer than anyone said he would. With a diferant type of cancer. They use diet and conventional meds. Site for the teahttp://www.remedies.net Don Skypilot
Hanging in there!
Have moved this for you Kim so that it gets it’s own thread in the forum and, hopefully, some input from the fine folk here
best wishes
Tim
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