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Devastated…
Got my cystoscopy today. As I laid on the table top and looked inside my bladder I became numb…it looked bad…unlike in the past, having only one growth…there were MANY all over the bladder…I commented to my doctor that it was BAD and he immediately shut off the screen and said, let’s get back to surgery, remove them and go from there…I am so afraid! It looked horrible there were growths all over my bladder…
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15 Replies
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Gina,
I’m so very happy for you, now you can go and enjoy that beautiful family of yours.
Regards,
Anne
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Just hoping everything went well and you are recovering nicely..
George
Light a man a fire and he is warm for an evening.
Light a man ON fire and he’s warm forever.08/08/08…RC neo bladder
09/09/09…New Hip
=
New Man! [/size]
That is great news Gina! Now you get back to enjoying life ( in between treatment of course)!
Diane
Thanks to all…I am happy to say that the biopsy came back showing no cancer! While I was overcome with relief…I asked my doctor what it was that was seen in my cystoscopy…he then told me that the treatment really tore up my bladder…so why are we scheduling a maintenience round?!!!…Yuck! No not really…I will endure this round with much joy…hopefully!
Hi Gina,
How are you doing hope all is well..
Regards,
Anne
Well my surgery went pretty well…got sent home with a cathater…kinda disappointing…not sure why but hey…at least I am not in horrible pain like the last time!!! Now I wait to see what’s next…that’s the worst part of all! Glad this part is over… :) I am also ‘burping’ alot…is that unusual? (sorry to be so graphic)
AnneH…plz never put ‘your’ health on the back burner…if you get ill who will care for your hubby!!! Why not focus on BOTH!! ;) Hoping that your Cystoscopy on the 21st is squeaky clean!!! ;)
Keeping fingers crossed for you today, and lots of positive thoughts coming over !!
Diane
Good luck today sending hugs and prayers your way!
Regards,
Anne
Well my surgery is scheduled for this Friday! To say I feel nervous is putting it mildly…and a weak attempt at being positive…sigh…in any case, we will be able to take the ‘next step’ soon…that IS a good thing!
Will keep you in my thoughts and prayers for your surgery on Friday.
I go for my first cystoscope May 21 after my first round of BCG. I’m very nervous, but after my first instillation of BCG my husband came down with an undiagnosed neurophy that has kept him in and out of the hospital. We are wanting to get into Shands in Gainsville sometime soon. My focus has been on getting him well so I have put myself on the back burner. At times I’m really very angry for the first time in my life I wanted to focus on me getting well but God had other plans.
Hugs!
Anne
Thanks for all the encouraging words! Friday is surgery…they squeezed me in…if I’d said no, I would have had to wait until mid May! To say I am nervous would be a gross understatement!…ahh well, onto the next step quickly! Positive, healing thoughts to all…
We all feel for you! As someone said, it is one step/one day at a time. That is all any of us can do!
DX 5/6/2008 TAG3 papillary tumor .5 CM in size. 2 TURBS followed by 6 instillations of BCG weekly with a second round of 6 after a 6 week wait.
Gina
You picked the perfect word….. Devastated
That’s how we feel for you. And pretty PO’d too.
But we have to start somewhere, to get to the end of this.
Sounds like your Dr has a plan. And nothing beats a “man with a plan”
Just to let you know , my time on the TV set looked just like yours.
But I had a Dr with a plan
We are in this together.Thinking of you
George
Light a man a fire and he is warm for an evening.
Light a man ON fire and he’s warm forever.08/08/08…RC neo bladder
09/09/09…New Hip
=
New Man! [/size]
Gina… I am soooo sorry to hear this news. That must have been very shocking and frightening to see those growths on the screen. And, I know you don’t want to appear too scared in front of your family, but we understand completely the fear and anxiety that comes along with this disease.
Your doctor is right… you have to get those nasty little hitchhikers out of there and biopsied so you know exactly what you are dealing with. I’m sure waiting for that to happen will be almost unbearable, so it is a good thing you have your family to keep you busy much of the time.
You can always bring any bad scary thoughts here. Nothing is off limits and many of us have had those same kind of bad thoughts running around in our heads at different points along the way in our own bc experiences.
Please let us know as things develop, and come back here as many times as you need or want to post in the forum. Keeping you in my thoughts…
Best wishes… CatherineTURBT 1/21/10 at age 55
Dx: T2aN0M0 Primary Bladder Adenocarcinoma
Partial Cystectomy 2/25/10
Vanderbilt Medical Center
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