Home › Forums › All Categories › Non Invasive Bladder Cancer › cysto today
-
cysto today
Posted by Rockyiss on May 25, 2016 at 3:43 amI had my three month cysto today and all was clear ! YEA !!
My cysto in nov resulted in surgery and my cysto in feb I had to have surgery so getting the all clear this time was great !I can’t believe it has been ten years since my first surgery. It has been eleven years since I first had the bleeding when I peed but they made a mistake and thought it was a kidney stone.
I hope that this brings to people that are finding out they have bladder cancer for the first time, hope that life can go on. I have had several reccurs over the years but I get them taken care of and keep busy living . Rocky
Rockyiss replied 8 years, 5 months ago 9 Members · 9 Replies -
9 Replies
-
I was first diagnosed in 2006 with a ta grade 2 (there were several small tumors) I made the decision to then go to John Hopkins . The Dr. recommended a wait and watch. Over the years it came back several times, each time the Dr took it out, It always stayed low grade. In 2011 when it came back The Dr talk about me getting 8 mytomycin treatments . Long story short finaces didn’t allow that . He felt it would be ok to keep doing wait and watch.
Last Nov it came back and again had it taken out. In Feb had surgery again and had the mytomyncin put in . The path report for this one said it had not yet turned to cancer .
It has come back in different areas of my bladder but always ta even the grade dropped down from a 2 to a 1, I am not at the place where I would need to have a more aggressive surgery. If it started to get more aggressive then the treatment plan would change.
Thanks for all the good wishes guys !
-
Wonderful news! Glad it was good.
Anita
Forum Moderator
CaregiverHi Rocky! I’m so happy to hear that you got an all clear this time. Congrats!
Best wishes… CatherineTURBT 1/21/10 at age 55
Dx: T2aN0M0 Primary Bladder Adenocarcinoma
Partial Cystectomy 2/25/10
Vanderbilt Medical Center
Nashville, TNLIKE A ROCK!
Couldn’t resist a Bob Seger quote.
Light a man a fire and he is warm for an evening.
Light a man ON fire and he’s warm forever.08/08/08…RC neo bladder
09/09/09…New Hip
=
New Man! [/size]I am so pleased for you Rocky!! Great news that you kicked its a** this time!!
DianeI always look forward to good news! Congrats.
DX 5/6/2008 TAG3 papillary tumor .5 CM in size. 2 TURBS followed by 6 instillations of BCG weekly with a second round of 6 after a 6 week wait.Thanks for posting your good news Rocky.
It is encouraging to hear positive reports.
Keep up the good work.Best, Jack
6/2015 HG Papillary & CIS
3 Years and 30 BCG/BCG+Inf
Tis CIS comes back.
BC clear as of 5/17 !
RCC found in my one & only kidney 10/17
Begin Chemo; Cisplatin and Gemzar
8/18 begin Chemo# 3
Begin year 4 with cis
2/19 Chemo #4
9/19 NED again :)
1/2020 CIS is back
Tried Keytruda, stopped by side effects
Workin on a new plan for 2021HI Rocky,
So encouraged to hear the news!! Yeah! Can I ask you what type of bladder cancer you have? Also, why have you opted not to have a cystectomy?
Thanks.Rocky, keep that GOOD NEWS coming!!!
Sara Anne
Diagnosis 2-08 Small papillary TCC; CIS
BCG; BCG maintenance
Vice-President, American Bladder Cancer Society
Forum ModeratorSign In to reply.
All services of the American Bladder Cancer Society are free of charge to everyone.
Information on this site is not intended as medical advice but rather to help you formulate questions for your medical team. If you are having a true medical emergency, please seek immediate attention at a qualified care facility or from a medical professional.
ABLCS is a 501(c)(3) non-profit organization
© American Bladder Cancer Society, Inc.