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    Cysto today

    Posted by Nicke on January 16, 2014 at 4:02 pm

    Start of Discussion
    0 of 0 replies June 2018
    Now

    After two recurrences since my first TURB (TaG1-2) one year ago, I have benn doing Mitomycin for eight weeks. Cystoscopy today. First time without any tumors!

    My bladder looks like a battlefield. But it’s okay as long as the BC stays away!

    I will now continue with Mitomycin once a month as maintenance.

    Niklas

    12-12 Diagnosis
    13-1 Turb TAG1
    13-5 Turb Ta low grade, multiple
    13-10 Turb TaG2, multiple
    13-11 Mitomycin 8 weeks + 6 month
    15-01 Turb

    Flamenco. replied 10 years, 10 months ago 6 Members · 7 Replies
  • 7 Replies

  • flamenco

    Member
    January 21, 2014 at 8:25 am

    Great news Nicke! Glad the mitomycin seems to be doing the trick.I had treatment with it in 2006, and touch wood am still here to tell the tale.
    Diane

  • nicke

    Member
    January 21, 2014 at 8:13 am

    Thanks,
    Yes, I have got intravesical therapy with Mitomycin once a week for eight weeks. The procedure is the same as with BCG therapy. Hold it for two hours and then pee it out. I will continue with maintenance therapy once a month.

    Mitomycin is the first choice therapy for low and intermediate risk superficial bladder cancer in Sweden. I had a long discussion with my doctor about having Mitomycin or BCG therapy. Mitomycin was what he recommended.

    Niklas

    12-12 Diagnosis
    13-1 Turb TAG1
    13-5 Turb Ta low grade, multiple
    13-10 Turb TaG2, multiple
    13-11 Mitomycin 8 weeks + 6 month
    15-01 Turb

  • Knut

    Member
    January 21, 2014 at 5:50 am

    This was nice to hear, Nicke.

    You are lucky that they found it early and that they follow you up closely.

    Please let us know how things develops.

    All the best to you.

    Sincerly,
    Knut

    Diagnozed first time April 1th 2004.
    Muscle invasive, T3A.
    Radical Cystectomy June 29th 2004.
    Illeal conduit. Bag on my stommack.

  • rbmc

    Member
    January 20, 2014 at 9:45 pm

    Congrats for the tumor free scope. A ray of hope can sure change your attitude. You say Mitomycin is once a month. Infused directly into the bladder? You have to wait, and/or expel it? Is 8 weeks a normal plan?
    I did the BCG for 6 weeks. I don’t know yours, so just being nosey.

  • dougg

    Member
    January 18, 2014 at 2:29 pm

    Nicke,

    Congratulations on the all clear! Always wonderful to hear.

    Anita

    Anita
    Forum Moderator
    Caregiver

  • nicke

    Member
    January 16, 2014 at 4:35 pm

    Thank you Chatherine,
    In fact this is the first step in the right direction. I am still suffering from the treatment (the last one four weeks ago), but as long as the treatment is working I can stand it.

    Thank you for the hug. I have already got one today. On my way out from the hospital I did meet a female friend. She didn´t know about my cancer diagnosis, but we had a long talk about heath issues. And yes, she also gave me a hug. Both hugs felt great!

    Niklas

    12-12 Diagnosis
    13-1 Turb TAG1
    13-5 Turb Ta low grade, multiple
    13-10 Turb TaG2, multiple
    13-11 Mitomycin 8 weeks + 6 month
    15-01 Turb

  • catherineh

    Member
    January 16, 2014 at 4:08 pm

    Congrats and a {{{BIG HUG}}} to you! What a big relief that must be for you. That is wonderful news and wishing you many good reports ahead!

    Best wishes… Catherine

    TURBT 1/21/10 at age 55
    Dx: T2aN0M0 Primary Bladder Adenocarcinoma
    Partial Cystectomy 2/25/10
    Vanderbilt Medical Center
    Nashville, TN

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