• Posted by Rockyiss on August 8, 2009 at 2:22 am

    Hi Guys, Well my computer went down again and I just got it back. Hopefully for good.
    I had my cysto last week and got an all clear. I don,t have to go back to be checked for a year. My other uro wanted me to do the bcg stuff for several years but I went to John Hopkins and stayed there, and they have me doing a wait and watch. I was diagnosed I think 2 years ago ( I know I should remember this stuff) with ta grade two. I had five tumors taken out, a year later they took out a small neoplasm. since then I have been checked every six months. I know alot of people would probaly have a heart attack with not having the bcg but I really had a bad feeling about getting it. I was willing to do what I needed to do but then J.H. said they didn,t think I needed it. That was fine by me. They told me to come back sooner if I felt I needed to.
    Now if my husband gets an all clear in Oct (from the lymphoma) we will be on the same track. love to all from Rocky

    mmc replied 15 years, 6 months ago 8 Members · 8 Replies
  • 8 Replies
  • mmc's avatar

    mmc

    Member
    August 15, 2009 at 11:45 am

    Rocky,

    Great news! Hope it is the start of a trend!

    Mike


    Age 54
    10/31/06 dx CIS (TisG3) non-invasive (at 47)
    9/19/08 TURB/TUIP dx Invasive T2G3
    10/8/08 RC neobladder(at 49)
    2/15/13 T4G3N3M1 distant metastases(at 53)
    9/2013 finished chemo -cancer free again
    1/2014 ct scan results….distant mets
    2/2014 ct result…spread to liver, kidneys, and lymph system

    My opinions are my own and do not reflect the opinion of ABLCS or anyone else. I am not a doctor nor do I play one on TV.
  • michstate89's avatar

    michstate89

    Member
    August 15, 2009 at 2:16 am

    Always good to hear great news.

    Ross


    Ross M
    TaG1 March 06
    Recurrence Jan 07
    BCG Maintenance after 6 week treatment
  • joey's avatar

    joey

    Member
    August 12, 2009 at 11:02 pm

    Glad to hear your great news.

    Joey

  • flamenco's avatar

    flamenco

    Member
    August 10, 2009 at 8:09 am

    Great news Rocky !!
    I go for my next cysto next week, and if all clear I think I can join the six month club.
    Diane

  • Alan's avatar

    Alan

    Member
    August 10, 2009 at 1:10 am

    Rocky,

    I just had my 15 month cysto. Because the BCG was used on a 6 on, then 6 weeks off then 6 on, it as my 4th cysto. My URO believes in the 6/6 as opposed to maintenance of several 3’s. His rational is every time he pokes or does BCG there are risks. Based on just 1 small high grade tumor 15 months ago, and clean bladder plus cytology after BCG and the way I looked inside he suggested going to 6 months.

    So I am with you going to 6. Not sure I will ever OK a year. Too long and too easy for something to grow!

    Good the hear your good reports!


    DX 5/6/2008 TAG3 papillary tumor .5 CM in size. 2 TURBS followed by 6 instillations of BCG weekly with a second round of 6 after a 6 week wait.
  • rockyiss's avatar

    rockyiss

    Member
    August 9, 2009 at 2:09 am

    Hi Bill, with your t1 and the grade I can see why you had the bcg, I would have had it too. Hope your infection gets better soon. Rocky

  • doninrichmond's avatar

    doninrichmond

    Member
    August 8, 2009 at 2:31 pm

    :) Grrrrrreat News, PTL!

    ABout BCG! I just completed my 1st 6-BCG’s and now I have a “World-Class” Prostate Infection:angry: , probably from the BCG. In my 62-yrs, this is my 1st experience with a prostate infection and it is really painful.

    Will be on antibiotics for 28-days, rest 7-days and start BCG treatments again :S


    Bill Jr
    Tumor removed 5/4/09
    “T1 high-grade”
    Started “BCG” 5/21/09
    Have a 2-yr treatment schedule
  • nix's avatar

    nix

    Member
    August 8, 2009 at 3:02 am

    Great news and I will keep my fingers and toes crossed for your hubby

    Nix


    Nancy S
    Ta CIS
    dx Ta 11/06
    dx Ta CIS 10/07

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