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Confirmed bladder muscle invasive
:( Well my pathology reports came back. The kidneys are inconclusive. However, a small red spot was seen right at the start of the cysto.
They did ureter and kidney brushes and cytologies, but given the pathology report that I have WHO 3/3 high grade muscle invasive, the consensus is that any positives on the kidneys would definately be cross contamination.
Also had my appt at MD Anderson. Their view was that since upper tract is so rare all by itself, the fact that I had positive cytologies in both kidneys at the very same time as the first positive cytologies of the bladder is that the tests were bad.
Given that it is now muscle invasive, they are working to get me in right away to discuss the cystectomy. I think I’m still not completely ready to accept that the kidneys are clear and I think they ought to be able to get clean test once the bladder is out (and maybe during the cystectomy itself).
I guess I will have enough to deal with just with the cystectomy coming up, but still….
We were really surprised. It was only a small spot, but all five samples showed same result in the bladder.
Mike
Age 54
10/31/06 dx CIS (TisG3) non-invasive (at 47)
9/19/08 TURB/TUIP dx Invasive T2G3
10/8/08 RC neobladder(at 49)
2/15/13 T4G3N3M1 distant metastases(at 53)
9/2013 finished chemo -cancer free again
1/2014 ct scan results….distant mets
2/2014 ct result…spread to liver, kidneys, and lymph system
My opinions are my own and do not reflect the opinion of ABLCS or anyone else. I am not a doctor nor do I play one on TV.3 Replies-
Mike I’m so glad you went to MD Anderson and that they are going to get you in ASAP……They do so many RC’s and really have such top notch pathologists. I think they are probably right on the cross contamination. Continue with your positive journey and we’ll be right there with you.
Pat -
Thanks Leigh!
You’re input and that of others on this forum has been fantastic!!!!
Since I asked so many questions advance, and gotten so much great input, I don’t really have much to ask at this point.I’ll certainly be in touch on the forum as things progress.
Thanks again for your great contributions! You and others here have certainly made a difference in my life!
Mike
Age 54
10/31/06 dx CIS (TisG3) non-invasive (at 47)
9/19/08 TURB/TUIP dx Invasive T2G3
10/8/08 RC neobladder(at 49)
2/15/13 T4G3N3M1 distant metastases(at 53)
9/2013 finished chemo -cancer free again
1/2014 ct scan results….distant mets
2/2014 ct result…spread to liver, kidneys, and lymph system
My opinions are my own and do not reflect the opinion of ABLCS or anyone else. I am not a doctor nor do I play one on TV.
Dear Mike,
I am sorry that your news was not more positive….
You have shown amazing confidence and positivity during your journey so far. Keep up your active role you have shown and this will certainly ease the path on your next steps.
Fire away any questions you may have to the forum and I know answers and experiences will come your way.
Gr.Leigh
Leigh, 39
Dx July 2007
TURBT July 2007
RC/Neobladder ,Studer Pouch, September 2007
Erasmus Centrum Rotterdam
TNM Classification: pT4 N2 Mo
4 cycles aduvant chemo Gemzar & CisplatinumSign In to reply.
