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  • Newly Diagnosed, New To The Forum

    Clear after 6 BCG treatments and cystoscope…

    Posted by GeorgeWG on October 27, 2016 at 12:10 pm

    Start of Discussion
    0 of 0 replies June 2018
    Now

    Thanks everyone for answering questions, especially Sara Anne. I’ve had my 6 weeks of BCG, which wasn’t easy because I am still fully incontinent from prostate cancer (removal). I had to lie on the doctor’s table at his office for two hours each treatment. But I am done and had the cystoscope and I am clear, thankfully.

    I still cannot have the artificial sphincter put in because I will need cystoscopes in the future, and apparently they cannot be done with an artificial sphincter in place.

    Is there a standard period of time for follow-up cystoscopes? Every 3 months or 6 months? I just got the results last night (Doctor caled) but haven’t had my follow-up visit yet.

    Georgewg

    sara.anne replied 7 years, 10 months ago 2 Members · 1 Reply
  • 1 Reply

  • sara.anne

    Member
    October 27, 2016 at 4:23 pm

    Hi George, and glad that you DID the BCG and that it is OVER for now!

    To answer your question, the usual protocol is for cystoscopy every three months until 2 years clear have passed, then every six months until you are five years out, and then once a year “forever.” Believe it or not, many of us get slight anxiety attacks when we go to less frequent exams!

    Sara Anne

    Diagnosis 2-08 Small papillary TCC; CIS
    BCG; BCG maintenance
    Vice-President, American Bladder Cancer Society
    Forum Moderator

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