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  • CIS – need your opinions

    Posted by LoriK on June 29, 2010 at 10:26 pm

    Hello. Haven’t been here in awhile as I have been doing BCG and then the follow up TURBT on June 15 but I really need your help and thoughts. The doctors office called and said the biopsy showed 2 sites clear but one with CIS cells. The site of the CIS is at the top of my bladder which is a new site from the original tumor which was lower right side.

    What do you think I can expect when I see the dr. tomorrow? Because cancerous cells are present does that mean BCG did not work? My original dx. was 2/18/10 of T1, G3. You all recommended I see a doctor with experience in BC and RC which I did and I have been happy with him so far BUT, in his practice he removes bladders. I don’t want to be seen as another possible RC to him and not as a patient. What options have you heard of? Reading on line, I’ve found two main thoughts: as cancer has returned and CIS is high grade, a RC is recommended. The other option I’ve seen is that because the cells are in a new site and are CIS, a TURBT to remove them followed by more BCG.

    What do you think?????? PLEASE RESPOND QUICKLY -DR. TOMORROW.


    Age: 52
    DX on 2.18.10
    T1, G3
    rudyskier replied 14 years, 7 months ago 9 Members · 8 Replies
  • 8 Replies
  • rudyskier's avatar

    rudyskier

    Member
    July 2, 2010 at 9:00 pm

    I too must agree with the fellas before me. BCG did not work for me nor did any other treatments… the answer for me was to get rid of the cancer. While at first I admit I thought this was go to be a life changer for me… I am now 7 months out and life for me could not be better.

    So seek out the best of the best as far as doctors, advice, surgeons and facilities go and make the decision that is best for you.

    Good luck,

    Rudy

  • gkline's avatar

    gkline

    Member
    July 2, 2010 at 8:35 pm

    I must agree with Mike on this choice. If the cancer is “contained” in the bladder and BCG has not removed every last cell, Then “Out It Comes!” But I am not a specialist; only a patient.

    I don’t even play a doctor on stage.

    All kidding aside….. save your life. Follow agressive measures.

    George


    Light a man a fire and he is warm for an evening.
    Light a man ON fire and he’s warm forever.

    08/08/08…RC neo bladder
    09/09/09…New Hip
    =
    New Man! [/size]

  • mmc's avatar

    mmc

    Member
    July 2, 2010 at 10:15 am

    Be very careful about the “not the option you are looking for” path.

    The paper was meant for patients who are not candidates for surgery for whatever reason. Surgery is still the number one recommended treatment for a reason. It has the highest success rate over all other options.

    The alternatives are all suboptimal treatments.

    Keeping a cancerous bladder that fails BCG is choosing to keep cancer.

    The longer one ‘keeps’ it, the higher the chance that it will spread throughout the body.


    Age 54
    10/31/06 dx CIS (TisG3) non-invasive (at 47)
    9/19/08 TURB/TUIP dx Invasive T2G3
    10/8/08 RC neobladder(at 49)
    2/15/13 T4G3N3M1 distant metastases(at 53)
    9/2013 finished chemo -cancer free again
    1/2014 ct scan results….distant mets
    2/2014 ct result…spread to liver, kidneys, and lymph system

    My opinions are my own and do not reflect the opinion of ABLCS or anyone else. I am not a doctor nor do I play one on TV.
  • okie's avatar

    okie

    Member
    June 30, 2010 at 3:28 pm

    Lori, This came from Urotoday.com

    http://www.urotoday.com/images/british/bju1_2010_07.swf

    It discusses situations after BCG failures where RC is either not an option or maybe not the option you are looking for.

    I hope it is usefull,
    Jim


    TURB 10 March 2010 dx small papillary TCC, CIS non-invasive
    2nd TURB 7 April 2010
    1st 6 BCG treatments completed
    cysto 6 July 2010 – “No Recurrent Cancer”
    Start 2nd round of 6 BCG 23 July 10

    Jim

  • humpy's avatar

    humpy

    Member
    June 30, 2010 at 10:23 am

    CIS = Bladder be gone. That is the only way U of M Ann Arbor would guarantee life for me, and I am all for living.
    RC is not the end of life as you know it. It just gets put on hold a while. 15 months post op now, and life has returned to normal. Best of luck, Jim


    Age 54
    T1NOMX,Grade 3 Urothelial CIS (Carcinoma in Situ)
    Neobladder 5/19/2009
    Prostate Capsule Sparing
    U of M Hospital, Ann Arbor, Michigan
  • Alan's avatar

    Alan

    Member
    June 30, 2010 at 1:39 am

    Patricia wrote:

    Lori,
    Wow..opinions are divided on this but because you came back as high grade might indicate failure…here’s a good paper and cites a lot of top uro’s in it…..
    http://www.ncbi.nlm.nih.gov/pmc/articles/PMC2792453/
    Pat

    Geesh. My library of bookmarks must have 100 entries. Adding this one too.

    Alan


    DX 5/6/2008 TAG3 papillary tumor .5 CM in size. 2 TURBS followed by 6 instillations of BCG weekly with a second round of 6 after a 6 week wait.
  • sara.anne's avatar

    sara.anne

    Member
    June 30, 2010 at 1:18 am

    Pat, that is a VERY meaty paper. Lots to think about there!
    Thanks for posting the reference.

    Sara Anne


    Diagnosis 2-08 Small papillary TCC; CIS
    BCG; BCG maintenance
    Vice-President, American Bladder Cancer Society
    Forum Moderator
  • 's avatar

    Guest
    June 29, 2010 at 10:49 pm

    Lori,
    Wow..opinions are divided on this but because you came back as high grade might indicate failure…here’s a good paper and cites a lot of top uro’s in it…..
    http://www.ncbi.nlm.nih.gov/pmc/articles/PMC2792453/
    Pat

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