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blood and/or clots.
Posted by britt on April 15, 2009 at 8:00 pmI was wondering about the manifestation of these symptoms. They were thhe root cause of my cysto that identified the cancer.
What causes these to happen? Also since I was runnunig around with the cancer undiagnosed for a year whay did it only ha[[en twice? If it is caused by irritation of the bladder wall why wouldnt they occur more often?britt replied 15 years, 10 months ago 6 Members · 21 Replies -
21 Replies
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I had a huge scare this morning. I awoke and tried to clear my throat and then i couldnt get a breath! It was so bad I calld the squad. I really thought I was going to suffocate slowly to death! They gave me a breathing treatment and before we made the 15 min trip to ER labored breathing was restored. I have pulmanary edema due to low ef and and it causes a girldling effect around my diaphragm which restricts airflow in or out! I was held for observation and release. Mow Im home and resting but still struggling! A pozx on tobaco companies as well!
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Patricia, the urologist has never found any blood, microscopic or otherwise. My CIS was found because it kept appearing as recurrent UTI’s and my uro was smart enough to go look.
Sara Anne
Diagnosis 2-08 Small papillary TCC; CIS
BCG; BCG maintenance
Vice-President, American Bladder Cancer Society
Forum ModeratorYeah, my Doc seemed to be a bit low key about the exact date, but recommended
I do it within the next week. So since he was at the hosp. the following day, he’d fit me in…and he did! Wonder what else was going on that he didn’t see the urgency?Thinking back on that ultrasound, the tech looked at me…then brought the Radiologist in and he looked on the screen, saying “move it around to here, etc.” and it seemed like a long time they were looking. Then he left, apparently satisfied he had seen enough. So they called the Uro immediately and I went over to his office that same day. We didn’t waste any time on this…guess I’m glad I did. Gee, one knows nothing about these things the first time, so we rely on our docs to steer us down the right path. Apparently your Doc had other thoughts? What other information became available months later when the decision was made to remove it?
Bob
T1 G3
Age 66
DX April 2008
TURB April 2008
Last BCG (#15) April 2009So they knew there was a tumor! Well it was 8 months after the ultra sound until they did the turbo. If they said resection they planned on removing it. that bothers me I was allowed to run around so long with out treatment. What if had been a more virle cancer! I could have died!
Now Im angrier than I wasat that dr.Britt, all they did to me was an ultrasound and I can remember the tech saying to me “I’m sorry”. That was all I needed to know even if she couldn’t give me the diagnosis. :( I know it was a tumor and the Doc later confirmed it. I had the thing taken out the next day. Resection is, I understand, just a word for “slicing” both the blood mass and the tumor into pieces so they could be flushed out.
Bob
T1 G3
Age 66
DX April 2008
TURB April 2008
Last BCG (#15) April 2009GuestApril 18, 2009 at 2:14 amWell if the blood is microscopic how would you know? I certainly didn’t until my OB/Gyn found it and then it was pretty much poo poohed by my internist so i ignored it and that was 3 yrs before the Gross Hematura which ..yes…that i noticed.
So i’m wondering…….Another way that bladder cancer can be detected early is by looking at the cells that normally appear in your urine under a microscope. Cancer cells look different under a microscope than normal bladder cells. So is it just not cost effective to examine urine under a microscope….or have someone on staff qualified to know the difference between a normal bladder cell and a cancer cell?
PatI am one of those who NEVER had any blood. Even after diagnosis. There are so many variables, as Warren said.
Sara Anne
Diagnosis 2-08 Small papillary TCC; CIS
BCG; BCG maintenance
Vice-President, American Bladder Cancer Society
Forum ModeratorHey Warren,
Thanks for the insights. I now know a little more about our “subject”.
DX 5/6/2008 TAG3 papillary tumor .5 CM in size. 2 TURBS followed by 6 instillations of BCG weekly with a second round of 6 after a 6 week wait.The mystery of medicine for patients and doctors (I’m a pediatrician as well as a BLC survivior) is the myriad of ways a disease can present. No two patients have exactly the same symptoms. Yes bleeding occurs with bladder cancer, sometimes microscopic, and sometimes a clot which is what got the ball rolling on my further evaluation. But as I said, some of our fellow warriors had no bleeding at all. Nobody can tell you how much bleeding to expect because there is no rule, but once bleeding is deteected, it should trigger a diagnostic workup.
-Warren
TaG3 + CIS 12/2000. TURB + Mitomycin C (No BCG)
Urethral stricture, urethroplasty 10/2009
CIS 11/2010 treated with BCG. CIS 5/2012 treated with BCG/interferon
T1G3 1/2013. Radical Cystectomy 3/5/2013, No invasive cancer. CIS in right ureter.
Incontinent. AUS implant 2/2014. AUS explant 5/2014
PediatricianMy point is missed. Im happy that it wasnt a constant until the cancer was ddressed but wondering why it didnt happen more than 2X in the course of a year that I was “infected” with the cancer.
Cancers in the bladder and the intestines bleed. They are not normal tissue. They are growing rapidly and may have areas that outgrow their blood supply causing tissue breakdown. I don’t know that I can explain adequately why they bleed, but fortunately the finding of blood in the stool or urine is at least a sign to check for cancer. There are a few members here who never had blood in their urine.
All I can say is that due to chronic cystitis I had microscopic blood and intermittent urnary symptoms for 8 years before the cancer. If I hadn’t passed that clot, who knows how long my urologist would have waited to take another look inside – and that would no doubt have allowed it time to become invasive.
-Warren
TaG3 + CIS 12/2000. TURB + Mitomycin C (No BCG)
Urethral stricture, urethroplasty 10/2009
CIS 11/2010 treated with BCG. CIS 5/2012 treated with BCG/interferon
T1G3 1/2013. Radical Cystectomy 3/5/2013, No invasive cancer. CIS in right ureter.
Incontinent. AUS implant 2/2014. AUS explant 5/2014
PediatricianWhat exactly does resection mean. Before my TURB was done it was ordered as a cystoscopy done under general with a resction and biopsy. They had never been “in” to take a look at that time due to blockage in the prostate area. All that was done was ultrasound. DId that turn up a tumor and they didnt mention it? my care was so shoddy in this intsance that Im really getting in over my hed worrying about things I probably shouldnt obscess with
Pat,
You are an incredible source of info! Luv this site!
DX 5/6/2008 TAG3 papillary tumor .5 CM in size. 2 TURBS followed by 6 instillations of BCG weekly with a second round of 6 after a 6 week wait.GuestApril 16, 2009 at 7:04 pmThe little bugger/buggers need a blood supply to exist…ergo.
http://www.szote.u-szeged.hu/radio/interv/ainter5b.htm
PatMy URO said the tumor caused my clots and bleeding. While it wasn’t invasive its still scary because it means it was touching the blood supply. I understand that blood & clots are commonly caused by a tumor in this situation. Hope that’s the explanation you were wanting.
DX 5/6/2008 TAG3 papillary tumor .5 CM in size. 2 TURBS followed by 6 instillations of BCG weekly with a second round of 6 after a 6 week wait.Sign In to reply.
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