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Biopsy went fine
In recovery now. All went fine. They got a few samples from one lymph node. They don’t put you to sleep because I had to keep going in and out of the CT scanner.
Will let you all know when I get results. Pathology confirmed there was enough tissue for them to do their job.
Mike
Age 54
10/31/06 dx CIS (TisG3) non-invasive (at 47)
9/19/08 TURB/TUIP dx Invasive T2G3
10/8/08 RC neobladder(at 49)
2/15/13 T4G3N3M1 distant metastases(at 53)
9/2013 finished chemo -cancer free again
1/2014 ct scan results….distant mets
2/2014 ct result…spread to liver, kidneys, and lymph system
My opinions are my own and do not reflect the opinion of ABLCS or anyone else. I am not a doctor nor do I play one on TV.24 Replies-
Mike,
Thinking of you as you begin on the chemo.
Anita
Anita
Forum Moderator
Caregiver
Duke,
I am hearing that fairly consistently. After my two cups of coffee in the morning I usually only drink water all day. Sometimes tea drinks but mostly water. I hope I will be drinking enough. I wanted them to train my wife and me on accessing the port and get saline and heparin to keep at home so we could hang a bag overnight the night after chemo but they don’t want to do that yet. So I will just keep filling up my liter bottle with water and setting a schedule for how much I have to drink.
Thanks
Mike
Age 54
10/31/06 dx CIS (TisG3) non-invasive (at 47)
9/19/08 TURB/TUIP dx Invasive T2G3
10/8/08 RC neobladder(at 49)
2/15/13 T4G3N3M1 distant metastases(at 53)
9/2013 finished chemo -cancer free again
1/2014 ct scan results….distant mets
2/2014 ct result…spread to liver, kidneys, and lymph system
My opinions are my own and do not reflect the opinion of ABLCS or anyone else. I am not a doctor nor do I play one on TV.
Mike,
Just want you to know I’m pulling for you. One thing I would do different with the chemo if I had it to do over again, is force myself to drink a lot more water to keep those kidneys cleaned out.
Hope all goes well for you!
Duke
Thanks Jean. I have an iPad and my laptop. They are going to be regular items in my “chemo bag” along with my anti nausea meds and the package inserts, my cancer binder that UCH gave me. Also, since I fly a lot I have those Bose noise canceling headsets. Tons of songs synced between my phone, iPad, and laptop. UCH also has free wifi. I also have nook, kindle, and iBook software on the iPad for reading books and magazines. I would go nuts sitting that long without doing something!
Going to be putting snacks in there too and hoping I will still want them. :)
Mike
Age 54
10/31/06 dx CIS (TisG3) non-invasive (at 47)
9/19/08 TURB/TUIP dx Invasive T2G3
10/8/08 RC neobladder(at 49)
2/15/13 T4G3N3M1 distant metastases(at 53)
9/2013 finished chemo -cancer free again
1/2014 ct scan results….distant mets
2/2014 ct result…spread to liver, kidneys, and lymph system
My opinions are my own and do not reflect the opinion of ABLCS or anyone else. I am not a doctor nor do I play one on TV.
Mike….I forgot to tell you. I have a small laptop that I Used to bring to chemo when it was 5 hours and I also have an Ipod with lots of music (I love music) My computer is an Acer w/ 6 hr. battery life. Great little computer. It really helps you pass the time. It’s gets pretty long sitting there for hours and hours. My cancer center has internet access. My chemo is only about 2 hrs.now because I do not have to have the cisplatin this time, only Gemzar. Hope your port heals up quickly. Enjoy your weekend.
Blessings…Jean
Thank YOU Carla! …and everybody! We are all about support, sharing information, educating, and caring around here!
Mike
Age 54
10/31/06 dx CIS (TisG3) non-invasive (at 47)
9/19/08 TURB/TUIP dx Invasive T2G3
10/8/08 RC neobladder(at 49)
2/15/13 T4G3N3M1 distant metastases(at 53)
9/2013 finished chemo -cancer free again
1/2014 ct scan results….distant mets
2/2014 ct result…spread to liver, kidneys, and lymph system
My opinions are my own and do not reflect the opinion of ABLCS or anyone else. I am not a doctor nor do I play one on TV.
Mike, you are off and running now! You can do this and I am going with the added chemo will truly kick this b**tard cancer BCs butt big time. We are all here for you as you already know. You have always been there for me that’s for sure and I have thanked you privately and will now say a HUGE thank you for all your support when I cam limping into this forum terrified and you took me under your wing. Thank you, Mike for all you have done for me and so many others!
Mike, I am glad the wait is over and now you can start to put the plan into action!
Wishing you a heartfelt “go get this cancer”[size=3]You have a big cheering section!
Hugs to you and your family,
Nancy[/size]
Nancy S
Ta CIS
dx Ta 11/06
dx Ta CIS 10/07
Mike
It looks as though “The Force” (Luck) Is with you. I am certainly hoping that this “Good fortune” stays with you all the way through to a cure.
I just want you to know I must have a “sympathy” sickness to “feel your pain” I just got back from finding out I have a case of the shingles. So, this is the plan…… Let’s get over this and then we’ll have a big ole’ cheering party.
I am waiting for every update, Mike. We are all crossing our fingers, toes, eyes and anything else for you.
Thanks for taking the time to send updates, even during these stressful visits. We are with you every minuteGeorge
Light a man a fire and he is warm for an evening.
Light a man ON fire and he’s warm forever.08/08/08…RC neo bladder
09/09/09…New Hip
=
New Man! [/size]
Thanks everyone! We were there a few hours and it takes an hour and 20 minutes to get home.
The kidney we already knew was a problem. That kidney confirmation came out of the review board.
Going to bed now. Long drive again tomorrow.
Mike
Age 54
10/31/06 dx CIS (TisG3) non-invasive (at 47)
9/19/08 TURB/TUIP dx Invasive T2G3
10/8/08 RC neobladder(at 49)
2/15/13 T4G3N3M1 distant metastases(at 53)
9/2013 finished chemo -cancer free again
1/2014 ct scan results….distant mets
2/2014 ct result…spread to liver, kidneys, and lymph system
My opinions are my own and do not reflect the opinion of ABLCS or anyone else. I am not a doctor nor do I play one on TV.
Mike…I had my port put in on a Friday and had my first chemo on a Monday.It is an amazing thing. No sticking your veins with needles. The nurse sprays some stuff that smells like freezone which numbs the area and pops this little needle in that you hardly feel and you are good to go.
Just take it one day at a time. Do what they tell you to do. Rest when you need to. Eat well. stay well hydrated and get plenty of rest.
I am sending you my prayers.
Blessings….Jean
I suspect that Catherine’s finger nails are as bitten down as mine are, waiting to hear from you.
You are fortunate to have been able to cut time off the biopsy and treatments. I know that your luck will hold up going forward!!
Sara Anne
Diagnosis 2-08 Small papillary TCC; CIS
BCG; BCG maintenance
Vice-President, American Bladder Cancer Society
Forum Moderator
I’ve been on pins and needles all day waiting for your report, as I’m sure others have as well. Now that diagnosis is confirmed, time to get after it and I know you are.
What did they say about the kidney? And, I have heard of having a port put in, but never a “power” port. Leave it to you to amp things up to the max!
Thanks for letting us know. No doubt this has been a long day for you and Liz.
Best wishes… CatherineTURBT 1/21/10 at age 55
Dx: T2aN0M0 Primary Bladder Adenocarcinoma
Partial Cystectomy 2/25/10
Vanderbilt Medical Center
Nashville, TN
Today was my “big day” at the oncologist. The lymph node biopsy results came back positive for bladder cancer.
I will be starting chemo next week (Friday).
Tomorrow, I go back to the hospital to get a power port put into my chest. This allows them to access it for blood tests, putting chemo in, CT contrast, etc. I got lucky and someone cancelled so I got the spot tomorrow. I had also gotten lucky to have a cancellation to be able to get my biopsy done this past Monday instead of having to wait until the 13th.
I signed up for a clinical trial which is basically to add one more cancer drug to my chemo mix. It will either be the additional drug or a placebo. The drug has increased survival in lung, breast, and other cancers and it is expected to do so for bladder cancer but it is not yet proven.
It also means that I will be starting chemo next week (Friday).
Tomorrow, I go to the hospital to get a port put into my chest. This allows them to access it for blood tests, putting chemo in, etc. I got lucky and someone cancelled so I got the spot tomorrow. I had also gotten lucky to have a cancellation to be able to get my biopsy done this past Monday instead of having to wait until the 13th.
I need to go in for bone scans, another CT scan, and blood draws on Monday and then I start chemo
The good news is that we are FINALLY moving into the treatment phase and everything that I have been saying is now confirmed.
Mike
Age 54
10/31/06 dx CIS (TisG3) non-invasive (at 47)
9/19/08 TURB/TUIP dx Invasive T2G3
10/8/08 RC neobladder(at 49)
2/15/13 T4G3N3M1 distant metastases(at 53)
9/2013 finished chemo -cancer free again
1/2014 ct scan results….distant mets
2/2014 ct result…spread to liver, kidneys, and lymph system
My opinions are my own and do not reflect the opinion of ABLCS or anyone else. I am not a doctor nor do I play one on TV.
Glad that things went well, and waiting with you for the results.
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