Home Forums All Categories Non Invasive Bladder Cancer BCG with multiple tumors vs single

  • BCG with multiple tumors vs single

    Posted by razorback on June 12, 2012 at 10:27 pm

    Hi Folks,

    In my research of T1 high grade non-invasive, I have seen reports of BCG treatment success being generally lower with multiple tumors vs single, I had 7 tumors. Does anyone have any experience or know of others with multiples that can can point me towards more information that I can research regarding this. I wish I was more astute on reading and fully understanding medical articles, I often think I am not smart enough to have this disease. On average, how long do people wait after their Repeat Resection before starting BCG? Lastly, I have read in the past of shortages across the country of BCG, is there a continued problem on availability? Thanks in advance for anyone’s inputs. Steve

    mmc replied 12 years, 8 months ago 4 Members · 3 Replies
  • 3 Replies
  • mmc's avatar

    mmc

    Member
    June 21, 2012 at 4:46 am

    Steve,

    How many we’re T1?

    Pleeeeeease get that second opinion at a top bladder cancer center.

    Mike


    Age 54
    10/31/06 dx CIS (TisG3) non-invasive (at 47)
    9/19/08 TURB/TUIP dx Invasive T2G3
    10/8/08 RC neobladder(at 49)
    2/15/13 T4G3N3M1 distant metastases(at 53)
    9/2013 finished chemo -cancer free again
    1/2014 ct scan results….distant mets
    2/2014 ct result…spread to liver, kidneys, and lymph system

    My opinions are my own and do not reflect the opinion of ABLCS or anyone else. I am not a doctor nor do I play one on TV.
  • joey's avatar

    joey

    Member
    June 13, 2012 at 3:56 pm

    Steve, I have read about the BCG shortages as well as the flyer on this website, however I will start BCG #27 on Tuesday at Hopkins.

    Joe

  • catherineh's avatar

    catherineh

    Member
    June 13, 2012 at 1:51 am

    Hello Steve… You are arming yourself with a very effective weapon–information. I laughed when I read your thought about not being smart enough to have this disease. That goes for me too. It takes so many different twists and turns that it’s nearly impossible for us laypeople to comprehend much of what’s out there.

    I can’t address any of your questions about BCG because I’ve never had it or read up on it. A positive outcome of all your reading and research is that you will be better prepared to meet with your doctor and discuss your particular situation.

    Just wanted to reiterate that I’m sending best wishes to you and your wife.

    Catherine


    Best wishes… Catherine

    TURBT 1/21/10 at age 55
    Dx: T2aN0M0 Primary Bladder Adenocarcinoma
    Partial Cystectomy 2/25/10
    Vanderbilt Medical Center
    Nashville, TN

Sign In to reply.