-
BCG Experience please
Understand concept etc of BCG but most sites state it is effective for non-invasive types of tumors. My specific situation is this, Tumor is Pathological, T1 that invaded the lamina propria. Last biopsy shows they got all that was there…that they could see… and now offer me the chance to use BCG instead of radical surgery… Just can’t find any case history on BCG results in this situation. At this point my survival rate is pretty good… if the BCG doesn’t work and I find out in 10 weeks or so that the tumors have gone to the next stage my survival rate drops almost 20%. also can’t seem to get a straight answer on the odds of it regrowing at a rate that would take it past the LP layer and into the muscular layer…. any hints… comments… etc would be most welcomed… don’t have a lot of time to decide. Thanks,
rick
Rick10 Replies-
Hox,
You have already had a lot of good help from good people. I still like to link with a great piece on BCG. Everyone is different and react different but a good start:http://www.urotoday.com/prod/pdf/eau/05_TaT1_Bladder_Cancer.pdf
DX 5/6/2008 TAG3 papillary tumor .5 CM in size. 2 TURBS followed by 6 instillations of BCG weekly with a second round of 6 after a 6 week wait.
You are welcome.
I was having problems pasting links into that little link module (when you click the little globe with the chain link in the upper right corner of area with formatting symbols when you post. It only keeps 100 characters and some of these links are really long so it was truncating.
Derek told me about a site http://tinyurl.com. If you go there and paste your link, it gives you a small link that you can use anywhere. Don’t turn on the “link preview” feature however. If you do it takes people to the tiny url web site and shows them what the link is and then they have to click to proceed to actual site. With ‘preview’ off, it just takes you right to the page you want.
Mike
Age 54
10/31/06 dx CIS (TisG3) non-invasive (at 47)
9/19/08 TURB/TUIP dx Invasive T2G3
10/8/08 RC neobladder(at 49)
2/15/13 T4G3N3M1 distant metastases(at 53)
9/2013 finished chemo -cancer free again
1/2014 ct scan results….distant mets
2/2014 ct result…spread to liver, kidneys, and lymph system
My opinions are my own and do not reflect the opinion of ABLCS or anyone else. I am not a doctor nor do I play one on TV.i hate when that happens!!!!!!!! :P :S
thanks mike
pat
Rick,
Pat’s link got split. You can tell because part of it is highlighted and part is not.
I created a tinyurl link to go to that page that Pat posted.
Try this.
Hope this helps!
Mike
Age 54
10/31/06 dx CIS (TisG3) non-invasive (at 47)
9/19/08 TURB/TUIP dx Invasive T2G3
10/8/08 RC neobladder(at 49)
2/15/13 T4G3N3M1 distant metastases(at 53)
9/2013 finished chemo -cancer free again
1/2014 ct scan results….distant mets
2/2014 ct result…spread to liver, kidneys, and lymph system
My opinions are my own and do not reflect the opinion of ABLCS or anyone else. I am not a doctor nor do I play one on TV.
Pat Thanks for the info. The Web Cafe link works but the other one you sent doesn’t…. any hints… rick
Rick
HOX, you have gone and done it now!
The best minds in the cyber support network are on your side. Once Pat weighs in, you are in seriously good hands. You will do well to listen to her. She knows her stuff. Because of her you will probably be around for a few more decades, making life interesting for all of your family members.
George
resident comic relief
Light a man a fire and he is warm for an evening.
Light a man ON fire and he’s warm forever.08/08/08…RC neo bladder
09/09/09…New Hip
=
New Man! [/size]HI Hox…glad to see you over here!
take a look at these papershttp://www.sciencedirect.com/science?_ob=ArticleURL&_udi=B7XMT-4HMCV62-11&_user=10&_coverDate=01%2F31%2F1998&_rdoc=1&_fmt=high&_orig=search&_sort=d&_docanchor=&view=c&_
acct=C000050221&_version=1&_urlVersion=0&_userid=10&md5=d5a7c9ccbb8ad7a7f096566ef44086b4
and
http://blcwebcafe.org/superficialblca.aspP53 expression seems to be a good prognosticator of progression.
Pat
Thanks for the info. Am off to see my GP today and we have a fabulous cancer center here and in Vancouver so should get top notch care… at least the best you can get for Canadian currency:)
Rick
Rick,
This was just recently discussed and there is a lot of good information and a study on this very question.
Go to this link for the Forum discussion and read it all the way through (including following the link to the study that KC put in one of his responses).
Also, as Sarah Anne said, you want to get to a major bladder cancer center for this ASAP.
Once you go through that information, come back and post any and all questions you may have. I think you will find a lot of great information there to get you started though.
Mike
Age 54
10/31/06 dx CIS (TisG3) non-invasive (at 47)
9/19/08 TURB/TUIP dx Invasive T2G3
10/8/08 RC neobladder(at 49)
2/15/13 T4G3N3M1 distant metastases(at 53)
9/2013 finished chemo -cancer free again
1/2014 ct scan results….distant mets
2/2014 ct result…spread to liver, kidneys, and lymph system
My opinions are my own and do not reflect the opinion of ABLCS or anyone else. I am not a doctor nor do I play one on TV.
This sounds to me like a prime case where you need to go to a MAJOR bladder cancer center for a second opinion, PRONTO. If you could tell us where you live and where you have been treated, there are several “experts” on this Forum who could make suggestions as to where you might go.
This is not a situation where guess work is in order! And if you have read the background material provided on this web site, you will have noted that our motto is “Get a Second Opinion!”
Good luck to you
Sara Anne
Diagnosis 2-08 Small papillary TCC; CIS
BCG; BCG maintenance
Vice-President, American Bladder Cancer Society
Forum ModeratorSign In to reply.
