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    anyone with adenocarcinoma having partial cystectomy?

    Posted by gjforema on November 21, 2007 at 11:11 pm

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    0 of 0 replies June 2018
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    Just wondering if any members have had any history of adenocarcinoma or partial cystectomy.
    Here is my story>>>
    I’m 34 years old now. I began having symptoms at age 25 (mucus,mucus with blood rarely).At 26 they discoverd a 1-2cm tumor at the dome of bladder. Had TUR by local urologist, but returned 1 year later and had TUR again. Pathology of both read cystitis glandularis with metaplasia and severe dyplasia – unable to rule invasion on second TUR. My urologist ordered BCG x6wks even though no TCC involved. Week of 31st b-day tumor returned. I then went to MD Anderson and saw Dr. Kamat who performed a 3rd TUR. This time pathology read same but stated adenocarcinoma arising in the back ground with mucularis propria present. CT(-),x-ray(-), Dr. Kamat suggested partial cystectomy because it was a solitary tumor in the dome. He was able to remove tumor with 2cm margins and removed urachal tract and umbilicus. Nodes(-)& margin(-). 2years so far so good. next cysto in 3 weeks, still get nervous.

    jimri replied 15 years, 7 months ago 4 Members · 4 Replies
  • 4 Replies

  • jimri

    Member
    June 17, 2009 at 9:39 pm

    Hi,
    I introduce myself briefly. I am 35 years old and live in Germany. Last year in May I was also a Urachuskarzinom noted. I got in July, a partial cystectomies. My finding was IIIa after Sheldon. I got no BCG or other .. How does it because the patient had Urachuskarzinom?

    Michaela

  • Gjforema

    Member
    November 23, 2007 at 10:13 pm

    Thanks for the encouraging words. It helps reduce the anxiety I experience near cysto/CT checkups. I’ll post results of next cysto in 2 weeks.

    Glyn :)

  • Dmartin12358

    Member
    November 22, 2007 at 3:16 pm

    [quote author=gjforema link=topic=1457.msg10769#msg10769 date=1195690310]
    Dr. Kamat suggested partial cystectomy because it was a solitary tumor in the dome. He was able to remove tumor with 2cm margins and removed urachal tract and umbilicus.
    [/quote]

    Just want to second Wendy’s opinion on Dr. Kamat. I consulted with him several times, I think he’s an excellent urologist.

    Dx 7/04, CIS + T1G3, Age 50
    2 TURBTs
    12 BCGs
    Cystectomy 8/05 USC/Norris
    So far, so good (kow)

  • wendy

    Member
    November 22, 2007 at 10:19 am

    Hi,

    There are not any others on the board at this time with adenocarcinoma or who’ve had partial cystectomy, I’m pretty sure.

    I was glad to read that you are seeing Kamat, as he specializes in rare tumors. You couldn’t be in better hands (and please give him my regards, he is an adviser for this website).

    I have known people with adenocarcinoma of the bladder, treated with BCG and clean 10 yrs later! And although partial cystectomies aren’t all that popular (usually), the location of your tumor was the perfect place for such an operation (bladder dome, singular tumor), so I would be confident that with close follow up and Kamat on your side that you can get old and die in your sleep.

    Happy Thanksgiving,
    Wendy

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