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Anyone hear from Intransition?
Anyone hear anything on Intransition…she was suppose to go in for RC on the 12th…been praying that all is well with her.
Melodie, Indy Pouch, U.W.Medical Center, Seattle, Dr. Paul H. Lange & Jonathan L. Wright16 Replies-
Great news! A little better everyday as you recover but it sure is good to know that lymph nodes are clear!
Mike
Age 54
10/31/06 dx CIS (TisG3) non-invasive (at 47)
9/19/08 TURB/TUIP dx Invasive T2G3
10/8/08 RC neobladder(at 49)
2/15/13 T4G3N3M1 distant metastases(at 53)
9/2013 finished chemo -cancer free again
1/2014 ct scan results….distant mets
2/2014 ct result…spread to liver, kidneys, and lymph system
My opinions are my own and do not reflect the opinion of ABLCS or anyone else. I am not a doctor nor do I play one on TV.
Great news Intransition. Love that you have gotten back to getting out and about.
Webs
Hi everyone.
Wanted to share my good news.
I am 7 weeks post surgery and have been home 5 weeks. I just had my postsurgical follow up appointment and found out the pathology results: no cancer detected in any organ or the 47 lymph nodes they removed during surgery. This is especially good news as early CT scans noted abnormal-looking lymph nodes near my bladder (noting that it needed to be confirmed by pathology, of course).
My recovery was initially pretty slow as it took me a while to get back to eating a variety of foods, but I have been doing very well the last 2 or 3 weeks. Have gone out to a restaurant, to the movies, back to church, etc. I am on my way!
Thanks for your support!
Diagnosed Stage 3 March 09.
RC August 09 at MD Anderson, TX
Ileal Conduit (Bag Lady)
Age 52
I remember being home and not feeling like eating a thing. I started out on orange juice and soup broth. I think I was eating tiny meals about 10 times a day. I still remember my first solid meal… a tuna sandwich! it seemed like heaven at the time.
I also remember the first rejected meal…. a perfect filet, medium, cooked to perfection…….REEEEEJECTED!
So, for about a month we RCers found out about what works and what doesn’t. It surely is a matter of finding what works for you. Good luck, and find the new style of comfort food.
George
Light a man a fire and he is warm for an evening.
Light a man ON fire and he’s warm forever.08/08/08…RC neo bladder
09/09/09…New Hip
=
New Man! [/size]
I had nasty ileus so that was my issue and I wound up in the hospital for 12 days. When I could eat, I ate small but didn’t really have a problem with anything I did eat.
Don’t remember what I had but I don’t recall not being able to have anything in particular or anything in particular causing a problem (until 4 months later when I ate two big navel oranges and wound up with a blockage the intestinal resection site).
I remember my first thing to eat (not counting two days of jello) was mac and cheese in the hospital and then some salad. Then I had an omelette for breakfast and they let me go home.
Mike
Age 54
10/31/06 dx CIS (TisG3) non-invasive (at 47)
9/19/08 TURB/TUIP dx Invasive T2G3
10/8/08 RC neobladder(at 49)
2/15/13 T4G3N3M1 distant metastases(at 53)
9/2013 finished chemo -cancer free again
1/2014 ct scan results….distant mets
2/2014 ct result…spread to liver, kidneys, and lymph system
My opinions are my own and do not reflect the opinion of ABLCS or anyone else. I am not a doctor nor do I play one on TV.Did anyone NOT have a problem with eating? The first time they pulled my tubes after my gut got going I threw up some medication and water. Tubes went back in for a couple of days until the gut was really going good. From that point, I was on a full diet 24 hours after pulled my tubes the second time and started on a liquid diet. By the following night I was having the broiled salmon. Yes, the taste was a little off, but it sure was good. I ended up being in 3 extra days because of that.
I will say I did stay away from the BBQ ribs and pizza for a couple of weeks when I go home.
I am wondering what percentage of folks had some initial issues and what percentage didn’t.
LeeH
Love Jamba Juice to. What are your two little birds studying in college? I would not have made it through those first weeks without my husband. Glad yours is being amazing also.
Here if you need me.
Webs
I appreciate all the suggestions. May have to keep mashed potatoes in mind!
I, too, left the hospital without having eaten solid foods (well, threw up anything I tried, including applesause!) I had IV nutritional support in the hospital for a while.
My youngest left today for the airport to start her second year at college. Gosh I am going to miss her. She really stepped up this summer and was a great source of comfort and strength. My other child is also at college, but is local, so his leaving wasn’t so bittersweet. Now it is just my huisband and I to soldier on through the next couple of weeks. He has been marvelous as well. All in all, I have been very lucky!
So glad to hear you are feeling better!:) Step by Step, inch by inch…
Teeny, tiny meals for a while. If there is a Smoothie King in your area, check them out. Some coworkers introduced me to them last week and they have lots of great stuff. Their motto “Chewing is overrated!”
Best wishes for a continued path to recovery.
Mike
Age 54
10/31/06 dx CIS (TisG3) non-invasive (at 47)
9/19/08 TURB/TUIP dx Invasive T2G3
10/8/08 RC neobladder(at 49)
2/15/13 T4G3N3M1 distant metastases(at 53)
9/2013 finished chemo -cancer free again
1/2014 ct scan results….distant mets
2/2014 ct result…spread to liver, kidneys, and lymph system
My opinions are my own and do not reflect the opinion of ABLCS or anyone else. I am not a doctor nor do I play one on TV.
You are all so kind!
I have been home 3 1/2 days and am doing better. My food intake is still pathetic, but I can keep all fluids down, including smoothies. Yay for Jamba Juice and their shots of protein :) Amazing how “off” everything tastes.
Pat: I do have Zofran to help with nausea which has been very effective in the past for me.
Dear Intransition… You poor dear…14 days is such a long time…I was there for 10…same reason, couldn’t keep anything down.
You might try some peanut butter on a spoon…that is what I did for the first few days…it was about all I could manage…gradually I moved on to small amounts of yogurt, mashed potatoes and finally eggs.
Thanks so much for the update…keeping you in my prayers…let us know how we can help you…recovery is tough although with the illeal it should be quicker than the other two. Take care, Hugs,
Melodie, Indy Pouch, U.W.Medical Center, Seattle, Dr. Paul H. Lange & Jonathan L. Wright
So glad to hear from you. I feel your pain. 14 days in hospital is a long time. I was released before I had a solid meal. Never ate a thing in the hospital. Just drank ginger ale.
Well, you are now on your way. Things will start perking along slowly and sooner than you think, yo will be looking at your new life as normal. There will be bumps in the road, but you will get through them all.
We are glad to have you back!
George
Light a man a fire and he is warm for an evening.
Light a man ON fire and he’s warm forever.08/08/08…RC neo bladder
09/09/09…New Hip
=
New Man! [/size]
Sending you good thoughts. Food takes a while to taste good. I agree with all of Pat’s suggestions. I also enjoyed mashed potatoes made with cream cheese for added protein.
Webs
Yikes! 14 days is a looooong time. I was in for 12 but it was due yo ileus.
Glad you are out now and I wish you a speedy recovery now that you are home!Mike
Age 54
10/31/06 dx CIS (TisG3) non-invasive (at 47)
9/19/08 TURB/TUIP dx Invasive T2G3
10/8/08 RC neobladder(at 49)
2/15/13 T4G3N3M1 distant metastases(at 53)
9/2013 finished chemo -cancer free again
1/2014 ct scan results….distant mets
2/2014 ct result…spread to liver, kidneys, and lymph system
My opinions are my own and do not reflect the opinion of ABLCS or anyone else. I am not a doctor nor do I play one on TV.InT…i hope they gave you something for the nausea? I took Phenergan as nausea seemed to come and go a lot the first 6 weeks after surgery. Ginger is a natural remedy so if you have any Ginger tea try that…or even Ginger Ale which has real ginger in it. Anyway you’re not alone in making the adjustment to food. Everything tastes kind of funky at first and small meals are the order of the day……I always made sure i got some protein in the form of eggs, fried or hard boiled everyday or peanut butter crackers…simple stuff (nurses told me to eat a banana a day..i tried)…sometimes just a baked potato for dinner……eat what tastes good and don’t worry about it. Your appetite will come back. Oh and i craved Venti Mochas which helped add calories….come to think of it i did pretty well with hot fudge sundaes also!!
Glad you’re home.
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