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  • Anxiety-Cystoscopy this week

    Posted by Rusty on September 3, 2018 at 7:38 pm

    17 days ago I had these symptoms(burning, urgency, then three times blood and a sharp pain at the end of urination. I then drank tons of water and juice. the next day the symptoms went away, but I went to urgent care. They found no infection but gave antibiotics just in case. I have had no symptoms since that 1 time 17 days ago. I had a full blood and urinalysis( showed no cancer cells in urine. I then had the CT scan with contrast. The scan came back completely normal, but no sign of stones either. Now my doctor wants me to get the Cystoscopy since I have no signs of stones or infection. I keep getting crazy thoughts that I have cancer and maybe an advanced one. Am I just having anxiety? How much should I be concerned?

    thanks so much ,

    Rusty

    Rusty replied 5 years, 10 months ago 3 Members · 6 Replies
  • 6 Replies
  • Rusty

    Member
    September 6, 2018 at 3:39 pm

    I had my Cystoscopy. The doctor said that he saw no tumors, just some red spots. He wasn’t alarmed by the red spots and said many doctors would not even biopsy them, but he biopsies everything. He said the chances of them being cancer is 99% not cancer. Does this sound familiar to anyone? He also said that the reason for the 1 day of blood and pain 3 weeks ago could have been anything and 33% of the time we never know the answer.

    Thanks,

    Rusty

    The blood test showed no cancer cells and the CT showed no tumors anywhere. Can I relax!!??

  • Rusty

    Member
    September 4, 2018 at 11:25 am

    I found the following to be a little reassuring—Most patients with CIS have coexisting papillary cancer. In general, the papillary tumor is diagnosed first, and CIS is discovered during the evaluation and treatment of the papillary tumor. Only 10% of patients with bladder cancer have a pure CIS. The combination of CIS and papillary transitional cell carcinoma (TCC) is associated with a higher risk of recurrence and progression.—-Also, Urinary cytology is most helpful in diagnosing high-grade tumors and carcinoma in situ (CIS). Low-grade, noninvasive tumors may be missed by routine cytologic analysis.

    I have no papillary tumors and urinary cytology was negative.

  • Richard_lv

    Member
    September 4, 2018 at 12:45 am

    Rusty, sounds like everything will be ok. My dad had multiple 3cm and 2cm tumors that were very visible in CT and after two surgeries he is cancer free. I wouldn’t worry at all in your case.

  • Alan

    Member
    September 3, 2018 at 10:54 pm

    Rusty,

    I have simply learned to wait on any and all tests before speculating on medical issues. Too many times it is wasted worry and effort. At the risk of not following my first sentence there are two primary garden types of tumors in bladder cancer and all 3 tests are needed to diagnose the symptoms. One is a flat or CIS (easiest seen in a scope) and the other papillary (often seen in the CT scan). There are a few other unusual types also thus the 3 tests taken in conjunction. Get that scope scheduled and come back and tell us it is nothing!


    DX 5/6/2008 TAG3 papillary tumor .5 CM in size. 2 TURBS followed by 6 instillations of BCG weekly with a second round of 6 after a 6 week wait.
  • Rusty

    Member
    September 3, 2018 at 10:43 pm

    Thank you Alan. Does the fact that the CT was normal mean that if cancer is present it’s most likely small and treatable. My crazy anxiety has me thinking the worst. I’ve never had anxiety like this before.

    Rusty

  • Alan

    Member
    September 3, 2018 at 10:30 pm

    Rusty,

    Welcome. We all hope that your time here is short and there is no cancer. Ct scan, cytology with cystoscopy are all gold standard tests and you have passed 2. The scope should give a final answer and let’s hope that is negative. On the passing of blood. More times than not it is not bladder cancer. Infections, passing of stones, long distance runners and bicyclists and other issues cause this. There are a few people that never find out why blood was/is passed. Keep us posted and lets trust you get the all clear.


    DX 5/6/2008 TAG3 papillary tumor .5 CM in size. 2 TURBS followed by 6 instillations of BCG weekly with a second round of 6 after a 6 week wait.

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