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And again?
Yesterday I was back for my 3 month cystoscopy and my Urologist found another suspicious area. He showed me on the monitor and from my perspective, there appeared no definitive structure. Rather a reddened area. He stated it was small (less than 1cm), but it looked larger but I know that was the magnification. We are trying to schedule the TURBT for Oct. 4th.
Brief background: Aug. 2009 TURBT Ta High Grade; Sept – Oct 2009 6 weeks of BCG; Dec. 2009 TURBT another Ta High Grade; Jan. 2010 3 weeks BCG; Mar 2010 TURBT small area biopsied that came back inconclusive; May 2010 3 weeks BCG; June Cystoscopy & Cytology (clean); Aug. 2010 3 weeks BCG; & now the Sept 2010 cystoscopy. The current Cytology was negative. The previous two tumors and the current suspicious area have all been in the dome area. The inconclusive area in March was in a different area. All biopsies after being examined locally have been sent to John Hopkins for confirmation. I started this adventure back in 2005 and this will be my sixth TURBT.
If you were walking in my shoes, what questions would you be asking? If the TURBT next month comes back again High Grade would you be preparing yourself for a Cystectomy? Is there something else we could do before doing the Cystectomy?
As always, I appreciate your candid advice and all the support. Thank you. :unsure: Chuck
dx – Aug 2005
Five reoccurences (last 12/09 Ta high grade)
BCG Started 10/09 (2 6wk treatment)
BCG Maintenance started 4/1010 Replies-
Chuck
This is the Cyber World… There is NO Space! You can never take up too much.Congratulations! We love good news. Perhaps we should say “Never stay Away!” Chuck, your post about your fears is saying what many others are sitting on the sidelines, not saying.
If you are out there, reading this. Welcome! Please type in your feelings and fears. We won’t bite.
We love good news. We also want to hear from you when you need a pick me up! There are NO Rules here. We are very good at hand holding when awaiting results.
That thing about Rules? There are Rules. :dry: We make them up as we go along :laugh: We also scrap any old rules, just because we don’t like ’em
george
Light a man a fire and he is warm for an evening.
Light a man ON fire and he’s warm forever.08/08/08…RC neo bladder
09/09/09…New Hip
=
New Man! [/size]
Thanks everyone for your words of support. My feet haven’t touched the ground in two days now. It really appears that I could be on the positive side of the statistics and BCG is working for me. Thank GOD!
Chuck :cheer: :cheer: :cheer:
dx – Aug 2005
Five reoccurences (last 12/09 Ta high grade)
BCG Started 10/09 (2 6wk treatment)
BCG Maintenance started 4/10
Happy to hear your good news!!
Anita
Forum Moderator
Caregiver
Congratulations on the good news and it is always great to hear about someone that has success.
Be sure to celebrate,
Vi
Dx 10/5 Non Invasive Papillary
Chuck,
I lurk and always like to see great news!
DX 5/6/2008 TAG3 papillary tumor .5 CM in size. 2 TURBS followed by 6 instillations of BCG weekly with a second round of 6 after a 6 week wait.
Chuck,
That’s not taking up time or space. There’s lots of room to post good news and status updates. Everyone learns from all.
Congrats!Mike
Age 54
10/31/06 dx CIS (TisG3) non-invasive (at 47)
9/19/08 TURB/TUIP dx Invasive T2G3
10/8/08 RC neobladder(at 49)
2/15/13 T4G3N3M1 distant metastases(at 53)
9/2013 finished chemo -cancer free again
1/2014 ct scan results….distant mets
2/2014 ct result…spread to liver, kidneys, and lymph system
My opinions are my own and do not reflect the opinion of ABLCS or anyone else. I am not a doctor nor do I play one on TV.
Wonderful news, :laugh: :laugh: :laugh:
I had that happen once, and even though the uro “thought”
it was irritation from BCG I spent a nervous couple of days!Sara Anne
Diagnosis 2-08 Small papillary TCC; CIS
BCG; BCG maintenance
Vice-President, American Bladder Cancer Society
Forum Moderator
I don’t want to take up time or space from those that need advice and comfort. However, I had my TURB yesterday and my Uro. said he couldn’t find anything. All he saw were scares from the previous surgeries. As he suspected it was cystitis from the BCG. To say the least, I’m elated.
Chuck :cheer: :cheer: :cheer:
dx – Aug 2005
Five reoccurences (last 12/09 Ta high grade)
BCG Started 10/09 (2 6wk treatment)
BCG Maintenance started 4/10
Thanks Pat. I’m really trying to be optimistic and hope that the TURBT comes back inconclusive as the last one or even perhaps cystitis. If the BCG is indeed not working, my research points to a very limited (if any) alternative to cystecomy. :( Again thanks for your assistance.
Chuck
dx – Aug 2005
Five reoccurences (last 12/09 Ta high grade)
BCG Started 10/09 (2 6wk treatment)
BCG Maintenance started 4/10Its good that Hopkins is looking at the slides but it appears that BCG is not working for you. High grade Ta is a puzzler and you really need to watch it before it gets a mind of its own. I might ask for a second opinion from Hopkins?
http://goliath.ecnext.com/coms2/gi_0199-7940907/Treating-BCG-resistant-superficial-bladder.html
This was from uro today.
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