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  • Afraid to have cystoscopy done

    Posted by robertp777 on December 29, 2011 at 2:15 am

    I have had bladder pain on one side of my bladder for sometime now. I have been taking Actos for more than 4 years, so Dr. concerned about cancer. No blood in Urine, no cancer cells in Urine, no indication on CT scan. (DR. said probably would be hard to see on scan if it were there.

    Now they want cystoscopy done and I know I just am unable to do that. The thought makes me sick and cannot concieve the idea of sitting through that type of test. I have read here and other forums the pain that some indure and feel very nervous about doing this test.

    What other options might I have? I know I will never be able to indure this test.

    Thanks

    GKLINE replied 13 years, 1 month ago 13 Members · 21 Replies
  • 21 Replies
  • gkline's avatar

    gkline

    Member
    January 14, 2012 at 3:28 pm

    Thanks… I have a better picture but I can’t seem to load it on. But I will ask one of my Tech people (daughter) how to do it. Just wanted to have something up besides the “pill” avatar.

    Big week though….. Drove the repaired Caterham on public roads on Tueaday (with a dealer plate) and it performed really well. Going Skiing on Sunday at the local ski area now that we have snow!

    ps I like the new pictures of people on the site. They are bigger and it’s nice to see the person doing the talking.

    George


    Light a man a fire and he is warm for an evening.
    Light a man ON fire and he’s warm forever.

    08/08/08…RC neo bladder
    09/09/09…New Hip
    =
    New Man! [/size]

  • mmc's avatar

    mmc

    Member
    January 14, 2012 at 3:12 pm

    Nice picture George! Everybody is taking the opportunity to add new pics, which is nice for all. :)


    Age 54
    10/31/06 dx CIS (TisG3) non-invasive (at 47)
    9/19/08 TURB/TUIP dx Invasive T2G3
    10/8/08 RC neobladder(at 49)
    2/15/13 T4G3N3M1 distant metastases(at 53)
    9/2013 finished chemo -cancer free again
    1/2014 ct scan results….distant mets
    2/2014 ct result…spread to liver, kidneys, and lymph system

    My opinions are my own and do not reflect the opinion of ABLCS or anyone else. I am not a doctor nor do I play one on TV.
  • gkline's avatar

    gkline

    Member
    January 14, 2012 at 3:06 pm

    So Glad everything went OK. Your experience was normal…. just a little issue getting the tube through the prostate.
    But this got me to remembering something…… After surgery for the neo bladder I was able to stand the pain of the surgery quite well. I was quick to get off pain meds and found I could tolerate the major pain of surgery quite well.
    BUT! I lost my mind when the nurses came in and poked little needles in my arm for “blood tests” after they took out the central line. Think of it! I could stand the pain of surgery but I wimped out every time they came in to give me a shot or take a blood sample. When I mentioned this to them, they thought it was great fun that the elephant was afraid of the mouse! :laugh: :laugh: B) B) B)

    Glad you found out you worried for nothing. Reality is sometimes safer than fiction.

    George


    Light a man a fire and he is warm for an evening.
    Light a man ON fire and he’s warm forever.

    08/08/08…RC neo bladder
    09/09/09…New Hip
    =
    New Man! [/size]

  • rbmc's avatar

    rbmc

    Member
    January 13, 2012 at 9:59 pm

    We knew you could do it. Congratulations on a good medical procedure. Sorry the outcome made you an offical member of the BC Club, but now you know the problem and how to tackle it. Best of luck ahead.

  • upnorth's avatar

    upnorth

    Member
    January 11, 2012 at 2:12 am

    YOU DID IT!!! Yea :)


    Age 55
    Diagnosed BC 12/20/2011 Ta No Mo 0a Non-Invasive At age 48
    “Please don’t cry because it is over….. Smile because it happened!” {Dr. Seuss} :)
  • mmc's avatar

    mmc

    Member
    January 11, 2012 at 1:35 am

    Glad you got the test! Also glad you reported back here so other guys get to hear it wasn’t so bad. :)

    I hope the tumor is benign!

    Mike


    Age 54
    10/31/06 dx CIS (TisG3) non-invasive (at 47)
    9/19/08 TURB/TUIP dx Invasive T2G3
    10/8/08 RC neobladder(at 49)
    2/15/13 T4G3N3M1 distant metastases(at 53)
    9/2013 finished chemo -cancer free again
    1/2014 ct scan results….distant mets
    2/2014 ct result…spread to liver, kidneys, and lymph system

    My opinions are my own and do not reflect the opinion of ABLCS or anyone else. I am not a doctor nor do I play one on TV.
  • dieseldoc's avatar

    dieseldoc

    Member
    January 11, 2012 at 1:26 am

    YEAAAA!!!!! That’s the way to get it done. Proud of you, now you know for sure what is going on in there! :woohoo: :silly: :)


    T1,NO,MO battling bladder cancer since 2005
  • Robertp777's avatar

    Robertp777

    Member
    January 11, 2012 at 1:20 am

    Well I went ahead and had the test done today. It was a piece of cake. I was worried about nothing. The worst part was the worring about it. The only discomfort was when they went by the prostate, but that just barely stung a little. Found a small 2mm tumor and they will take it out next month. Glad I did not chicken out. Don’t anyone worry about the test, do it if thats what they want to do. Thanks all for your replys.

  • upnorth's avatar

    upnorth

    Member
    January 9, 2012 at 1:37 am

    Robert. Did you get the test done? If so how did it go?


    Age 55
    Diagnosed BC 12/20/2011 Ta No Mo 0a Non-Invasive At age 48
    “Please don’t cry because it is over….. Smile because it happened!” {Dr. Seuss} :)
  • Jasonr's avatar

    Jasonr

    Member
    January 8, 2012 at 7:25 pm

    My reaction was “you wanna stick what where?” I am apprehensive every time I have to have a tube stuck there but DEATH might be the alternative. It would be a slow death spread over quite some time. In the last 8 months, I have had 3 cystoscopies, 4 bladder resections and 6 bcg treatments. And a stent removed. 18 times they have been up there, 3 of them awake. Think of it as a test. You will pass it. Breath deeply. You can do this.

    Jason


    @ 36, DX: 03/2011, T1HG, TCC/CIS, BCG (Didn’t work) NeoBladder Sched: 01/2012,
  • rbmc's avatar

    rbmc

    Member
    January 7, 2012 at 10:53 am

    Sounds like your first experience at using that thing down there for medical purposes. It’s a handy, short, direct route into the bladder, the place where you want to look right now for possibe problems, and get answers. And you’ll get to enjoy the TV show with your doctor. My BCG’s was the first time at being awake for inserting things up in there. But I didn’t watch either! Next week is my first Cysto being awake, and I’m looking forward to the camera view. Please update us on your experience, and, the results. RB

  • dieseldoc's avatar

    dieseldoc

    Member
    January 1, 2012 at 8:39 pm

    If you are that scared then see if your doc can do it as an outpatient surgery and knock you out!! I have had the scope every 3 months for about 6 or 7 years, it’s a piece of cake now!!


    T1,NO,MO battling bladder cancer since 2005
  • upnorth's avatar

    upnorth

    Member
    January 1, 2012 at 4:10 pm

    Robert, just had one done three weeks ago. Not painful but weird feeling is more like it. If you breath out slowly when the scope passes by the prostate it will slip by. Even if it has trouble the URO will tell you what he/she is doing and that your going to feel pressure, :huh: there is no big surprises.

    After their done you really want to pee bad. This will last for a few hours but then get better quickly if you drink a lot of water.
    Rest up that day and you will be good to go the next day. (Maybe a little sting when you pee for about two days.)

    You may see blood clots coming out when you pee, don’t freak out, if you had blood in your urine this is normal. The blood that was stuck in your bladder is finally getting out after the scope freed it up.

    Its okay to be afraid. But its not okay to pass on this test. You have to do the responsible thing. You must show your friends and family how to be brave in the face of possible cancer. I know of what I speak. My father didn’t do it because men are tough. He died two years later from bladder cancer that got out of control. :angry:

    I am doing my best to make sure I still have a fighting chance. One scope & one TURP done, removing a cancerous tumor.

    One for me, and zero for cancer. :cheer: DO IT PLEASE!!!


    Age 55
    Diagnosed BC 12/20/2011 Ta No Mo 0a Non-Invasive At age 48
    “Please don’t cry because it is over….. Smile because it happened!” {Dr. Seuss} :)
  • mmc's avatar

    mmc

    Member
    December 31, 2011 at 2:39 pm

    For most, it is not hard to do. If you insist on the precautions already mentioned, you should be fine. You may even think “what was all the hullabaloo about?”

    That is, the numbing jel (and wait 10 minutes for it to work and to coat more area, a mild sedative beforehand so you relax, and some antispasmodic and analgesic for afterward (just in case).

    This is not a test to skip.
    Sounds a lot worse than it is.

    Mike


    Age 54
    10/31/06 dx CIS (TisG3) non-invasive (at 47)
    9/19/08 TURB/TUIP dx Invasive T2G3
    10/8/08 RC neobladder(at 49)
    2/15/13 T4G3N3M1 distant metastases(at 53)
    9/2013 finished chemo -cancer free again
    1/2014 ct scan results….distant mets
    2/2014 ct result…spread to liver, kidneys, and lymph system

    My opinions are my own and do not reflect the opinion of ABLCS or anyone else. I am not a doctor nor do I play one on TV.
  • lustron591's avatar

    lustron591

    Member
    December 31, 2011 at 5:14 am

    well, i had an office cystoscopy two weeks ago — probably my third “awake” scope job — and it wasn’t bad at all; really no worse than some of the BCGs i’ve had. some docs are pretty good at doing this with little pain. IT’S CREEPY, YES — but not so bad.

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