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adenocarcinoma 4 cm in bladder
Hello,
My husband was recently diagnosed with an adenocarcinoma in his bladder. T3
It has invaded the bladder wall, muscle and lymph nodes.
The urologist wants to remove bladder, prostate and lymph nodes.
My husband would like to know the survival rate with a cancer this rare and aggressive after this surgery.
I have read that chemo and radiation are ineffective with this type of tumor.
Appreciate all responses from those who have gone through this.
We are aware this is not a good situation and prognosis is grim
Thank you. -
8 Replies
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I forgot to attach a questionaire that can be useful with your Doc. Way too many questions so pick and choose what applies to you.
Carol ckfun
Moffitt is a great place to have available.
Many if not most of us have some degree of aversion for the path we are on. Learning more about options, effects and changes accompany treatment can help resolve concerns.
Make a list of your husband’s concerns and be forthcoming is asking those questions when treatment is suggested.Having great communication between the patient and the care team is really important.
I am happy that the earlier comment were helpful.
Best to you and your husband,
Jack
6/2015 HG Papillary & CIS
3 Years and 30 BCG/BCG+Inf
Tis CIS comes back.
BC clear as of 5/17 !
RCC found in my one & only kidney 10/17
Begin Chemo; Cisplatin and Gemzar
8/18 begin Chemo# 3
Begin year 4 with cis
2/19 Chemo #4
9/19 NED again :)
1/2020 CIS is back
Tried Keytruda, stopped by side effects
Workin on a new plan for 2021
Caregivers sometimes have a bigger job than the patient. As Sara Anne said, Moffitt has a great reputation. Keep posting as you go someone will listen.
DX 5/6/2008 TAG3 papillary tumor .5 CM in size. 2 TURBS followed by 6 instillations of BCG weekly with a second round of 6 after a 6 week wait.
Someone from BCAN had recomended Dr. Scott Gilbert from Moffitt.
Not sure if we get to choose the doc.
Thank you for your replies.
Carol
Good for you!!! Your husband is fortunate to have you in his corner. At least after your visit to Moffitt you may have a better idea of what the future holds.
Sara Anne
Diagnosis 2-08 Small papillary TCC; CIS
BCG; BCG maintenance
Vice-President, American Bladder Cancer Society
Forum Moderator
Thank you for your replies.
I finally talked my husband into going to Moffitt Cancer Center in Tampa.
I think that is our best shot, since many other states don’t want people from Florida.
Also read the PH 2 clinical trial for adenocarcinoma.
Thank you again…
Alan offers some good advice here….a second opinion is always an excellent idea when the type of cancer or other factors make it a bit unusual. A major medical school urology department or a National Cancer Institute cancer center
(a place such as MD Anderson, Memorial Sloan Kettering, USC, Stanford….) would be good choices.You are not the only patient with adenocarcinoma to appear here. If you use the “Search” function at the top of the page and search for adenocarcinoma you can read about many others’ journeys.
Sara Anne
Diagnosis 2-08 Small papillary TCC; CIS
BCG; BCG maintenance
Vice-President, American Bladder Cancer Society
Forum Moderator
Welcome ckfun,
Sorry for your reason to be here. Yes, the diagnosis is serious but, there are many with worse situations and still standing. Stage T3 is better than T4. Also, I have learned it is always one day at a time. That is all one can control.
Adenocarcinoma is not your usual “garden variety” of bladder cancer. The best advice I can probably give is make sure the surgeon does many of these a year (25-35+) and if you have any doubts sometimes a second opinion is good for confirmation and fresh eyes. However, being stage 3 you do want to act quickly. It sounds like your Doc has a good plan and yes that kind of radical surgery gives the best odds of survival which to me means almost nothing as everyone responds differently and attitude with you as a caregiver are good things. Pat yourself on the back. This is still beatable and treatable!
I am leaving with a good site for the different diversions with pros and cons (just copy and paste):
https://my.clevelandclinic.org/health/treatments/12546-urinary-reconstruction–diversion .Ask away as you have other questions.
DX 5/6/2008 TAG3 papillary tumor .5 CM in size. 2 TURBS followed by 6 instillations of BCG weekly with a second round of 6 after a 6 week wait.Sign In to reply.
