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  • 9-11 Surgery Done and I Got Home Yesterday

    Posted by Herb on October 2, 2010 at 9:15 am

    Operation took 6 hours only problem was I was 6′ 3″ and added size added some time. Conduit is working and may have lucked out today and found Hollester Bag that will hold for more than 30 hours my record to date)— Hollister is being helpful and my stoma presently ‘kind of’ a ‘inny’ but maybe future will pop it out a little — but35 hours on new convex single bag design is encouraging.

    I must say that there were two uniqiue aspects no one predicted that made my surgery — a trip to Hell and Back. One immediately got C-Dip infection and then second day I went into ‘Hospital Pyschosis.’ The infection beat me up physically where I could not lift even one finger to pick my nose and the psychosis on third day put me in very unreal frightening places where I want never to return to ever again.

    Cancer ended up in Prostate as well as Baldder but all planes, edges and nodes look clear. Pain has just about disappeared and I am 21 days after surgery. Just have to eat moderately and stay away from heavy stuff so intestine can get healed — found out ingnoring this has immediate painful upleasant results

    The Heath Care I got from Surgeon Vincent Ortolano and entire staff at Presbyterian Hospital in Albuquerque, NM was nothing but top notch and this was backed by and equally excellent job by Presbyterian Hospital In Lincoln County Ruidoso with my bro Dr. Chris Robinson and staff who aided me with few more in patience days to beat that bad boy infection.

    No fun operation, but never had anyone advertized it as such, but this 71 year old priest is probably going to preach a few more sermons — do hear some groans out there?

    Thanks for your sharing words, knowledge of what lies ahead sincerely help even thouh you are are uniqiue, and uniqie things do pop up. When I get some of 45 pounds back I will attemppt to add to my blog:http://oldpadre.blogspot.com/ Medicine — an Art and Science — and I am here — thanks to my talented fellow human beings.


    Age 72 had radical 9/11/10 have conduit everything is fine, grateful to be a cancer survivor. Lost Dad and Brother to Cancer both in their 50’s.
    motomike replied 13 years, 11 months ago 8 Members · 9 Replies
  • 9 Replies
  • motomike

    Member
    October 6, 2010 at 6:38 am

    “Hospital Psychosis”! I have never heard of such a thing. I’m glad you are over that problem and getting adjusted into normal ever day life with the bag.


    I’m 70, retired heat/air contractor. After 4 months of keymo ileal conduit (IC) surgery removed bladder & prostate May 2010
  • jimswife

    Member
    October 6, 2010 at 12:33 am

    Good Job, Herb! Glad you did so well. Jim is 7 weeks out! As you know it DOES get better! You will go on to preach many more sermons!

  • gkline

    Member
    October 5, 2010 at 4:37 pm

    Herb

    You have passed through the gates of Hell and Came back! As a man of the cloth, we knew you would. Your attitude seems to be exceptional as we would expect. You now will be an inspiration to all of us. The combination of human expertise and Heavenly inspiration will have you back in the pulpit soon.

    Just remember, the Congregation’s wish for a 10 minute sermon is still on! :laugh: :laugh: :laugh: :laugh:

    I am thinking this experience will certainly have a positive effect on your ministry to others.

    I’ve always wanted to say “You’ve been to Hell and Back” to someone who has more knowledge about those things than I.

    Welcome back to this site! We are proud of you!

    George


    Light a man a fire and he is warm for an evening.
    Light a man ON fire and he’s warm forever.

    08/08/08…RC neo bladder
    09/09/09…New Hip
    =
    New Man! [/size]

  • cynthia

    Administrator
    October 5, 2010 at 1:21 am

    Herb, You have been through a lot but we are glad you have came through so well. Keep us updated please.


    Cynthia Kinsella
    T2 g3 CIS 8/04
    Clinical Trial
    Chemotherapy & Radiation 10/04-12/04
    Chemotherapy 3/05-5/05
    BCG 9/05-1-06
    RC w/umbilical Indiana pouch 5/06
    Left Nephrectomy 1/09
    President American Bladder Cancer Society
  • Guest
    October 3, 2010 at 3:43 am

    Hospital Psychosis is usually a result of reacting to a drug or a drug and anesthesia.
    When my husband had his first bypass surgery..5 of them at age 41…20 minutes after they gave him his percodan he would glaze over..look at me and ask me who i was and i would tell him and then he would say..I know that..then he would look at his chest and panic and ask what happened to him and i would tell him and he would say..I know that…….his blood pressure would skyrocket along with pulse…..that night his roommate called me at 2 in the morning and said he was going into all the hospital rooms and telling patients he knew an escape route. He was convinced he was a patient in a Nazi Concentration facility. I called his Doctor at 2 a.m. and met him at the hospital and doctor proceeded to chew out the nurses and have him transfered to a newer section of the hospital. I slept in the empty bed next to him. The next morning he awoke and looked at me and asked “What are you doing here?”……We went with tylenol after that one!!
    pat

  • herb

    Member
    October 3, 2010 at 12:09 am

    Thanks Mike:

    I have had almost two days where I feel almost ‘normal’ and ‘normal’ for me is in the realm of a miracle.


    Age 72 had radical 9/11/10 have conduit everything is fine, grateful to be a cancer survivor. Lost Dad and Brother to Cancer both in their 50’s.
  • herb

    Member
    October 3, 2010 at 12:07 am

    Sara:

    Thanks for sharing your husband’s experience with ‘Hospital Psychosis’ I know for a fact it had to be very difficult for you — I saw the fear in my wife’s eyes, my son’s eyes —that maybe I would survive the surgery and lose my mind.

    I am truly and humbly grateful to my loved one’s who had to endure the real nightmare — and yes, my heart also went ‘South’ for awhile with ‘A-fib’ but I really was unaware except for arrival of several more doctor’s from ‘Heart Hospital’ I thought maybe they had wrong room!

    God Bless


    Age 72 had radical 9/11/10 have conduit everything is fine, grateful to be a cancer survivor. Lost Dad and Brother to Cancer both in their 50’s.
  • sara.anne

    Member
    October 2, 2010 at 6:25 pm

    Herb, glad to hear that things are looking up!

    When my husband was operated on for lung cancer, and was on the way to recovery two days later, he went into atrial fib and was moved back into the critical care unit. Early the next morning I had a call from the thoracic surgeon who wanted to talk to me before I went back to the hospital. My husband had gone into “hospital psychosis.” If it weren’t so sad, it would have been hysterically funny.

    I found him in a straight jacket!
    I was the only one he “could trust.” The nurses, the respiratory therapist, the x-ray tech….were all in a conspiracy to kill him…and probably me. They were listening behind the curtains. AND he was now becoming sure that his surgeon was a part of the plot. They were trying to find out how much money we had, they were going to do away with both of us, and take all our money!!

    Believe me, the rules about only 30 minutes with a patient were abandoned…they even brought me meals if I would just stay with him. It was horrible for me when, apparently completely rational, he explained all the horrors to me and begged me to believe him!! When he recovered, he did remember everything and was MORTIFIED.

    Long tale…but glad you survived the infection, the surgery, AND the psychosis!!

    Sara Anne


    Diagnosis 2-08 Small papillary TCC; CIS
    BCG; BCG maintenance
    Vice-President, American Bladder Cancer Society
    Forum Moderator
  • mmc

    Member
    October 2, 2010 at 1:52 pm

    Herb,

    Glad to hear things are well now.
    Sure sounds like hell there for a while.

    Welcome back!

    Mike


    Age 54
    10/31/06 dx CIS (TisG3) non-invasive (at 47)
    9/19/08 TURB/TUIP dx Invasive T2G3
    10/8/08 RC neobladder(at 49)
    2/15/13 T4G3N3M1 distant metastases(at 53)
    9/2013 finished chemo -cancer free again
    1/2014 ct scan results….distant mets
    2/2014 ct result…spread to liver, kidneys, and lymph system

    My opinions are my own and do not reflect the opinion of ABLCS or anyone else. I am not a doctor nor do I play one on TV.

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