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5 Year Check!
Posted by Nix on August 4, 2012 at 3:34 pmSix years ago I was dx’d with bladder cancer,(Ta) and that is when I discovered this website. The best thing that could have happened to me. :) As everyone here understands, I was “shell shocked” :woohoo: . Through this website, I was supported, informed and taught how to research everything. One year later I had another visit from bladder cancer,and this time it was CIS. Of course I was scared, but with all the information and support from this site, I was ready to do battle . It has been five years and 24 BCG treatments, more cystos than I can remember and yesterday I had my five year check and CT scan …….all clear! Thank you to all that support on this site and help all that come here. You are the best! :laugh:
Nancy
Nancy S
Ta CIS
dx Ta 11/06
dx Ta CIS 10/07Cynthia replied 12 years, 6 months ago 12 Members · 16 Replies16 Replies-
I’m a little late but way to go!!!!!
Cynthia Kinsella
T2 g3 CIS 8/04
Clinical Trial
Chemotherapy & Radiation 10/04-12/04
Chemotherapy 3/05-5/05
BCG 9/05-1-06
RC w/umbilical Indiana pouch 5/06
Left Nephrectomy 1/09
President American Bladder Cancer SocietyNancy, I am late chiming in with my congratulations!!! It is wonderful to see people who are doing so well. I think you are a year ahead of me….and I KNOW I will hit the six year mark also!!
Sara Anne
Diagnosis 2-08 Small papillary TCC; CIS
BCG; BCG maintenance
Vice-President, American Bladder Cancer Society
Forum ModeratorNervous Nancy,
I feel that way too sometimes. Glad to hear someone else say it!!!
Anita
Anita
Forum Moderator
CaregiverNancy, thanks and you are right. We certainly have experience with BCG.
Joey
Oh that’s right, I forgot about the recurrence. My recurrence was in 2007 and that was the only one (keeping fingers crossed).
I will keep you in my thoughts until the day in December when you get the good news!
You, Ann and I have traveled this journey together, and hopefully our posts (ups and downs) have helped others.
Nancy
Nancy S
Ta CIS
dx Ta 11/06
dx Ta CIS 10/07Nancy my 5 year is December, but I had that whole issue on the recurrence, did it come back or not during my initial follow up in May 2008. The cytology and fish were negative and two pathologists said clean. second opinion said focal CIS. The urologist at the time went back in for larger sample, cytology negative, hospital pathology said no cancer, send back to same pathologist who saw CIS and confirmed again in the second sample. But the good news I have been clear since.
Joey
Nancy–
That is such wonderful news! Much as you may like your urologist, I’m sure you’ll be more than happy to see him/her only once a year. I’ve been following a somewhat similar schedule to yours, though my recurrence was low grade papillary tumors, and I hope to join you in the “5-year club” next May.
Ann
Small TA Grade 1, May-06; recur (2 tiny), same, June-08; TURBTs both times. BCG begun July-08, dosage to 1/3rd May-10, completed treatment December-11. All clear since 2008.Joey,
Yes, the doctor said once a year. I did say I would be happy to stay on 6 month checks,(because I am such a “nervous Nancy”:) but Uro said one year would be good. After six years of this it seems odd to be on the “once a year” check. I will get used to it, because I was use to the 6 month check.
Your 5 year is near, isn’t it?
Nancy
Nancy S
Ta CIS
dx Ta 11/06
dx Ta CIS 10/07Nancy, great news. I know you had a follow up in August.
Will you now be going for checkups once a year?
Joey
I never get tired of success!
DX 5/6/2008 TAG3 papillary tumor .5 CM in size. 2 TURBS followed by 6 instillations of BCG weekly with a second round of 6 after a 6 week wait.5 is truly a beautiful number!!! Congratulations on your A+ report card!
Best wishes… CatherineTURBT 1/21/10 at age 55
Dx: T2aN0M0 Primary Bladder Adenocarcinoma
Partial Cystectomy 2/25/10
Vanderbilt Medical Center
Nashville, TNNancy,
So glad to hear your good news!!! Yipeeeeeeeeeeeee!
Anita
Anita
Forum Moderator
CaregiverYay! Happy Dance!!!
Mike
Age 54
10/31/06 dx CIS (TisG3) non-invasive (at 47)
9/19/08 TURB/TUIP dx Invasive T2G3
10/8/08 RC neobladder(at 49)
2/15/13 T4G3N3M1 distant metastases(at 53)
9/2013 finished chemo -cancer free again
1/2014 ct scan results….distant mets
2/2014 ct result…spread to liver, kidneys, and lymph system
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