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34 yr old male, Can someone elaborate my tumor?
Hi all,
new here, I posted some of this in the ND forum but I wanted to get in here. Here it is, i am a 34 yr old male. I have had 2 urethra strictures and prostatitis. When I got my second cystoscopy he found a tumor. he removed it and said it was small. The lab results came back as a no grade transitional Papilloma. My uro said that the grades were 1-5 but I got a no grade meaning zero.
I dont know what this means, what is the chances of this coming back and as something worse? My uro told me as long as I follow up (3 cystoscopy a year for the first year) that I would recover from this because it would always be caught but Im scared man. Did I have cancer or just a benign tumor? I know the recurrance is high but if it doesnt come back does it just mean it was one of those things?
I am a big herb guy but I stopped doing all that stuff some time ago. Im getting back into it big time to try to fight off anymore tumor growth. Any advice for me would be great.
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9 Replies
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Your right man. Im going nuts over this. I still feel like crap from the Cysto cause he removed the tumor and a stricture near the end of my urethra. I will still post here though because I have to go through the regiman of a cysto each month and will post on whatever I find is preventative.
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A Ta tumor is non-invasive superficial bladder cancer which is typically graded by cancer cell differentiation as either Grade 1, 2 or 3. The least agressive and least invasive of these cancerous bladder tumors would be a TaG1. From what I understand you don’t even have bladder cancer, but a no grade transitional papilloma, which has a 7% chance of recurring as a cancerous bladder tumor. So, your not even on the scale yet! A T1 tumor has already invaded down trhough the first membrane in the bladder, you definitely don’t have that – couldn’t because you don’t have cancer.
If in the 7 out of 100 chance you do recurr with superficial bladder cancer, then you can worry about the stage/grade. Sounds to me like your doctor is even overkilling your treatment by treating your papilloma like cancer.
YOU DO NOT HAVE CANCER RIGHT NOW! Beat that into your head ;)
Chris A.
Diagnosed T1G3 – 3/01/06
37 yo, Seattle, WA
Chris, is what I had considered TA or T1? im not sure I understand that. My Doc just told me it was a grade 0. Im assuming TA by the papilloma diagnosis. If the lab was wrong, which is unlikely, I think I would rather not know anyway. Im getting a cysto every 3 months anyway so why go more nuts than I already am.
I hope to herbally cleanse this crap out of me and was told the pot and where I lived in NJ had a high risk and thats probably the cause.
I also wanted to post this from the Lamm site. Dr. Lamm, whatever his motives or issues are, is at least out there talking about what might help us.
Go, Dr. Lamm!!
“We have studied chemoprevention in animals with garlic, which reduced bladder tumor growth and prolonged survival…”
http://www.bcgoncology.com/drlamm/
Rosemary
Age – 55
T1 G3 – Tumor free 2 yrs 3 months
Dx January 2006
Dear JH,
I think we are kindred spirits. In the Alternative Treatments area of the forum, I have posted a protocol for bladder cancer from “Prescription for Herbal Healing”…
Bladder Cancer has knocked the socks off of everything that I have known about being healthy.
You brought up the subject of the “immune system”….the Doc’s told me, that there was “NOTHING wrong” with my immune system”…I actually cleaned up my boyfriend’s bloody vomit from bleeding ulcers for 5 years and never contracted his Hepatitis C…very contagious that way….but, while I was cleaning up his blood, I picked up bladder cancer…
It drives me crazy trying to figure it out. But I guess the thing to do, is just to deal with it, the best I know how…there is a reason for everything…
I told the Doc that I felt real good to be so sick, and he said…”you’re not sick..”
Go figure….
Anyway, I support the idea of the herbs and green tea and garlic and antioxidant supplements. I also do Essiac tea….gotta help this body out the best we can….thanks for listening to my random thoughts…..
Rosemary
Age – 55
T1 G3 – Tumor free 2 yrs 3 months
Dx January 2006
Hey Chris, when I say herb I meant like herbs not herb : )
Although I was a heavy smoker of herb in my 20’s. I am going on a 30 day cleansing of all my organs to start to reverse the damage. There are many tumor fighting herbs that can help this regardless of stage or malignancy. Im still nervous because it can come back and as something worse. The bottomline is I have to get healthy.
Im case your intersted, here are some things I have found to be uselfull in fighting tumors;
Vit C
vitamin D
fish oil
green tea extract
curcumin
inusitol hexaphosphate (IP-6)There is evidence that whey protein is a great immune booster as well.
If it makes you happer to think about odds, you probably have a 1 in 2 chance of having another recurrence. If you have a recurrance you then have about a 1 in 13 chance (i.e. 7%chance ) of ever developing cancer. If you develop cancer you have at least a 1 in 2 chance of it being a low grade superficial..
So your already up to a 1/13 * 1/2 * 1/2 = 1 in 52 chance of ever having a higher grade cancer.
If you did end up with higher grade cancer you probably have a 1 in 3 chance of invasion, but since your being watched (cystoscopies) its probably more like a 1 in 5 chance..
So, that would put your overall risk at about 1 in 250 of ever developing a life threatening bladder condition due to your papilloma. I’m sure your chances of developing another sort of disease or having a heart condition are much higher.
Of course I am just estimating some of these odds, but you should get an general idea.
Chris A.
Diagnosed T1G3 – 3/01/06
37 yo, Seattle, WA
No grade transitional Papilloma? Sounds like a non-malignant benign tumor – your home free. If your really anal you can get a second opinion on the pathology just to be sure, otherwise if I were you I’d figure this was just going to be a little temporary annoyance (the cystoscopies) and go on with life.
What I wouldn’t do is read too much on these forums because 99% of the people here have some form of malignant bladder cancer and your only going to make yourself crazy reading the posts.
I would have another talk with your doctor and have your prognosis clarified because it sounds like he did not go into details as to your long term prognosis and risk of recurrance. Its my understanding that you do not have cancer.
Transitional cell papillomas are benign but have a high frequency of recurrence. In up to 7% of recurrences the epithelial cells show cytologic features consistent with malignancy. The recurrence rate of papillomas is almost identical to that of low-grade transitional cell carcinoma and so some authors consider all papillary neoplasms of the bladder as carcinomas.
http://www.med-ed.virginia.edu/courses/path/urinary/uroth3.cfm
Even if you have a 7% chance (if the papilloma recurrs) of a malignant tumor, most people have very low grade superficial bladder tumors (i.e. TaG1) that are essentually just nuisances as well and can be managed.
I think your odds at this point of your papilloma ever becoming life threatening are way under 1 in 100. I’d worry about some other medicial problem if I were you.
But that all said, eat well and take care of your body (no tobacco). I’m assuming by herb guy your referring to vitamin supplements, etc.. (the other type of smokable green herbs have been linked to causing bladder cancer). I am sure others on the board can list all the supplements that supposedly promote healthy bladders (i.e. brocolli, bottled water vs. chlorinated, megadosing specialized multi-vitamins, etc.)
Good luck.
Chris A.
Diagnosed T1G3 – 3/01/06
37 yo, Seattle, WA
Think about it, how many people have these tumors half their life and nothing ever happens to them? I know there is a 10% chance of a malignant tumor growth but thats not that much higher than a normal person.
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