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Cause to celebrate, I think.....

10 years 11 months ago #11856 by ddoyle
Sandra,

I do understand how it is, waiting for another procedure and more biopsy results, especially over the holidays. I hope whatever they find - if anything -- will be superficial, non-invasive and easily treated. In the meantime, have a great Christmas and New Year in your beautiful new home.

David

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11 years 8 hours ago #11831 by Rosemary
Well, Sandra,

I would tell you to "Try not to worry" but I know how impossible that is.

At least, I hope you enjoy your new condo, and the historic area of Leesburg. I also live in a Southern historic town, and the history here sometimes keeps my mind occupied and challenged. I feel very lucky to live here.

Anyway, the very best to you and to your husband for a Happy and Joyous Holiday.
Please keep us posted as to how those tests turn out.

Very best,
Rosemary

Rosemary
Age - 55
T1 G3 - Tumor free 2 yrs 3 months
Dx January 2006

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11 years 18 hours ago #11801 by Sandra
Happy Holidays BC Friends - here's my update.

Had an ultra-sound for new mass seen on recent Ct Scan and it turned out to be a fibroid - good news there. Yesterday I had another Cystoscopy (on the short cycle now due to FISH and cytology coming back for first time with Oct 11 pre cysto as positive - had TURBT on Oct 22) and Oncologist says he sees no new tumors - I said "great no tumors from Santa"... He stated that if my FISH and cytology come back again (as in Oct) positive for High Grade Urothelial Carcinoma then he will schedule me for biopsies next month to look for CIS (no blue light at Walter Reed). I am trying to stay upbeat for the holidays but must say I am more than a little worried as in 11 months all my cytology and FISH came back negative even when I had tumors. It's hard waiting around "to see" if I have CIS...

So to the happier note, have moved closer to medical, the 200 miles round trip (with the D.C. beltway) was a nightmare, so have been kept busy unpacking and all the other "fun" activities that come with moving from a 3 story lakefront home to a condo - LOL. Leesburg is a beautiful and historic area of VA, so we are settling in.

Again, everyone have a blessed and safe holiday season. My prayer for the new year is a medical breakthru that will stop BC in it's tracks or a cure, whichever comes first. Enjoy good food, good friends, wonderful family, peace and happiest of days.

Take care,
Sandra


Sandra
"Grandmothers are just antique little girls...."

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11 years 4 weeks ago #10709 by wsilberstein

Bladder wall thickning (I forget the exact location). So he stated that he wants me on "short cycle", which means I have a cysto every 6 to 8 weeks - 12/17 is the now the next one. ... Why the "short cycle" for Cystos, I am not sure I understood or was actually given a reason

I had thickeing of the bladder wall on my last CT urogram (current one pending). My understanding is that it could be seen with CIS, but my urologist didn't see anything on the cysto. Still, he ordered the CT urogram I just had and I'm scheduled for full cysto, retrograde urogram, and, I suppose biopsies on 12/6. Gotta try not to freak. I've been almost 7 years cancer-free with never a recurrence.

-Warren
TaG3 + CIS 12/2000. TURB + Mitomycin C (No BCG)
Urethral stricture, urethroplasty 10/2009
CIS 11/2010 treated with BCG. CIS 5/2012 treated with BCG/interferon
T1G3 1/2013. Radical Cystectomy 3/5/2013, No invasive cancer. CIS in right ureter.
Incontinent. AUS implant 2/2014. AUS explant...

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11 years 4 weeks ago #10700 by Sandra
Hi All: Finally received a call from my Oncologist, yesterday afternoon. He stated that the findings from the Ct Scan done 11/11 were as follows: Kidneys, ureters okay. New mass in Uterus (not present at last CT Scan) believed to possibly be a fibroid, but recommended further studies. Bladder wall thickning (I forget the exact location). So he stated that he wants me on "short cycle", which means I have a cysto every 6 to 8 weeks - 12/17 is the now the next one. Also, I have to get orders from family Army doctor for a Deep Pelvic Ultrasound ASAP (easier said than done with the holidays etc). Why the "short cycle" for Cystos, I am not sure I understood or was actually given a reason (he called as I was standing in the middle of the men's department in Macy's). Maybe someone else has had this and can shed some light.

To All - have a wonderful and safe Thanksgiving Holiday.
Take care,
Sandra

Sandra
"Grandmothers are just antique little girls...."

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11 years 1 month ago #10072 by Patricia
You're not alone...but you're in about 0.5%.......
Other adverse reactions of intravesical BCG therapy include hepatitis or pneumonitis, each in 0.7% of patients, arthritis and migratory arthralgia in 0.5%, skin rash in 0.3%, epididymitis/orchitis in 0.4%, ureteral obstruction in 0.3%, and bladder contracture in 0.2%.55 Isoniazid is indicated for treatment and prophylaxis in the presence of any of these reactions, and rifampicin should be added when pneumonitis, hepatitis, or epididymo-orchitis is present
Pat

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