16 years 5 months ago - 14 years 10 months ago #9337 by egtmcsq
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16 years 5 months ago #9336 by timb
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Ian

for what it's worth, I had Ta G1 recurrences for 13/14 years. Quite often multiple and in different parts of the bladder. It's a total nuisance and I can absoloutely relate to your feeling of disappointment at the recurrences. It's a major pain in the butt. Like a recurring bad dream. I eventually had a cystectomy when mine upgraded. but I was consdidered very unlucky as low grade tumours tend to stay that way in most cases. even with that, Im fine now; happy and leading a full life in all ways.

The main thing is you're getting checked and it'd be much worse if these things were just popping up inside you without you knowing.

best wishes


tim

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16 years 5 months ago #9330 by Rosemary
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Ian,

Well, you are welcome. It seems like these lower grade tumors just want to come back. It will be interesting to hear if your Doctor wants to take a more aggressive approach.

Believe it or not, it could be worse.

Try to get some sleep.

Please keep us posted as to how things are going and how they shake out.

Night buddy,
Rosemary

Rosemary
Age - 55
T1 G3 - Tumor free 2 yrs 3 months
Dx January 2006

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16 years 5 months ago - 14 years 10 months ago #9328 by egtmcsq
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16 years 5 months ago #9326 by Rosemary
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Ian,

You haven't let people down. I know this is very stressful on you, I can tell.
It would be stressful on me too.

Has your Dr. talked about a possibility of BCG treatments? What was your stage and grade?

Your bud hanging in there with you,
Rosemary

Rosemary
Age - 55
T1 G3 - Tumor free 2 yrs 3 months
Dx January 2006

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16 years 5 months ago - 14 years 10 months ago #9324 by egtmcsq
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