superficial cancers and the elderly

16 years 6 months ago #8804 by Mike
Replied by Mike on topic superficial cancers and the elderly
Stephany that is a good point the meds. Why is it and my wife keeps my meds written down on a piece of paper because I'm on a few. Now everytime I have been in the hospital they always screw something up med wise. Or a med I am taking they don't have like it is something from outer space and then say it's ok to bring your meds from home for the one they didn't have. It takes at least a day everytime I go in to get my meds the way I take them at home. A hospital and none of them can ever get your meds in order. But the bill always seems to arrive on time. Joe ;)

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16 years 6 months ago #8788 by Stephany
Replied by Stephany on topic superficial cancers and the elderly
One more thing, AmyMarie...sounds like you're going to be helping her after the TURBT. If so, makes sure she gets her meds. And if she does need further surgery, make sure she gets her meds. Even a day or so off could make difference.

Let us know the results of the TURB.

Stephany in Iowa

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16 years 6 months ago #8749 by Rosemary
Replied by Rosemary on topic superficial cancers and the elderly
Amy Marie,

It sounds like you have covered all the bases. You might want to ask if they are planning a Mitomycin treatment if the doctor feels the tumor requires it.

I had Mitomycin while sleeping and knew nothing about it till it was all over with.
I don't think it would hurt to ask this question...

Good luck tomorrow.

Your friend,
Rosemary

Rosemary
Age - 55
T1 G3 - Tumor free 2 yrs 3 months
Dx January 2006

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16 years 6 months ago #8740 by amymarie
Replied by amymarie on topic superficial cancers and the elderly
Hi all,
Just to follow-up, tomorrow is the big day. My MIL will have her TUR and we all feel comfortable with the procedure and doc. This week I spoke with all involved and feel that everyone is on the same page. She had a review of all heart issues with her cardiologist and he signed off on the procedure as well. Still hoping whatever they find will be low grade and stage. We have also requested a second pathologist from either Hopkins or Sloan review the sample. I will be there tomorrow to meet with doc after TUR so if you have any good questions I should ask him that we haven't already discussed let me know. Thanks again to everyone who posted.
amymarie

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16 years 6 months ago #8443 by wendy
Replied by wendy on topic superficial cancers and the elderly

A tumor at the bladder neck could cause blockage and has to go, and like others have already said a biopsy needs to be done, and if the tumor is grade 1, Ta, that would be a best case scenario.

I'm also from NJ, and my sister is the one with bladder cancer (me and another sister had breast cancer). Good ol' NJ! Must be the water or something. My sister goes to Sloan even though she has a very non-aggressive type of cancer and no recurrence for these last 8 yrs or so. Our other sister went to Robert Wood Johnson in New Brunswick, I think it's the only cancer center in NJ. She was fighting breast cancer but didn't make it, so we did not want to go back to RWJ due to the sad memories.

Yes, this forum and our email group are younger than the average blc patient, and women are overly represented; thus we're not a standard cross-section of the actual bladder cancer community at large.

My second cousin was dxed with blc at age 88, she had a high grade, aggressive kind of tumor and received Mitomycin, one dose, post-TUR. She handled it well and it did keep the recurrences at bay for a while; this treatment is said to delay recurs up to 2 yrs (blc recurs very frequently, up to 70% of the time). It is on the way to becoming standard world-wide. Other drugs can be used aside from Mito for this, there is more info about non-invasive tumors and intravesical chemo on the main site, if you want to read more: blcwebcafe.org/superficialblca.asp and blcwebcafe.org/intravesicalchemo.asp

My sister received a CT upon dx, it's pretty standard as staging.

About the anxiety issues, that's tricky when someone is elderly, the normal drugs like valium and ativan cause different side effects than with younger people, but a good anesthetist will know how to best deal with this kind of thing. Make sure you get some advice on how to help her get through this very trying period.

Tell her she is not alone, there are at least half a million blc survivors walking around the U.S., this is a survivable diagnosis.

All the best,
Wendy

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16 years 6 months ago #8441 by amymarie
Replied by amymarie on topic superficial cancers and the elderly
Thanks for the info everyone. Yes, she has been on standard dosage of Paxil for 9 years to help with her anxiety issues, but now only takes Klonopin at night I believe. She is quite active and very educated as a retired nurse practicioner. However, she tends to jump to worse case scenario in any medical situation and then works herself up into a frenzy.
Anyway, I will be sure all docs are aware of meds and history at her pre-op. A great idea to check with her cardiologist as well. Having worked in hospitals myself for many years as a speech therapist I know that docs don't always communicate with each other so I will be sure to facilitate that. This site has helped me become much more informed and also has given me hope that even if this doesn't turn out to be superficial, there are a number of effective treatment options. I will post an update after mondays pre-op session.
Thanks to all,
Amymarie

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