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BCG Decision - Help

11 years 1 month ago #9011 by Gman1979
I don't have anyone to refer to you since I am deep in the heart of Cajun Country in Louisiana. Sorry.

I do have a few things about the rolling. No one in my urologists office mentioned the need to roll. The paperwork I took home mentioned something about rolling if your doctor tells you to, but he didn't tell me anything. I did, however, roll 90 degrees every 15 minutes like most people I know that have had BCG treatments have done. Though I never asked him directly, he says the immune response can take place so long as it is instilled in the bladder. I don't have much more to offer on that. But, go with your instincts. If it worked before, why not do it again? It certainly can't hurt.

My urologist's nurse instilled my BCG treatments for me. She is the only one that does them at his office, and she was very gentle. No problems (she also used a pediatric catheter, which helps). I wish you luck in finding a place to get your treatments.

"I am third."
-Gayle Sayers

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11 years 2 months ago #8545 by wendy
Connie,

Here's the responses I got from our other group:

I'm very happy with Dr. Gary Steinberg at the University of Chicago
Hospitals. It's located in the Hyde Park area of Chicago which is very near
the Museum of Science and Industry.

Here is the website..

http://www.uchospitals.edu/
________________________________

Wendy--my husband went to the University Of Chicago or Edwards hospital
in Npaerville there are urologist there--- Ann
_____________________

Why isn't your doctor giving you a referral to someone closer to you?

________________

I have been a patient of Dr. Gary Steinberg at the U of C for bladder cancer since 2001. I would recommend him and the U of C to anyone. I would avoid anything other than a major teaching hospital such as U of C, Loyola, or Northwestern.

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11 years 2 months ago #8447 by momof4
My Cousin lives in Joliet, and recommended: Advanced Urology Associates. He said they are affiliated with a large Cancer Center (forgot the name). I know he lives south of Chicago, but I don't know how far this would be for you.

Their website is:

Advanced Urology Associates:

http://www.advuro.com/index.shtml


Good Luck with your search!
Karen

Caregiver for my Wonderful Husband Angelo, who has Metastatic Bladder Cancer.

Life isn't about how to survive the storm, but how to dance in the rain.

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11 years 2 months ago #8446 by ConnieOnAQuest
Hi Wendy,

Thank you. I would greatly appreciate it if you'd ask your email group on my behalf for a recommendation of a urologist in the southwest suburbs of Chicago. I have to start BCG in 3 weeks, and I have no idea where I'm going to go.

Connie

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11 years 2 months ago #8444 by wendy
Connie,

We should ask our email group for a referral of a good uro in your area. If you don't feel like joining I'll ask for you and let you know the responses. Hopefully there will be some names coming up on this forum thread too.

The rolling thing....it's about an air bubble that can be present. These days I'm hearing more and more that rolling is not really necessary, but hey, if you feel like it, rock 'n' roll, honey.

For what it's worth I think you should get a doctor closer to home, life is tough enough as it is without the travel, extra expenses and the aggro this guy obviously causes you.

Best,
Wendy

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11 years 2 months ago #8440 by ConnieOnAQuest
Warren,

When I asked the urologist at the teaching hospital to recommend an office closer to home for BCG treatments, he said, "Well, it's YOUR bladder", then said he didn't make recommendations, but did mumble a name of someone he knew of who is in my neck of the woods.

I don't know of anyone else locally who has bladder cancer, or who knows of anyone who has it, but I will ask my primary care physician. Thanks to you, and all of you, for your comments.

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