34 yr old male, Can someone elaborate my tumor?

17 years 8 months ago #829 by cta7978
If it makes you happer to think about odds, you probably have a 1 in 2 chance of having another recurrence. If you have a recurrance you then have about a 1 in 13 chance (i.e. 7%chance ) of ever developing cancer.  If you develop cancer you have at least a 1 in 2 chance of it being a low grade superficial..

So your already up to a 1/13 * 1/2 * 1/2 = 1 in 52 chance of ever having a higher grade cancer.

If you did end up with higher grade cancer you probably have a 1 in 3 chance of invasion, but since your being watched (cystoscopies) its probably more like a 1 in 5 chance..

So, that would put your overall risk at about 1 in 250 of ever developing a life threatening bladder condition due to your papilloma.  I'm sure your chances of developing another sort of disease or having a heart condition are much higher.

Of course I am just estimating some of these odds, but you should get an general idea.

Chris A.
Diagnosed T1G3 - 3/01/06
37 yo, Seattle, WA

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17 years 8 months ago #828 by cta7978
No grade transitional Papilloma?  Sounds like a non-malignant benign tumor - your home free. If your really anal you can get a second opinion on the pathology just to be sure, otherwise if I were you I'd figure this was just going to be a little temporary annoyance (the cystoscopies) and go on with life.

What I wouldn't do is read too much on these forums because 99% of the people here have some form of malignant bladder cancer and your only going to make yourself crazy reading the posts.  

I would have another talk with your doctor and have your prognosis clarified because it sounds like he did not go into details as to your long term prognosis and risk of recurrance.  Its my understanding that you do not have cancer.

Transitional cell papillomas are benign but have a high frequency of recurrence. In up to 7% of recurrences the epithelial cells show cytologic features consistent with malignancy. The recurrence rate of papillomas is almost identical to that of low-grade transitional cell carcinoma and so some authors consider all papillary neoplasms of the bladder as carcinomas.

www.med-ed.virginia.edu/courses/path/urinary/uroth3.cfm

Even if you have a 7% chance (if the papilloma recurrs) of a malignant tumor, most people have very low grade superficial bladder tumors (i.e. TaG1) that are essentually just nuisances as well and can be managed.

I think your odds at this point of your papilloma ever becoming life threatening are way under 1 in 100.   I'd worry about some other medicial problem if I were you.

But that all said, eat well and take care of your body (no tobacco).  I'm assuming by herb guy your referring to vitamin supplements, etc.. (the other type of smokable green herbs have been linked to causing bladder cancer).  I am sure others on the board can list all the supplements that supposedly promote healthy bladders (i.e. brocolli, bottled water vs. chlorinated, megadosing specialized multi-vitamins, etc.)

Good luck.

Chris A.
Diagnosed T1G3 - 3/01/06
37 yo, Seattle, WA

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17 years 8 months ago #827 by jhferry
Think about it, how many people have these tumors half their life and nothing ever happens to them? I know there is a 10% chance of a malignant tumor growth but thats not that much higher than a normal person.

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17 years 8 months ago #826 by jhferry
Hi all,

new here, I posted some of this in the ND forum but I wanted to get in here. Here it is, i am a 34 yr old male. I have had 2 urethra strictures and prostatitis. When I got my second cystoscopy he found a tumor. he removed it and said it was small. The lab results came back as a no grade transitional Papilloma. My uro said that the grades were 1-5 but I got a no grade meaning zero.

I dont know what this means, what is the chances of this coming back and as something worse? My uro told me as long as I follow up (3 cystoscopy a year for the first year) that I would recover from this because it would always be caught but Im scared man. Did I have cancer or just a benign tumor? I know the recurrance is high but if it doesnt come back does it just mean it was one of those things?

I am a big herb guy but I stopped doing all that stuff some time ago. Im getting back into it big time to try to fight off anymore tumor growth. Any advice for me would be great.

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