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2 year report card

11 years 2 months ago #8249 by Winndixie
Your posting fits me to a tee! I was diagnosed in December of 2005, had tumor removed, more tests for next 3-months plus one hospital biopsy procedure. My last scope test was clear and I'm so grateful. Will be 2-years clear by Christmas!

AMEN, it does take time to adjust to the "Big C"---not to mention telling family and friends---their reactions. I LOVE THIS SITE and frequently check it out for new postings AND update on treatments.

Thanks for your posting, it reaffirms that I may be normal.

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11 years 3 months ago #8073 by Rosemary
Tommy,

I can't say for sure, but, perhaps there IS a moral to the story. Perhaps Dr. Lamm is right in saying that your body has had enough.

Just my 2 cents.

Rosemary

Rosemary
Age - 55
T1 G3 - Tumor free 2 yrs 3 months
Dx January 2006

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11 years 3 months ago #8072 by tommyt
I am coming up on my 1 yr anniversay of bladder cancer removal. I received a TUR in Oct 06'. Then started a series of 6 BCG. Not so bad early, but seemed to build up over the series. I would schedule 8:30am, home to hold it in for about 1 hour, and then off to work. Wouldn't advise it for everybody. Clean cysto after the fist 6 treatment, then another rouund of 3. These three were much more intense, with bleeding and tissue. Still maintained the same work schedule. Then another cysto (clean) and another series of 3 BCG. Once again they were more intense than prior. Last cysto in Aug, still clear. URO has given me until Dec before next peek, but then another series of 3 BCG. I had discussed this on a prior post. Most seemed that it was excessive treatment for a Ta1 tumor. I have also discussed this in emails with Dr. Lamm and he stated it seemed like I have had all I can take. ???
No real moral to the story, just my experience.

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11 years 3 months ago #8063 by Mystic
Zach,

I do not feel my doctor is lying to me. I am having the BCG for the re-occurance that I have had for the past year and a half, every 3 months surgery. This last time in June was the first time I had a clear scope except for two small things he lazered off in the office. Yes it was painfull, but I heard the words I longed to hear--NO SURGERY.

I am praying to get through the BCG with mild side effects.

Thank you for answering me.
Mystic

Ha Mistic;

My Dr. never said anything about not drinking before hand he had me urinate first in his office and tested it. Then checked my bladder as to any additional urine inside me before I got the BCG. He had me keep it in for one hr. afterwards which I did until the end when I backed off on the time just a little. My Dr. from the first always under estimated the amount of pain in everything that happened to me by approx 50%. I can remember my first cyst cope and him telling me that this would be a slight discomfort boy was that a underestimate of my pain threshold. After that I have taken a pain pill before I have anything done. Back again “for me” BCG was a all night affair getting up every hr. and peeing “FIRE” by the next day I was exhausted from not sleeping and now the side effects of the flue like symptoms would kick in. Take the day off You deserve it, this is not a walk in the park you have a cancer and need the time off to recover. By Monday when you go back to work you will be fine.
Oh by the way I am 60 now got started with this stuff at 58.

Fellowship 8)


Linda

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11 years 3 months ago #8062 by Mystic
Fellowship,

The doctor never said anything to me about not drinking before the bcg, I just read it would be easier to hold in the bcg if not much liquids in the body.

As for the time frame, Rosemary also stated the time can differ, each doctor has a preference. Mine did say one hour, I hope that is the case and not two. He said it used to be 2 hours but they did not notice much if any difference if helf in two.

I am having the treatments at 11:30 the first time, at 10:15 the following times. I hope to then drink a lot of water, I will see how I feel in the morning.

I get up every day at 4:00 a.m. to exercise before work, and only get about 7 hours of sleep a night and use to getting up every 2 hours to run to the bathroom.

I want to thank you again and every one on this site. They are so thoughtfull, and it is great to be able to read what others are also going through.

Thank you.
Mystic



Ha Mistic;

My Dr. never said anything about not drinking before hand he had me urinate first in his office and tested it. Then checked my bladder as to any additional urine inside me before I got the BCG. He had me keep it in for one hr. afterwards which I did until the end when I backed off on the time just a little. My Dr. from the first always under estimated the amount of pain in everything that happened to me by approx 50%. I can remember my first cyst cope and him telling me that this would be a slight discomfort boy was that a underestimate of my pain threshold. After that I have taken a pain pill before I have anything done. Back again “for me” BCG was a all night affair getting up every hr. and peeing “FIRE” by the next day I was exhausted from not sleeping and now the side effects of the flue like symptoms would kick in. Take the day off You deserve it, this is not a walk in the park you have a cancer and need the time off to recover. By Monday when you go back to work you will be fine.
Oh by the way I am 60 now got started with this stuff at 58.

Fellowship 8)


Linda

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11 years 3 months ago #8060 by Rosemary
I just wanted to pick up on an idea of cytologies/cystocopies being compared to a pass or fail grade in school. (REPORT CARD)

Because I have not had any tumour recurrance since initial diagnosis, I get a test anxiety with each physical exam. PASS OR FAIL? Yesterday, I had a surprise call from the doctor's office that I was booked for an appointment. The news threw me, and I had an intense feeling of....test anxiety. More than worry about a tumor, I don't want to disappoint others.

I had run into into a friend of mine in the library the day before who had recently had surgery for a rain tumor. I asked how she was doing and she looked at me strongly and said, "The tumor is back".. When I got back to work, I reflected on her body language as she was telling me the news, and I wondered how hard it was for her to tell me that...

BTW, from what I am reading on this board, it seems that Doctors recommend different times for holding the BCG in the bladder. I was requested to hold for 2 hours. The time required for holding must not be a hard and fast rule...

Have a good day,
Rosemary

Rosemary
Age - 55
T1 G3 - Tumor free 2 yrs 3 months
Dx January 2006

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