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Inflamation of bladder following BCG

11 years 3 months ago #7578 by patsbabe
Thanks for reply. Yes, I've been on Enablex and other same type meds for years. None seem to make a difference. Have a doc appointment Monday before 3rd of 3 BCG sessions. Maybe there's something new on the market. I figured this was a common side affect...was just looking for confirmation. Always good to know in these circumstances others were having/had the same experience.

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11 years 3 months ago #7570 by ddoyle
Are you taking Detrol or Enablex or some other med to help with overactive bladder? I took Enablex all the way through my 6 BCG treatments and it did help MOST of the time. There were times, particularly after a BCG treatment where the frequency got down to 30 or 40 minutes but it leveled off to about 60-90 minutes after a few days. Now, over two MONTHS (not minutes ;D) since completion of BCG I can go sometimes 2-1/2 hours or more. Still taking Enablex, though.

David

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11 years 3 months ago #7565 by patsbabe
I had another round of BCG yesterday (2nd of 3rd)... I could hardly hold it more than 35 minutes. Isn't that better than nothing? Also...find that I need to urinate almost every 45 minutes. No burning or other inconvenice other than frequncy. Is this common to most of you?

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11 years 3 months ago #7434 by rando
Thanks Wendy.... I'm just trying to remember just how the BCG treatments went. The way I remenber it was 6 weeks( March/2005), then 3 weeks (June/2005), 1 year later 6 weeks (March/2006), then 3 weeks(Oct/2006) and finally 3 weeks (Jan/2007). Total 21 treatments.

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11 years 3 months ago #7379 by wsilberstein

A cysto with an inflamed bladder is definitely an experience

David,
I feel for you, and with you... literally. I just had my cysto and urethral stricture dilation with an inflamed urethral stricture. And he sent me home catheterized for 3 days. I couldn't get in and out of chairs without yanking my chain (if you know what I mean :P) So I spent the next 3 days standing all day seeing patients and walking slowly between patients. Thank God no little kid kicked me or anything. I couldn't wait to get the catheter out. It felt so good for almost ½ hour until the dysuria, frequency, and continuous burning pain returned. No real help from Urised or Pyridium, since he said my bladder's not inflamed. I guess I shouldn't complain since I'm still cancer free. But it hurts :'(

-Warren
TaG3 + CIS 12/2000. TURB + Mitomycin C (No BCG)
Urethral stricture, urethroplasty 10/2009
CIS 11/2010 treated with BCG. CIS 5/2012 treated with BCG/interferon
T1G3 1/2013. Radical Cystectomy 3/5/2013, No invasive cancer. CIS in right ureter.
Incontinent. AUS implant 2/2014. AUS explant...

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11 years 4 months ago #7363 by ddoyle
Rando:

Thanks for the good thoughts :)

A cysto with an inflamed bladder is definitely an experience >:(

So much edema there that the Uro couldn't really tell whether there's still any CIS (grade III Carcinoma In situ) present so he's going to give the bladder another 3 weeks to calm down then another TURB early Sept.

How's your situation?

David

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