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MITOMYCIN AS A PREVENTION

11 years 6 months ago #5921 by beglin99
My uro decided I can skip the 3rd mitomycin treatment... just don't skip the next cysto scheduled for Aug 1.... and I will not skip that... ;D

Retired USAF Col, father of 4, grandfather of 9, greatgrandfather of one.. Enjoying life to the max...

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11 years 6 months ago #5870 by beglin99
Thanks Rosemary... I have already decided not to take the 3rd treatment of mitomycin. Can't find any uro that is using it as a "preventative"... and that 2nd treatment really tore me up.. Have not talked to the uro yet...

regards.. Bill

Retired USAF Col, father of 4, grandfather of 9, greatgrandfather of one.. Enjoying life to the max...

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11 years 6 months ago #5862 by Rosemary
Thanks Pat.

Beglin,

This is a previous thread that discusses Mitomycin usage. I hope it will be of SOME help.

http://blcforum.com/smf/index.php/topic,878.0.html

Your friend,
Rosemary

Rosemary
Age - 55
T1 G3 - Tumor free 2 yrs 3 months
Dx January 2006

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11 years 6 months ago #5860 by Patricia
Beglin.....Wow...thats a lot of mitomycin....i've only heard of it being given once if it warrants every 4 to 8 weeks. I'm with Rosemary...i'd get another opinion. This is a drug that keeps on giving as it were...has long range effects which is why i think a lot of uro's are discontinuing its use. You should not drink any alchohol or take any aspirin while on this therapy. And you have to be careful not to be around anyone who's been newly innoculated..say a childs innoculation.
I really don't understand your doctors thinking on this if the cancer is superficial. It seems excessive to me ....i'm not an expert...but i do think it warrants another opinion. Pat

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11 years 6 months ago #5856 by Rosemary
My point about a second opinion still stands.

Regards,
Rosemary

Rosemary
Age - 55
T1 G3 - Tumor free 2 yrs 3 months
Dx January 2006

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11 years 6 months ago #5854 by Rosie
Rosemary said "Why did they discontinue the BCG? Because of chronic irritation? I mean, the burning is really intense with each succeeding treatment, but, we've all been there...."

I had 21 instillations of full strength Tice BCG within the first 2 years of my diagnosis without any of the problems Rosemary has encountered. I did have some feeling of urgency and a bit of burning if I did not drink enough water afterwards. There are some people very sensitive to BCG. If I had the problems Rosemary had I would discontinue use. It seems in your case, Rosemary, BCG is more caustic to you than the Mitomycin. The mitomycin has kept you from having recurrences. I have had low grade recurences with the many doses of BCG which I now learn is not very effective with low grade papillary bladder cancer but rather one dose of Mitomycin after TURB has been very favorable to those who have had it and it has prevented recurrences. When I have my next tumor removal, I will certainly consider the one dose of mitomycin if the doctor recommends it or the newest preventative of recurrences for low grade which is in a clinical trial III. The name of that is Eoquin. Eoquin has even shown to completely remove papillary tumors chemically without any surgery. Unfortunately it is not used in that way in the United States. Those of you in other countries should check that out. Rosie

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