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BCG Spreading to Lungs

11 years 7 months ago #5014 by wendy
Hi,

I think your urologist sounds as if he isn't 100% sure of the correct way to proceed. The literature states without a doubt to immediately treat with anti-TB drugs if there's the slightest suspicion of TB infection. It's so important that the whole concept of treatment is pushed aside, as BCG infections can be fatal.

What's happening with things now?
Wishing you the best,
Wendy

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11 years 7 months ago #4990 by Rosemary

I have seen many patients who have continued night sweats after BCG (and some with night sweats who have never had BCG). I think you are absolutely correct: it is likely that BCG has set up housekeeping somewhere in your body. It could be in your bladder, prostate, pelvic nodes, or just about anywhere. If it is not getting worse, it should not be a problem but if you have a major stress or disease that lowers your immune system, you could develop a serious BCG infection. That can be effectively treated as long as you get the appropriate antibiotics.

Flaring of BCG infection has occurred a year or more after the last BCG treatment. I would be cautious with future BCG treatments. The good news is that the continued stimulation from BCG may provide the continued protection you need to prevent tumor recurrance.


http://www.bcgoncology.com/drlamm/askdr20060213.html

Rosemary
Age - 55
T1 G3 - Tumor free 2 yrs 3 months
Dx January 2006

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11 years 7 months ago #4989 by Rosemary
Mikedc,

Wow!

I did find this on Dr Lamms' BCG Oncology Site. I don't know if it fits, but it sort of sounds like it.
Please keep us posted on the outcome of this and good luck. Glad to know that your Doc is on top of it.

Fever actually is associated with an improved response to BCG, but it can herald a BCG infection. Fever and chills should be treated promptly with combination antibiotics that are effective against BCG. On rare occasion serious, even life threatening infection can occur. BCG can infect the lungs, liver, bone, and even circulatory system (heart and arteries). Inflammation of the eyes can occur. Systemic (blood stream) infection with BCG can produce shock, with low blood pressure, respiratory, renal, and liver failure. In these cases in addition to antibiotics and intensive support, steroids (prednisone) has been found to be life saving.


Rosemary

Rosemary
Age - 55
T1 G3 - Tumor free 2 yrs 3 months
Dx January 2006

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11 years 7 months ago #4988 by mikedc
Anyone have any experience with BCG spreading to the lungs. Chest X-rays show nodules in my lungs. My Infectious Disease Dr fears the TB virus has spread to lungs and been incapsulated in nodules. Still having 2-3 fevers daily since last BCG (#5), 19 days ago, tired, weak, chills and night sweats.

My Urologist fears treating these nodules as TB because the Drugs will probably destroy any positive the BCG has gained in the bladder. He says symptoms may last another week or two.

Will see Pulmonary Doc tomorrow. Suppose he can do some tests to confirm or deny TB in lungs--I hope.

What does one do? Who do you believe?

Thanks for your replies,

Mikedc

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