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Low grade bc and mitomycin

3 months 2 weeks ago #59126 by mendocino
Only once. I have low grade rec. and a lot of crap

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3 months 2 weeks ago #59123 by Eight15
mendocino, thank you for your response. Just wondering...how many instillations of mitomycin did you have? And have you had any recurrences?

Thanks

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3 months 2 weeks ago #59122 by swarmy2007
I developed cystitis during 3rd cycle turbt/BCG and at end of treatment was treated with an antibiotic which far as I know resolved problem?? Have heard cystitis is common side effect all these treatments and just something ya have to endure for the greater good. Other hand I read doctors not supposed to give BCG treatments if have a UTO happening??? Glad I have a doctor I trust and just pretty much follow his lead.... seems be working for me.

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3 months 2 weeks ago #59118 by mendocino
I received mitomycin with low grade bc. The problem was and is, that I developed a very bad cystitis and after two years my bladder is not clean of the results of the cystitis, I do know that mitomycin is used in many cases at the stage of diagnosis of low grade and with good results in many others.

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3 months 2 weeks ago #59106 by swarmy2007
My 2 cents.... 4 turbt with BCG in 30+ months T1-High Grade and on last 6 week round BCG got real sick so doctor dropped BCG and started me on Gemzar in bladder 6 weeks just like BCG. After I went on 3x month scope with 3 week maintenance Gemzar (Gemcitabine) after scope if no return and 2 each 3 month cycles with no return of tumor yet. Seems the Gemzar may have worked better my case then BCG which gave me 104 temps and real sick. Understand after each turbt they did a mitomycin wash while still in recovery. In my case each turbt was done under general anesthesia. We're all different with different responses to treatment and seems this bladder cancer stuff very resilient and best stay on top it aggressively for the long haul.

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3 months 2 weeks ago #59105 by sara.anne
I am only aware of mitomycin being used when BCG is not available and sometimes if BCG fails.

Please remember that we are not docs here and you need to discuss this with your doctor and/or get a second opinion.

Sara Anne

Diagnosis 2-08 Small papillary TCC; CIS
BCG; BCG maintenance
Vice-President, American Bladder Cancer Society
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