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High Grade - non invasive - BCG

4 weeks 6 hours ago #58940 by NelsJenn
Dear Sara,

Thanks for the explanation about mitomycin in its dual function. You're such a diamond for us!

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4 weeks 10 hours ago - 4 weeks 10 hours ago #58939 by swarmy2007
34 months ago I was diagnosed with T1-high grade. Immediate TURBT with Gemzar (or maybe Gemcitibine) wash followed by 6 weeks BCG.... cancer returned within 5 months so repeated same protocol...cancer returned within 4 months so repeated same protocol but this time I got high fevers and very ill at the 4th BCG so they stopped and waited 3 weeks then started me on 6 weeks Gemzar and all happy till 5th treatment and got very miserable but finished all 6. Waited 3 months did a scope and lo & behold no tumors so now on scope followed by 3 weeks "maintenance" Gemzar every 3 months.... am starting my 2nd maintenance session if scope comes back clean in couple weeks. 3 weeks not bad at all. Guess game plan is 3 month cycle for 18 months then move out to 6 month cycles IF no tumors reappear. Have learned to just go on with life being grateful every day Lord keeps me here and not sweat those things I have no control over. Have a brother who has non-Hodgkin's lymphoma and even though successful surgery, radiation treatments ended near 2 years ago he walks around moping about life is over and whoa is he. I avoid him at all costs for folks no one gets off this earth alive in the end & it's what we do with each moment and how we relate to those around us that gives our lives value. I so pity his poor wife hearing his constant bemoaning his situation. Optimism is a crucial aspect to fighting and battle and knowing I have my Lord beside me to give me strength is of great solace and comfort. Stay positive and when times get tough the tough get going.... never give in to depression or fear.

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4 weeks 13 hours ago #58938 by sara.anne
We may be confusing two different uses of mitomycin here . Often a wash of mitomycin is used after a TURB as a sort of preventative for any possible spread of cancerous tissue due to the procedure. In this way it is being used as a chemo agent .

However it is also used to stimulate the immune system in the same way that BCG does. Mitomycin is used when BCG is not available or when it has been ineffective . Studies have shown that BCG is usually more effective than mitomycin when used in this way .

Sara Anne

Diagnosis 2-08 Small papillary TCC; CIS
BCG; BCG maintenance
Vice-President, American Bladder Cancer Society
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4 weeks 14 hours ago - 4 weeks 14 hours ago #58936 by NelsJenn
I have had two TURBT and nine BCG infusions. During my second TURBT, I was not given an infusion of mitomycin. This was different from my first TURBT wich included both scraping and a mitomycin infusion. I believe mitomycin is a chemotherapy treatment and BCG is a immunotherapy treatment, and the treatment approaches are different.
Does anyone know the historical effectiveness of mitomycin? I changed urologist and started receiving treatment from UCSF between the two TURBT treatments, and my UCSF urologist told me mitomycin was not necessary since I was going to get BCG infusions.

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4 weeks 17 hours ago #58935 by sara.anne
Last year there was a shortage of BCG and it was unavailable. In its absence many urologists needed to use mitomycin, which is not quite as effective as BCG (which is the "gold standard" for treatment of non-invasive high grade bladder cancer.) Most urologists are now able to obtain BCG. You might want to a ask your urologist why he/she as not obtained a supply for patients such as you.

Sara Anne

Diagnosis 2-08 Small papillary TCC; CIS
BCG; BCG maintenance
Vice-President, American Bladder Cancer Society
Forum Moderator

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4 weeks 1 day ago #58934 by dbachtel
Had my 1st treatment today. All went well except I leaked after approx 80 minutes.
Looks like 1 hour is the minimum & doc said I'm ok. The treatment was with Mitomycin instead of BCG.
Can anyone advise why they would give me Mitomycin instead of BCG ???

Thanks

Dennis

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