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Gemcitabine Regimen

1 week 5 days ago #58290 by swarmy2007
well....I have t1-High-grade and had 3 turbts in 22 months with the 6 weeks BCG after each and it kept returning (yes they did 2 hour Gemcitabine in OR after Turbt) and I failed all....so they decided to do 6 weeks of Intravesical Gemzar/Gemcitabine and all smooth 1st 4 week then week 5 all hell broke loose....terrible burning non stop for 6 weeks and found out one of the nurses likely did a bad and caused a fistula in my urethra so am now just begging to heal??? been on Flomax to even pee for urethra closed up.....and this week I go back in for follow-up scope at 5 1/2 months instead of required 3 months (money in the treatment ya know) to see if returned. Would imagine it has. I WILL NOT go through anymore their TREATMENTS I will insist on doing the R/C surgery this point. Suffered bad enough on these failed treatments and even with R/C know my best odds are 38% due to high grade cancer. Just worried these treatments and delays have allowed it to spread. Different folks different strokes on how well this stuff works. My treatments were put it in me....roll for 2 hours....next week repeat for total 6 times. Even cutting all out this cancer a candidate for "micro-metastasize" therefore the low 5 year odds. I've had to just stop worrying and am learning to let God lead me through this journey for without him I'd not exist. Good luck.... self educate and stay proactive for doctors may be great and all that but in the end we are just a job for them. Seen too many mistakes to have blind faith in medicine but know 1 thing for sure..... where all the doctors and medicine leaves off God picks up.

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1 week 5 days ago #58289 by Mike M
A one-hour intravesical treatment (confined to the bladder and instilled via a catheter) of gemcitabine or mitomycin chemotherapy is common at the end of the TURBT surgery to destroy any cancer cells still remaining. When there is a shortage of BCG at your treatment location, gemcitabine may be offered as a substitute for weekly immunotherapy treatment. BCG is normally used for only high-grade, non-invasive muscle disease (TA, T1 and CIS). Not clear on your hair loss question.

12/15 - Diagnosed Ta HG, 1.5cm Pap, Focal CIS
3/16 - Began BCG following NCCN and SWOG guidelines
2/19 - Ta HG recurrence and CIS/Ta HG in right kidney/ureter
2/19 - Nephroureterectomy to remove right kidney/ureter
6/19 - BCG x 30 completed
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1 week 5 days ago #58288 by Alan
Usually a one time as a wash when done with the TURB. Not systemically, just instilled in the bladder. I don't think you'll notice much. Maybe some lite burning when you void, maybe not. All of this is doable. The BCG has cumulative side affects but seldom anywhere near chemo. I consider it like a cystoscopy which is uncomfortable for 15-20 seconds but not really painful.....everyone has their own definition of pain and threshold.

DX 5/6/2008 TAG3 papillary tumor .5 CM in size. 2 TURBS followed by 6 instillations of BCG weekly with a second round of 6 after a 6 week wait.
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1 week 5 days ago #58286 by BigRIJoe
Normally how many rounds of gemcitabine treatments are administered? . I'm told that after an exploratory surgery to scape and biopsy a "suspicious spot" I'll have gemcitance installed in my bladder , while still being in the operating room Is this a one time application or does it go in weekly rounds like BCG treatment? . Is there hair loss involved?

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