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Jeez... Did I get sick.

11 years 8 months ago #4725 by Rosemary
Hang in there, Simon. Once you get back to work, I think you will feel much better mentally. That is half of the battle.

Your friend,
Rosemary

Rosemary
Age - 55
T1 G3 - Tumor free 2 yrs 3 months
Dx January 2006

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11 years 8 months ago #4722 by Simon
Hi Joe,

Thanks for that...

All we can do is remain positive. All we can do is fight.
You have so much to fight for.
I have 2 kids, 1-11 and 1-5.
I understand what you mean about trying not to think. I have been back off of work now for a week or so.
I am itching to go back just to try and keep my mind busy.

Hang in there Joe...

Simon.

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11 years 8 months ago #4702 by Mike
Simon I am glad to see they figured out your problem and you will be ok. I had to laugh about the pill thing. I am on pre-op chemo 2 weeks to go. I had my left hip replaced right b4 I find out I got BC. I try to fight as hard as I can and think positive but I am so sick of hospitals, IV's, shots, tests, pills, etc I could puke from that. Then as tuff as I am trying to hang and beat this if I do, I think I will be mentally insane afterwards from all the worrying and smells of hospitals and constantly thinking even though I try not too. Best Wishes, Joe

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11 years 8 months ago #4677 by Simon
Hi Rosemary,

Bacterial Infection.

No, as a matter of fact he didn't.
I'm considering carrying some with me in an easy dispense container!

Thanks,
Simon.

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11 years 8 months ago #4676 by Rosemary
Simon,

That smell makes me think bacterial infection right off the bat.  

I'm curious....did the Doctor give you a couple of Cipro pills to take after your poke and peek?  That is standard at my Uro's office.  He always runs a couple of pills down before I leave his office.

I sure hope you are feeling better, cause your experience sounds awful.

Your friend,
Rosemary

Rosemary
Age - 55
T1 G3 - Tumor free 2 yrs 3 months
Dx January 2006

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11 years 8 months ago #4673 by Simon
I had my first scheduled poke and peek on March 22. 3 months after my removal of a non invasive tumour.

That night I pulled my lower back moving a water bottle in my wife's van.
I started to get chills on Friday night but really didn't pay much attention to it.
My back pain was also increasing.
On Sunday night, my wife said I was moaning alot while sleeping. I was up several times urinating.

Monday morning, I knew for sure something wasn't right. I went to the hospital.
After the usual poking, proding, and IV's, I was on my way.

I jumped into my bed, did my meds, and went to sleep. An hour or so later, I was up vomiting.

Tuesday and Wednesday that was the extent of my affairs.
I couldn't eat. It was all I could do to drink fluids and keep my meds in me.
I was running a high fever, 39.7 C at one point. And did I sweat. Quite smelly at that.
Wednesday, late at night, I woke up to urinate. Dark brown with what appeared to be a white mucas. I thought the paint was going to peel off the walls from the smell. The strangest thing, I was able to drink fluids more easily and plentiful immediately following.

On Thursday, a scheduled GP. My Dr. wanted to admit me to the hospital...
More poking and proding.
I got lucky though, I guess my Uro WAS listening. He got me squeezed into a CT Scan.
I was able to eat something and keep it in my belly.
I sure did sweat again while sleeping. Buckets. This time it sure smelt alot like the solution they inject for the CT Scan.
Today (Friday) is going well also. More food and fluids, no fever and just antibiotics for pills.

I do have another biopsy scheduled for April 23.
My GP is going to get a bone density scan scheduled for me as advised by the ER Dr from Monday.

Any body else experience these signs and symptoms?

After my poke and peek, my affected part of my bladder looked like cob webs. I had one reply stating the same time of condition, but that was for a different area and the time after surgery was only 10 days.

After my original surgery to remove the mandarin orange sized tumour, I was in the hospital for another 2-3 hours before I was allowed to leave with a bag. I was told the surgery was a day surgery. But could barely move for 2-3 days. I'm beginning to think that because I'm 37 and used to be in relatively good shape, I was rushing things. Are my new symptoms from my cysto? Are they from complications that may have been brought on from something that was done at post op? Are they from a miss diagnosis?
I guess I'll learn more as test results roll in.

I have lost 10 pounds this week.

I am getting more faith in my Uro. He just phoned me with my CT results from yesterday. Left kidney infection, time for "Some big time Cipro!"

Do the pills ever stop?


Simon.

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