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Ilead conduit

7 months 2 weeks ago #57268 by Ange
Thank you.

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7 months 2 weeks ago #57241 by Cynthia
I have known people with all diversions and the answer is yes. I have an Indiana Pouch and I take a bath daily and we have a pool. And a Neo Bladder will also allow for both. With a llead conduit it will mean finding a swim suit that works and working with your stoma nurse. Your health care team will let you know when after surgery you can go into both the bath and pool. I would urge you to make a list of questions like this to take to your doctor this is the time to ask these questions. Hope this helps.

Cynthia Kinsella
T2 g3 CIS 8/04
Clinical Trial
Chemotherapy & Radiation 10/04-12/04
Chemotherapy 3/05-5/05
BCG 9/05-1-06
RC w/umbilical Indiana pouch 5/06
Left Nephrectomy 1/09
President American Bladder Cancer Society

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7 months 2 weeks ago #57240 by Ange
Will this form of urinating, be ok for me to bathe and swim? I love to do both. Or is anothe better for my swimming and bathing life styles.

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7 months 2 weeks ago #57239 by sara.anne
Hi, Ange. I will just provide some anecdotal evidence about the various options you are facing

The ileal conduit is the simplest surgery and takes the least time . As you know urine iis collected in a bag outside the body which is usually located on the lower abdomen . Sometimes people have difficulty before they find the exact bag that fits their needs but many supply companies will give you free samples of multiple types . It is possible to wear clothes so that no one knows that you have such a device

Another option is called the Indiana pouch In this case a small portion of your intestine is used to make a bag that holds urine. This is inside your body and it is connected to a valve either in or near your bellybutton. About every four hours or so you drain the pouch by placing a catheter through the valve. In this case there is nothing on the outside of your body .

The third option, the neobladders, uses an internal pouch also constructed from intestine which is hooked up to the original “plumbing “ and, under ideal circumstances you urinate the normal way. This is the most complicated and longist surgery. It works better in males than females because of differences in our anatomy . While some women have had successfully had neobladders, many are either incontinent or hypercontinent.

As Alan mentioned the expertise of the surgeon can make all the difference so you need to be sure that your doctor performs many of the type of surgery that you want . Many times a urologist may be only familiar with one procedure so that is the one that he or she recommends . Also as Alan has mentioned people tend to get used to whatever diversion they choose and are quite happy no matter which one they have.

Sara Anne

Diagnosis 2-08 Small papillary TCC; CIS
BCG; BCG maintenance
Vice-President, American Bladder Cancer Society
Forum Moderator

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7 months 2 weeks ago #57238 by Alan
Ange,

Here is a link for starters on diversions that many of us bookmarked a long time ago: https://my.clevelandclinic.org/health/treatments/12546-urinary-reconstruction--diversion

Just copy and paste into your browser. Most posters that I/we see are usually happy with their choice. A lot has to do with how active you may be. Also, whoever does the eventual surgery you want one that has done MANY over the past few years. 25-35+ a year.

DX 5/6/2008 TAG3 papillary tumor .5 CM in size. 2 TURBS followed by 6 instillations of BCG weekly with a second round of 6 after a 6 week wait.

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7 months 2 weeks ago #57236 by Ange
I am still in early times, but trying to decide what type way to urinate. They will remove my bladder, female parts, lymph nodes, due to bladder cancer. Praying all cancer will be gone and has not spread. I am thinking of the ilealconduit conduit. Thoughts plans? Pros and cons

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