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BCG Aches and Tiredness

3 weeks 2 days ago #56961 by jls1
Yes,I have CIS of the trigone,and T1.

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3 weeks 2 days ago #56960 by Jack R
JLS1,

Best guess, based on the additional info.
Has your doc described the cancer as CIS ? (Cancer in situ)

CIS appears on the surface of the bladder lining - sort of like a "rash".

Unlike papillary bladder cancer that form a polyp shaped tumor, CIS does not have such a presentation.

Google BLADDER CIS for more info about CIS.

Best guess of an idea based on your question and additional info.

We always need to ask our doctors to answer ANY question we have. He has the real answer for you.

Best
Jack

What's with this Bleeding ? 6/2015
DX: HG Papillary & CIS
3 Years and 30 BCG/BCG+Inf
Tis CIS comes back.
BC clear as of 5/17 !
RCC found in my one (only) kidney 10/17
Begin Chemo; Cisplatin and Gemzar
8/18 begin Chemo , round 3
Begin year 4 with cis

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3 weeks 2 days ago #56958 by jls1
Hi again. I need to back up a bit. I had 5 biopsies, 4 which were cancer,but no tumors. I dont understand no tumors but cancer in urine. Dr did check kidney,urinary tract etc.all was good. Thanks

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3 weeks 2 days ago #56957 by Jack R
JLS1

A TURBT, like all tests has limitations.

IF the doctor see a suspicious area, s/he can take a sample to be examined.

IF the doctor does not visually identify anything suspicious, yet has cause (such as a positive cytology) to suspect cancer, s/he may take random sample biopsies to be examined by the pathologist.

blue light inspection of the bladder MAY be helpful to identify cancer in the bladder that cannot be seen under normal white light. This test also has limitations.

If nothing is found in the bladder, yet cytology continues to indicate suspicion of cancer, it can become reasonable to consider the possibility of upper urinary tract cancer - that is, cancer in the ureters or renal pelvis. There are a number of tests to evaluate the upper tract, when it is warranted.

Talk to your doc/care team - Ask what else they can do to find the source of the "cancer in your urine" that you mentioned, and what is the appropriate time to consider further investigation.

Best
Jack

What's with this Bleeding ? 6/2015
DX: HG Papillary & CIS
3 Years and 30 BCG/BCG+Inf
Tis CIS comes back.
BC clear as of 5/17 !
RCC found in my one (only) kidney 10/17
Begin Chemo; Cisplatin and Gemzar
8/18 begin Chemo , round 3
Begin year 4 with cis

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3 weeks 2 days ago #56954 by jls1
Thanks for the reply, my urine cystology has been showing cancer in my urine constantly since June. I just dont understand where the cancer is coming from,but the bladder lining . Any feedback?

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3 weeks 2 days ago #56949 by Jacko
Thanks Alan, very helpful. Three hours to go before my last session, I can already feel the catheter negotiating the narrow passage close to my prostate, ouch!

Jacko

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