Here we go - CIS & BCG

VH9246

Addressing the question of CIS and incontinence, based on my 3+ years of treating.

My bladder capacity shrinks by about 50 % following BCG, MMC, etc, and can take 2 to 3 months to recover - translating to more frequent trips to the bathroom. Treatment irritates the bladder = more frequent trips. Eventually the bladder rebels, and even more frequent trips. Eventually, for a little while things settle back down to near normal, then treatment begins again.

My solution is planning liquid consumption based on upcoming activities, knowing the location of clean accessible restrooms in the community, AND Depends, or your favorite store brand of "Adult Security Undergarments". Fancy word for a diaper.

Unfortunately, it seems to be one of the side effects of treatment.

Do check with the care team to make sure that there is not some organic cause for the incontinence. Always let the team know what you are doing, and where you need help.

Best
Jack

Sara Ann,
You are so knowledgable about bladder cancer,BCG etc. I want to thank you for being so enlightened . By doing so your helping us who are new to understand this awful disease.
My husband has cis stage 0 , he went through the BCG treatments then 6 weeks later a scope . Dr told him it looked good and we will repeat the scope in 3 months. I believe it is every 3 months for two years then once a year after that. I will say he has some incontence now , dr said look at what we're doing to you. He gave him Mybetriq which is not only very expensive but it's not giving him the results he would like. Any input on this?
Thank you again for your time.

Thanks Anne.

It's very confusing for the laymen. We all read so much, and talk to our Doctors, read posts.
My Urologist has referred to my CIS as pre-cancerous, but in the same sentence will say I have Bladder Cancer.

I understand CIS (as it's own Stage (Tis) and the High Grade and urgency to get to my BCG, what I am really struggling with is the CYSTITIS as also found in my Pathology report. The Web has not been friendly to help me, and even searching here doesn't bring up a lot of past posts.

FINAL PATHOLOGIC DIAGNOSIS
A. Bladder, left lateral neck, biopsy
- FOLLICULAR CYSTITIS WITH CYSTITIS CYSTICA

B. Bladder, left posterior neck, biopsy
- UROTHELIAL CARCINOMA IN SITU
- BACKGROUND OF FOLLICULAR CYSTITIS