Forum

× click the New Topic button to post

Here we go - CIS & BCG

2 weeks 13 hours ago #57293 by Vh9246
Thank you, I am putting a call into his dr tomorrow. Mybetriq is very expensive if it were working that's a different story. His sphincter is good dr told him to do Kegle exercises. Thank you for your time.

Please Log in or Create an account to join the conversation.

2 weeks 14 hours ago #57288 by sara.anne
Have you discussed this with his doctor? Myrbetriq is usually prescribed for an overactive bladder, which can be a side effect of BCG ----i.e. urinary urgency. If he finished BCG in November, he should be pretty well healed from any irritation it caused and may not need Myrbetriq any more, if that is what the doctor prescribed it for. "Tiredness" is possible with this drug, but is not listed as one of the primary side effects.

Your husband needs to discuss this with his doctor to see if it is time to discontinue it. He shouldn't do that without talking to his doctor.

Sara Anne

Diagnosis 2-08 Small papillary TCC; CIS
BCG; BCG maintenance
Vice-President, American Bladder Cancer Society
Forum Moderator

Please Log in or Create an account to join the conversation.

2 weeks 17 hours ago #57285 by Vh9246
My husband was done with the BCG treatments in November and has had two clear scopes since then. His dr did one at6 weeks then one three months after that. These will continue for two yrs then twice a yr after that.
He was put on Mebtriq I am in belief that medication is makeing him tired. He was tired during the BCG but now that he's on Mybetriq he just sits down on the sofa and dozes off.
Any one have any input about Mybetriq?

Please Log in or Create an account to join the conversation.

2 weeks 21 hours ago #57274 by Alan
Regor,

Thanks for the updates. Everyone learns from our experiences. While no fun BCG is doable. And, anytime it felt bad I kept telling myself if this is the worst it is worth it! plus this is much better than chemo.

DX 5/6/2008 TAG3 papillary tumor .5 CM in size. 2 TURBS followed by 6 instillations of BCG weekly with a second round of 6 after a 6 week wait.

Please Log in or Create an account to join the conversation.

2 weeks 1 day ago #57266 by Regor
Wow, time has flown by. I completed my 6th week of BCG, the Induction phase is over !!
I am now in the hurry up and wait phase for my next scope, to take place in May.

My experience with BCG -
A headache for 24 hours after expelling BCG (each week)
Fatigue, each week, and growing by the week. The day of BCG and the next day, I had naps up to 4 hours long.
Fever, hit after 5th treatment, went over 102, and lasted from 24 hours after BCG, and didn't break for 3 days.
Just had treatment #6 yesterday, and fever went up to 100 last night, and over 101 now.
Resting and keeping an eye on it. Looking forward to bladder healing for a while.

CIS DX Jan 2019

Please Log in or Create an account to join the conversation.

2 months 2 weeks ago #56773 by Vh9246
Thank you Jack. That is basically what their told us but no one likes to be inlcontanent. My husband will get scoped again in March I believe this is every 3 months for two years then once a yr after that. As long as the scopes are good as they have been then we will get through this.

Thanks again for your response.

Vivian

Please Log in or Create an account to join the conversation.

  • Not Allowed: to create new topic.
  • Not Allowed: to reply.
  • Not Allowed: to add Files.
  • Not Allowed: to edit your message.
Moderators: Cynthiaeddieksara.anne

Users

Total Online: 2 Users and 329 Guests 
Alan's AvatarAlan, Regor's AvatarRegor

Legend: Site Administrator Global Moderator User Banned

Statistics

Today Total Opened: 1 Today Total Answered: 3 Latest User: Tmc84
Yesterday Total Opened: 1 Yesterday Total Answered: 3
Total Posts: 51755 Total Subjects: 6682 Total Users: 8112
Powered by Kunena Forum