Hi, Jim.
I moved your post here to a topic where more members will find it and suggest answers to your question. The “How to” topic is for questions about how to use and navigate the Forum.
As you have discovered, BCG can have side effects and one of them is persistent irritation and cystitis. You really need to press your urologist for help, or for referral to someone who can help.
Were you having this problem while you were undergoing BCG treatments? Most urologists would not administer BCG while there is any sign of irritation. Perhaps you need to seek a second opinion or consultation with another urologist who has a LOT of experience with bladder cancer and BCG. You do need help and it appears that you may not be getting any.
Sara Anne
Diagnosis 2-08 Small papillary TCC; CIS
BCG; BCG maintenance
Vice-President, American Bladder Cancer Society
Forum Moderator