Welcome to the Forum ! Sorry to hear about the “bump in the road,” but it probably isn’t the disaster that you have imagined.
First, a word of caution about urine cytology. It is very helpful as a diagnostic test, BUT ONLY IN CONJUNCTION WITH OTHER TESTS. Unfortunately, urine cytology tests tend to give too many false positives to be used without other methods of diagnosis. That is why your dad’s urologist is doing all the other tests.
The other symptoms you mentioned are likely to be side effects of the BCG treatments.
If the urine cytology results prove to be accurate, the likely reaon would be that the CIS is still present, not that the cancer has metastasized. If this is the case, the urologist has other tools in his tool box to try to deal with it.
Wishing you and your dad all the best
Diagnosis 2-08 Small papillary TCC; CIS
BCG; BCG maintenance
Vice-President, American Bladder Cancer Society
Last edit: 9 months 1 week ago by sara.anne. Reason: Typo
My dad has bladder cancer. Last summer he was diagnosed with cis and has been doing bcg treatments. All scans have been clear but his last scan was good but the urine test shows cancer cells so now he needs a cat scan on Monday. He also got pain like reactive arthritis and was given anti inflammatory by his primary dr but his cancer dr has said to not take them anymore I am very scared that this has spread to other organs