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Another resection :-(

8 months 2 weeks ago #54965 by Alan
Joe,

MD Anderson is my backup if I ever have to re-do any steps. I have two friends that also have had BC and BOTH went to MD Anderson and BOTH were assigned Dr. Kamat. They have nothing but glowing comments. He is very thorough!

DX 5/6/2008 TAG3 papillary tumor .5 CM in size. 2 TURBS followed by 6 instillations of BCG weekly with a second round of 6 after a 6 week wait.

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8 months 2 weeks ago - 8 months 2 weeks ago #54963 by JoeSmo55
Thanks Jack. Downloaded and read the article pointed to by the link. A lot of info there. Dr. Kamat (the primary author of that article) is my DR at MDA, so i guess i am in good hands.

Its just a bit unnerving. Thanks again

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8 months 2 weeks ago #54957 by Jack R
JoeSmo,

It is not yet time for the frown.

Part of the continuing care plan will depend upon the original diagnosis - high or low grade, the stage and type - papillary or CIS. BCG may not have fully kicked in at the six month point.

BCG can provide two benefits: reducing recurrence, and slowing grade advancement. Of course we all hope for immediate elimination of the cancer process; many do achieve this. Some of us do well on BCG for a while, others never do. The odds are WAY in your favor to do well.

Below is a link to more than you ever wanted to know about BCG (and other options) - you may recognize your own situation in the article, and have a strong basis for discussion with your care team; only you and the care team are familiar with your particular situation.

http://www.nature.com/nrurol/journal/v12/n4/full/nrurol.2015.58.html

You are at a great place for care. Trust your care team to be up on the latest approach that matches your response. Give yourself some time; from your description it is far too early to be discouraged.

Best,
Jack

What's with this Bleeding ? 6/2015
DX: HG Papillary & CIS
3 Years and 30 BCG/BCG+Inf
T0 CIS comes back.
BC clear as of 5/17 !
RCC found in my one (only) kidney 10/17
Begin Chemo; Cisplatin and Gemzar
8/18 begin Chemo , round 3
Begin year 4 with cis T0

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8 months 2 weeks ago #54956 by JoeSmo55
Just got back from MDA. Found 4 new small growths that were removed. waiting for pathology. During cystoscopy, then looked like “skin tags”. Dr is guessing low grade.

I am a bit nervous as i understood the goal of immunotherapy is to keep any more from coming back as long as possiible. 6 months isn’t very long :-(

Anyone else have experience with recurrance in the first yr? Any insight appreciated.

Timeline:
1) 3.5cm tumor removed 6/17/17 (in Michigan)
2) 1st resection 8/15/17 at MDA, at orogonal site, amd some small stuff removed at another site.
3) 1st round of BCG- 6 weeks
4) cystoscopy @MDA 11/21/17
5) 2nd round of BCG - 3 weeks
6) Cystoscopy @MDA -3/20/18
7)Resection @ MDA 3/22/18

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