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BCG Side Effects.....Fatigue

8 months 1 week ago #55020 by Joanne2
Hi sorry I didnt see this earlier! I had 6 treatments in 2016. When I was re diagnoses I had 3 more.

Hi Donna,
The last treatment really set me back. It took me about 3 weeks at least to feel up to doing my regular exercise. My doctor said my diet, etc.. won't make a difference. I'm back to exercising and feeling good again
Continuing to trust my doctors and God.

Hope you all are doing well.
Joanne

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8 months 1 week ago #55019 by DonnaD
Hi!
I have fatigue as well. What I have been doing is checking some of my other meds that I take and doctors are reducing dosages, etc. of any that cause fatigue. Like you I am eating a great diet and in fact lost 25 pounds by eliminating sugars, fats and processed grains. When I have to I take a nap. I also found that simple exercise, such as riding my bike for enjoyment and not heavy, fast pedaling helps with the fatigue too. It usually takes about 10 minutes on my bike for my energy to return.

Wishing you well.
Donna

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9 months 3 days ago #54917 by Eight15
Hi Joanne,

You said that you had low grade non-invasive BC 9/16 and then 6 BCG treatments after that. Did you have any maintenance BCG after that or just the 6 initial instillations?

I also have low grade and am being treated with BCG.

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9 months 3 days ago - 9 months 3 days ago #54916 by Alan
Joanne,

Sara Anne along with others here are a solid rock of info. I am adding my 2 cents as a 10 year survivor. The majority of us will pass on from something other than bladder cancer. Add a favorite piece of advice that I got years ago is: "take everything one day at a time". Each day has enough worries. Easy to say but, enjoy life's journey! You will beat this!

DX 5/6/2008 TAG3 papillary tumor .5 CM in size. 2 TURBS followed by 6 instillations of BCG weekly with a second round of 6 after a 6 week wait.

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9 months 4 days ago #54915 by Joanne2
Sara Anne,
I appreciate you more than you know. These are all things I need to hear and think about. I hope none of it needs to happen but you're right, I do need a plan.
Will be praying for you all,
Joanne

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9 months 4 days ago #54914 by sara.anne
I am sorry if we have contributed to your worry, Joanne. We will hope that you got it this time and that it won’t return. The odds are that it won’t. But if it should you need to be ready to face it head-on. I know that I have an imaginary file cabinet in the back of my mind where I have all sorts of contingency plans stored away “just in case.” It has now been ten years and I haven’t needed them. But if the day comes I will be ready.

And yes, it would be a good idea to discuss with your doctor what his plan might be if it does come back.

Sara Anne

Diagnosis 2-08 Small papillary TCC; CIS
BCG; BCG maintenance
Vice-President, American Bladder Cancer Society
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