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1st BCG Treatment Advice

9 months 4 weeks ago #54762 by arthur2002
Thank you

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10 months 13 hours ago #54761 by Alan
Arthur,

Most do very well, even with the side effects and I am sure you will too. While it is not a picnic it sure beats chemo that so many cancer patients have to endure. My 11th and 12th instillation I could only it hold for 50-55 minutes and I am still around. I did learn to know where the nearest restroom was by the 6th as I had maybe 20-30 seconds or I was going anyway.

DX 5/6/2008 TAG3 papillary tumor .5 CM in size. 2 TURBS followed by 6 instillations of BCG weekly with a second round of 6 after a 6 week wait.

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10 months 16 hours ago #54759 by arthur2002
Thank you for the advice

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10 months 2 days ago - 10 months 1 day ago #54755 by Mike M
Hey Arthur,

Will be receiving my 22nd BCG instillation next week also. Receive the instillation at the clinic, and then my wife drives us home...about a 45 min drive. Have completed the 2-hr hold period without too much difficulty. My approach...only drink water the evening before the treatment and then nothing to eat or drink after midnight. Also, lay flat on the floor (I use a yoga mat)...15 mins on back, 15 mins on each side, and 15 mins on stomach (watch Netflix on my iPad). You’ll be fine.

Best wishes!

12/15 - DX - Ta HG, 1.5cm Pap, Focal CIS; Treatment: SWOG Protocol...currently BCGx27

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10 months 2 days ago #54754 by arthur2002
Thank you

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10 months 3 days ago #54751 by sara.anne
First of all, it is not a failure if you do not make it to the 2 hour mark. That would be ideal, but just so the best that you can. Most times I made it to at least 1 hr, 55 minutes, but not always ?.

You will do fine!

Sara Anne

Diagnosis 2-08 Small papillary TCC; CIS
BCG; BCG maintenance
Vice-President, American Bladder Cancer Society
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