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First Cystoscopy after first TURPT. Smalls tumors Back. Need help and advice

1 week 3 days ago #54576 by exsequor
Thanks you two. I'll be praying for you, too Joanne. The only positive about us both sharing this experiences is the prayers and insight we can share. Besides that, I am sorry we both have to share this.

This is scary because of the uncertain. I'm not certain what their plan is, but I think future pathology dictates their path at this point.

My mind is back more at ease and at peace, just like before. Hope you're doing well. And thank you Alan for the solid advice, as usual. You're right on, as usual, as well.

My TURB is on the 23rd I believe so let's see how this all goes!
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1 week 3 days ago #54575 by Joanne2
This just happened to me as well. It is like I went back to the beginning. The good thing for both of us is that the BC is low grade and it was found. I feel the same way you do though. It's scary. I am 46. I just had my second resect and 3 small tumors removed. I start 3 instillations of BCG next month. I agree the 3 month checks are the key. I do wish there was something we could do, say cut back on sugar or red meat, etc.. to slow a recurrence for happening. There is definitely a powerless feeling. Keep up the good fight that we are all unfortunately fighting together. I wish you luck and will be praying for you.

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1 week 4 days ago - 1 week 3 days ago #54574 by Alan

The nasty item about bladder cancer is the re-occurence probability is pretty high. The good news is yours is rated low grade and there have been many on this board with similar DX. Thus the continual cystoscopy visits every 3 months which is normal and a TURB if anything is found. Should these continue coming back your URO will probably suggest BCG but, for now I'd let him do the guiding and whatever pathology reports dictate any next step.

DX 5/6/2008 TAG3 papillary tumor .5 CM in size. 2 TURBS followed by 6 instillations of BCG weekly with a second round of 6 after a 6 week wait.

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1 week 4 days ago #54573 by exsequor
Diagnosed with BC on 9/8/17. First TURBT was 9/12/2017

Pathology came back: Non invasive / low grade.

Just had first Exploratory Cystoscopy since TURBT and I have three small tumors (size of 1/2 ct diamond earrings each) that look like warts that have come back in a different spot!!!

(UROLOGIST said this new spot is easier to remover, better location for them to be (not next to ureter opening like before) and better location for procedure so this time he won't likely have to send me home with catheter or stents.

Based on what I was told, yes this had a chance of coming back, but with my young age and health, that it was rarer for it to come back then not!!

So now I'm worried!! Why is it back so soon??? Help!!

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