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BCG - I have latent Tuberculosis

11 months 2 weeks ago #54533 by Jack R
Growler,

A bit of info on BCG & prior TB exposure. ALWAYS consult with your care team about anything from the net.

Page 11 and 12 of the following document briefly addressed the positive PPD patient issue in 2015. The section WITH FOOTNOTE REFFERENCES is about 11 pages into the document, in a section selectable from the sidebar and titled,
Practical issues of BCG administration

http://www.nature.com/nrurol/journal/v12/n4/full/nrurol.2015.58.html

Among the authors of the article are Donald Lamm and Michael O'Donnell, both of whom are highly trusted researchers and treaters.
Follow the footnotes,

Best
Jack

What's with this Bleeding ? 6/2015
DX: HG Papillary & CIS
3 Years and 30 BCG/BCG+Inf
T0 CIS comes back.
BC clear as of 5/17 !
RCC found in my one (only) kidney 10/17
Begin Chemo; Cisplatin and Gemzar
8/18 begin Chemo , round 3
Begin year 4 with cis T0

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11 months 2 weeks ago #54532 by Growler
Alan thanks for your reply.

That is pretty much what will happen at last that is my expectation. Now that cancer is showing up, some of those who have fumbled are now kicking in and acting a little worried.

The advantage plan I am on coordinates payments with Medicare and everything thus far is supplemented and no limitations except to get to an ID. Texas has beefed up the retirement health care benefits and promoted their plan to most medical recourses. So we will get there soon. I made the mistake of using the M word (Medicare at first.) Now that they know they see $$$

It is still hard for me to believe that out of all the people that have latent TB there is just nothing for me to reference. With medical issues I have learned that to a great existent one must steer their own boat.

Still hope someone will have information or resources I can tap into.

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11 months 2 weeks ago - 11 months 2 weeks ago #54528 by Alan
Growler,

Your questions are way above any knowledge I have. Perhaps an infectious disease doc needs to consult with your URO as you opined, as opposed to actually be seen by you?

DX 5/6/2008 TAG3 papillary tumor .5 CM in size. 2 TURBS followed by 6 instillations of BCG weekly with a second round of 6 after a 6 week wait.

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11 months 2 weeks ago #54526 by Growler
Though I am lined up for a bladder resection and have a negative wash the Uro saw tumors and was adamant that the tumors were superficial. We will see shortly!

Leading to my question: I have to think ahead because of my latent tuberculosis status. I found out a year ago that I have been exposed to tuberculosis and my body has antibodies to prove it. Shocking side note is my Rheumatologist over looked the positive result of the TB screening via blood analysis in 2014. I had another positive blood test in 2017 yet had chest X-ray showing no active TB.

Thinking back it is a good chance that I was exposed to active TB back in the 70’s. I have never been treated with the antibiotics due to state’s Health Department policy that I am in a low risk group. I could not get to an Infectious Disease expert (ID) without a referral. None of my numerous doctors seen (I have an autoimmune condition) have even suggested anything other than go to the Health Department. TB in the US is handled as if you are from 3rd world country and have a 3rd world disease, you should get in line with the other homeless HIV people and get your free treatment for latent TB if the state shows you mercy.

Question: what contraindications are implied with BCG treatment and latent TB?

I already saw the 7 year old thread that rely didn’t get to the bottom line just conjectures which were helpful but this has to have come up more often than just the 7 year old thread. In this state a large increase in exposure to TB occurred in 2012. One third of the world’s population has been exposed to TB.

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