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BCG and continuous sleeping

1 year 5 months ago #53701 by Alan
Pretty normal. It took me a full 1-2 months before I really felt normal. If I remember correctly, you are the lady that I recommended Dr. Mansell Harris to see? Sounds like he has you on a different regimen than I was on. He had me do 6 treatments, a 6 week wait/scope and then just 6 more and that was it. It does tell he "customizes" each case which in good as everyone is different. As I remind many, this is doable and a lot simpler that chemo. As Sara Anne said "It shall pass" but, I still let the doc know!

DX 5/6/2008 TAG3 papillary tumor .5 CM in size. 2 TURBS followed by 6 instillations of BCG weekly with a second round of 6 after a 6 week wait.

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1 year 5 months ago #53700 by Jfoutz
Thanks Sara Anne!
This is terrible, not having any energy and not being able to stay awake.
I'll send a message to the doctor if I'm not better soon

Janice

Hematuria 4/2016
TURBT 5/2016
BCGx6 7/2016
Reoccurrence & TURBT 2/2017
BCGx6 4/2017
BCGx3 7/2017
TURBT 10/2017
Gemcitabine X6 12/2017
Cytology negative 4/2018
Cytology negative 8/2018

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1 year 5 months ago #53699 by sara.anne
Janice, as you noted, fatigue is probably the most common side effect of BCG. Boy did I have it!!! But you may want to mention this to your doctor.....

"This too shall pass":laugh:

Sara Anne

Diagnosis 2-08 Small papillary TCC; CIS
BCG; BCG maintenance
Vice-President, American Bladder Cancer Society
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1 year 5 months ago #53698 by Jfoutz
I have had a total of 15 BCG treatments. Now I can hardly keep my eyes open and so tired. It's been 2 weeks since my last BCG, has anyone else had this problem this long?
I did not have any bad symptoms, just a little tired for a day or two so I'm a little concerned.

Janice

Hematuria 4/2016
TURBT 5/2016
BCG 7/2016
Reoccurrence 2/2017
TURBT 2/2017
BCG 4/2017
BCG maintenance 7/2017

Hematuria 4/2016
TURBT 5/2016
BCGx6 7/2016
Reoccurrence & TURBT 2/2017
BCGx6 4/2017
BCGx3 7/2017
TURBT 10/2017
Gemcitabine X6 12/2017
Cytology negative 4/2018
Cytology negative 8/2018

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